Reply to Terminating Parental Rights in MD

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[quote=Anonymous][quote=Anonymous][quote=Anonymous]OP, can you do ABA after school to have 20-40 more hours a week of support? I have heard of people who do ABA on top of school. It’s obviously an intense schedule for the child, but probably better than the alternative in a situation like yours. I don’t know if any weekend hours are available but that might fill a huge need. It sounds like you likely need more help from ABA anyway if things are this bad.

My heart goes out to you OP. Few people understand the enormous demands placed on severe ASD parents and how little support there is. [/quote]

We're on waitlists for ABA, but right now the lists are so long that they're not willing/able to project when they might be available.

It would certainly help, but the bigger problems are mornings, evenings, and weekends when the kids are all at home.[/quote]

Realistically, you could get full coverage for weekends and evenings if you get ABA. They generally want more hours and most people don’t want to commit to 20+ hours of ABA a week because it disrupts family time. It sounds like you’re desperate for respite so this would work for you.

Generally, I hate ABA because it’s a very blunt tool that’s not great for higher functioning children. For example, if the child is receptive to speech or OT that’s always a better path than ABA.

However, if your child is non-verbal or physically aggressive, sometimes ABA is the only option left. I did ABA for 6 months when my child was 3 and turning more inwards to the point where little transitions like going to the car resulted in massive hours long tantrums. He was nonverbal and we couldn’t communicate at all to the point where we couldn’t make any plans because we never knew how he would react. Once he got to a point where we could reliably get him to other therapy we quit ABA. (It had become too much about making him stop stimming. I wanted to focus on improving communication and ABA was definitely getting in the way.)

Check your insurance. If you have a maximum out of pocket, you will definitely meet it, but it will still be the cheapest way to get support out there.

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