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Kids With Special Needs and Disabilities
Needs family therapy. It's grown beyond the underlying special need into something that is poisoning the whole family.
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I used to work on a child / adolescent inpatient psychiatric unit and we often had parents who were just 'done'. They were burned out and were in survival mode. They had moved their energy and emotion to their other kids or places where they felt it would be more productive. Often they had already tried so many things that they were initially not open to trying again because it just felt like prolonging the agony and they were pretty hopeless that doing things in a different way would make any difference. In about 80% of the cases, these were really loving, good parents who were just at the end of their rope. They had nothing left to give.
Outcomes varied. Some indicators of more chance of success were: Intact families - biological parents and siblings. (Blended families were pretty much a lost cause) Decently strong marriage where both parents are still supporting each other and trying to pull together. Extra family / friend support - having a grandparent or aunt or cousin or best friend who can do relief work helped a lot. Parents involved in therapy to work through their own feelings and to keep their marriage strong and to maintain their own sanity. Willing to work with the team. Even checked out but open to listening was a place to start. Self-reflection. Typically dynamics between every member of the family have to be explored - learning to do things differently doesn't mean anyone was doing anything wrong, just that there is another way to do it that might lead to a better outcome. Being able to consider doing things differently without being defensive or angry. In some cases, it worked and in some cases it didn't. Some kids didn't go back home. They went into foster care or went to live with extended family or longer term institutional centers in rare cases. |
This is good advice, op. I would add looking into medication both for you and your kid. You are obviously in crisis and are going through a lot. This board can bring out wise words as well as the crazies. Know you can link your post in website feedback and ask Jeff to lock or delete it if it's just too much or you've gotten the information you need. |
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Previous poster who sent myself to boarding school because of my brother:
I had an incredible experience at boarding school. The school I chose (I did all the research) was small and outdoorsy. It felt like a family environment. I was close to home and allowed to leave on weekends but I never left. It was exactly what I needed. Maybe you could find a place like this for your daughter. |
OP could you elaborate on what you said here? It's hard for me to believe that this thread has gone on for 10 pages without you sharing more details about this. If you're not willing to share, then inpatient psych unit worker's post is the one for you to follow. |
[b] Nanny again- Yes the diet was just one of MANY changes. We have all worked so hard, especially the little child in my care. She doesn't want to scream and hit people and melt down in public. She wants to regulate her feelings and be able to express herself appropriately. I feel like my job is more than just a regular nanny job, it feels meaningful and I know every day I'm helping make a difference. When I arrived the older siblings of this child were just done with her and refused to speak to her. The parents couldn't be alone with her and they had 24/7 nannies and she had to be locked in her room at night. Now the lock is off, the weekend and evening nannies are gone and things are so much better. Diet was just one of many changes, but I notice how her mood is worse when she eats sugar and gluten, so that's why we always hike or exercise afterwards. We live in an area with excellent trails so that's a huge plus! |
I am the PP that was institutionalized as a child. Thank you, and I assure you there's much more. My mother was verbally and emotionally abusive and my father was physically abusive. At around age 8 I called CPS to help me. That was a big mistake as I was punished severely for it. The social worker made one home visit and suggested some books and parenting classes before closing the case. As a young adult my brother committed suicide and my other brother has made several attempts. They failed us all dramatically. I was simply hoping to provide OP some insight based on my unique experience. |
I'm doing much better, thank you. It took until my 30s to realize how much my environment impacts my symptoms. I must maintain a realitively stress free lifestyle to avoid medicating. I tried a slew of SSRIs, benzos, lithium, nutraceuticals, elimination diets... you name it. I reacted poorly to all of the pharmaceuticals. I have an excellent therapist and a supportive and understanding husband so I'm able to manage my symptoms on my own and have been doing so for the last 6 years. |
Thank you for answering. I am glad you have found a way to manage your symptoms and I wish you continued good mental and emotional health. |
In terms of things my parents could have done, this is difficult as I don't think they were good parents fundamentally. As a parent myself, I don't believe any of my observations would help a typical parent. If I were advising my own parents, I would encourage them to allow is to go live with relatives. There were relatives willing to take me in on a permanent basis and I don't know why that option wasn't explored. I assume pride and ego got in the way, but I will never know. |
07:00, could you please share the school your child is at? Also the CBT you see? A lot of us are in the same boat and any info is greatly appreciated. |
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OP here, I assure you this isn’t a troll post.
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Your last line - that you just want her out of your lives - is heartbreaking. Your poor daughter. If her family doesn’t love her then who will? But at the same time, I’m sure it’s incredibky difficult. You need a new approach. |
FFS! Of course OP needs a new approach! Why do you think she's posting? What have you contributed to the discussion? Nothing! And, OP never said she didn't love her DD. Clearly, you've not been through anything like this because the twister is that you DO love your child even if you don't like her. If you didn't love her, it would be so much easier to make decisions. |
Sounds like step child or adopted. |