| I've got no advice, OP, just a lot of sympathy for you. Sometimes there are no good choices. It's unfortunate there isn't more support for kids like your 5 yo AND it's unfortunate your other kids are so impacted by it. It sucks all the way around. Hugs. |
+1 |
I strongly recommend against engaging with the system without first hiring a lawyer. Especially given OP’s level of desperation and burnout. |
You don't need a lawyer to ask about Voluntary Placement. Many of us with kids with mental health needs have had to do this. |
Realistically, you could get full coverage for weekends and evenings if you get ABA. They generally want more hours and most people don’t want to commit to 20+ hours of ABA a week because it disrupts family time. It sounds like you’re desperate for respite so this would work for you. Generally, I hate ABA because it’s a very blunt tool that’s not great for higher functioning children. For example, if the child is receptive to speech or OT that’s always a better path than ABA. However, if your child is non-verbal or physically aggressive, sometimes ABA is the only option left. I did ABA for 6 months when my child was 3 and turning more inwards to the point where little transitions like going to the car resulted in massive hours long tantrums. He was nonverbal and we couldn’t communicate at all to the point where we couldn’t make any plans because we never knew how he would react. Once he got to a point where we could reliably get him to other therapy we quit ABA. (It had become too much about making him stop stimming. I wanted to focus on improving communication and ABA was definitely getting in the way.) Check your insurance. If you have a maximum out of pocket, you will definitely meet it, but it will still be the cheapest way to get support out there. |
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Hi OP, here is some information on voluntary placement. It specifically says that this can be an option for parents considering terminating their rights.
https://allianceforchildrensrights.org/wp-content/uploads/VPA-Self-Advocacy-Guide.pdf |
That information is for California. |
And this is normal. When my child was in the worst stage, I remember daydreaming about getting divorced just so I could get a break. The idea of 50/50 custody sounded like a dream. I felt like a prisoner in my own house, constantly walking on eggshells and subjecting my other children to a terrible environment. Until you’ve felt that level of despair, you need to shut up and stop judging other parents. If you want to troll, go to general parenting and pick arguments about organic food or the right school district, but please leave the SN parents alone. We have enough to deal with. |
Bravo, +1000! |
Different poster----then DO something! I say this as a family member who has to now clean up my sibling's mess of a family. They chose to have additional children after it was clear that their first born had major needs. They chose not to seek out resources b/c they didn't like the "militant autism parents", and therefore have no supports or community. They chose not to invest in resources and instead continued to live in a home they could barely afford. It's appalling. |
Stop. Stop it. Be quiet. |
I should have said that, but it provides an understanding of how this program often works and while states will have some differences, it is not THAT different. If op has never heard of it, it gives some context. |
New poster. You are not helpful at all. Please go help on another forum. |
| Op, do you have grandparent support ? If yes, I would ask retired grandparents to help out a bit here and there.I wonder if you could have a live in special need nanny if possible. In my hometown, it is quite affordable and common to find a live in nanny for like less than $2k a month but they get break/no working on weekends. They coukd help with chores and cooking/cleaning if kids are in school. |
You’re quoting me and I completely agree. OP’s despair is reasonable. But also it’s good that people are responding with more realistic solutions. |