Kicked out of every activity and summer camp we’ve ever tried

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

I mean, what did you expect posting this here? Honestly. The advice you get here is usually worth about what you paid for it. NP

DP I will never understand why so many DCUM posters feel compelled to offer advice that a poster has specifically stated they don't want.

Y'all are jerks. OP asked nicely to stick to the question she asked, and people ignored the request. Why? If you can't answer given the information provided, don't post.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

I mean, what did you expect posting this here? Honestly. The advice you get here is usually worth about what you paid for it. NP

DP I will never understand why so many DCUM posters feel compelled to offer advice that a poster has specifically stated they don't want.

Y'all are jerks. OP asked nicely to stick to the question she asked, and people ignored the request. Why? If you can't answer given the information provided, don't post.

Op here. Thank you for sticking up for me. I even reported this thread because I can’t tell if it’s one poster or multiple posters with an axe to grind.

My unwillingness to discuss medication here with strangers on the internet doesn’t mean that we aren’t looking at medication. I feel I’ve throughly explained that my son is on meds and working with doctors on this. I don’t think I should have to explain every detail of medication and diagnoses and evaluations and therapies, etc. to be allowed to ask a question here.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

I mean, what did you expect posting this here? Honestly. The advice you get here is usually worth about what you paid for it. NP

DP I will never understand why so many DCUM posters feel compelled to offer advice that a poster has specifically stated they don't want.

Y'all are jerks. OP asked nicely to stick to the question she asked, and people ignored the request. Why? If you can't answer given the information provided, don't post.

Op here. Thank you for sticking up for me. I even reported this thread because I can’t tell if it’s one poster or multiple posters with an axe to grind.

My unwillingness to discuss medication here with strangers on the internet doesn’t mean that we aren’t looking at medication. I feel I’ve throughly explained that my son is on meds and working with doctors on this. I don’t think I should have to explain every detail of medication and diagnoses and evaluations and therapies, etc. to be allowed to ask a question here.

Your question is, essentially, "Does anyone else just give up?" And you are allowed to ask that question. But people are allowed to answer it. Some people said yes, they gave up. Some people said no, they adjusted meds. It's okay that you got a few answers that weren't useful. That's what you get here-- the candor can be really helpful, or it can be hard.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

I mean, what did you expect posting this here? Honestly. The advice you get here is usually worth about what you paid for it. NP

DP I will never understand why so many DCUM posters feel compelled to offer advice that a poster has specifically stated they don't want.

Y'all are jerks. OP asked nicely to stick to the question she asked, and people ignored the request. Why? If you can't answer given the information provided, don't post.

Op here. Thank you for sticking up for me. I even reported this thread because I can’t tell if it’s one poster or multiple posters with an axe to grind.

My unwillingness to discuss medication here with strangers on the internet doesn’t mean that we aren’t looking at medication. I feel I’ve throughly explained that my son is on meds and working with doctors on this. I don’t think I should have to explain every detail of medication and diagnoses and evaluations and therapies, etc. to be allowed to ask a question here.

It's multiple posters telling you the same thing but you choose to be defensive and rude. No one has been unkind to you.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

You can be offended all you want, but I'm telling you as someone who has a lot more experience dealing with this than you do that whatever the psychiatrist put him on is not working. Good luck.

Op here. What is it that you imagine occurs in our monthly visits to our child psychiatrist? Do you think I just fail to mention the struggles? Do you think we have only ever tried one medication and never ever changed the dosage/timing/etc? Do you think these appointments are for recreation or chit chat? WE HAVE TRIED NO FEWER THAN 10 DIFFERENT PSYCHIATRIC MEDICATIONS ON OUR 5 YEAR OLD AT VARIOUS DOSES. Why do you think you know more than I do, when I have had the tenacity and wherewithal to get my 4 year old ok stimulants? How many people have you ever met that have done that? Doctors do not like to diagnose ADHD at 4, let alone prescribe STIMULANTS for it at that age. And yet, I managed to get my son on them on his 4th birthday.

But sure, by all means, tell me more about how I’m in denial and need to try a new medication. Wow, amazing, I’ll have to show your post to our psychiatrist! Because it never occurred to any of us to try a different medication or dose or time of day or…..

It's amazing to me that you came here and asked for advice considering you already know it all. So sorry to offend you by sharing my personal experience. GOOD LUCK.

Op here. I had a specific question, which I’ll share here for the 3rd time:

At what point do you just decide that your kid won’t be in anything and stop trying?

I prefer to work with the MDs who actually see my child rather than getting medical advice from an anonymous forum.

My opinion is different - summer camps are pretty boring. Most parents don't pay much attention to them and neither did I until one day I had to take a call before picking up my kid which gave me the chance to observe the camp at a distance for about an hour and then I started dropping in at other ones too over the years. It didn't matter how much we paid or what the description was, the camps were all the same. They were staffed by a few college kids and maybe some high school counselors who knew very little about group child care and had no idea that activities they would do , would interest a kid at most 15 minutes. Except they would plan them for an hour. the rest of the time was just making kids stay seating, yelling by counselors to get kids to stay seated and then eventually seated activities like puzzles, coloring or some easy craft like stringing beads.

Most summer camps are done in age ranges like 5 to 8 or 6 to 9 and those age ranges are very difficult for young people with no group child care skills to manage. It always turns into a free for all. Summer camp is babysitting with some pauses for an interesting activity. Kids like them because they make a friend, and the counselors are usually nice and push overs and let them get away stuff.

There is an exception and this was sports focused camps for a single sport that spent the majority of the day engaged in the sport.

All that to say, OP, given your child's struggles and the fact that summer camp can include a lot of dead time sitting and waiting, take a break for the summer.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

I mean, what did you expect posting this here? Honestly. The advice you get here is usually worth about what you paid for it. NP

DP I will never understand why so many DCUM posters feel compelled to offer advice that a poster has specifically stated they don't want.

Y'all are jerks. OP asked nicely to stick to the question she asked, and people ignored the request. Why? If you can't answer given the information provided, don't post.

Op here. Thank you for sticking up for me. I even reported this thread because I can’t tell if it’s one poster or multiple posters with an axe to grind.

My unwillingness to discuss medication here with strangers on the internet doesn’t mean that we aren’t looking at medication. I feel I’ve throughly explained that my son is on meds and working with doctors on this. I don’t think I should have to explain every detail of medication and diagnoses and evaluations and therapies, etc. to be allowed to ask a question here.

It's multiple posters telling you the same thing but you choose to be defensive and rude. No one has been unkind to you.

I'm the PP defending OP. OP asked quite nicely to stick to the question, and she was called "touchy". That was uncalled for. People continued to offer advice that was clearly unsolicited. That is really annoying, and I don't know why that's considered okay on DCUM but I've had it happen too and it is really invasive and frustrating. There is NO reason to demand private medical information on this forum and if you are doing that you should ask yourself why it is important to you to force advice on someone who doesn't want it.

[Anonymous]

I echo the poster who said switch venues. I’ve planned my child’s who life so that no one group sees him all the time. For example, we go to a boy scout troop that pulls students from a student elementary. Taekwondo is across town. Church is in a completely different neighborhood. I even chose to send him to a split feeder elementary still so he’ll hey more new faces in middle school. The pp who mentioned a student summer camp every week is doing the same thing on a different schedule. Of course your child deserves to be included. If you need respite care, then he’s on the far end. Facilities need respite, too.

[Anonymous]

I don't understand how he could be kicked out of a public school program. Does he have an IEP? If not get one now.

[Anonymous]

To answer your question I think you should stop enrolling him unless he has a one to one aid or a parent to stay with him. It doesn't sound beneficial to you, him or the other participants to keep enrolling him.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

I mean, what did you expect posting this here? Honestly. The advice you get here is usually worth about what you paid for it. NP

DP I will never understand why so many DCUM posters feel compelled to offer advice that a poster has specifically stated they don't want.

Y'all are jerks. OP asked nicely to stick to the question she asked, and people ignored the request. Why? If you can't answer given the information provided, don't post.

Op here. Thank you for sticking up for me. I even reported this thread because I can’t tell if it’s one poster or multiple posters with an axe to grind.

My unwillingness to discuss medication here with strangers on the internet doesn’t mean that we aren’t looking at medication. I feel I’ve throughly explained that my son is on meds and working with doctors on this. I don’t think I should have to explain every detail of medication and diagnoses and evaluations and therapies, etc. to be allowed to ask a question here.

It's multiple posters telling you the same thing but you choose to be defensive and rude. No one has been unkind to you.

I'm the PP defending OP. OP asked quite nicely to stick to the question, and she was called "touchy". That was uncalled for. People continued to offer advice that was clearly unsolicited. That is really annoying, and I don't know why that's considered okay on DCUM but I've had it happen too and it is really invasive and frustrating. There is NO reason to demand private medical information on this forum and if you are doing that you should ask yourself why it is important to you to force advice on someone who doesn't want it.

She asked a question and we offered the best advice we had based on the experiences we had with OUR children. That is the whole point of this forum. No one asked for specific medical information. It's ok if she doesn't want to take the advice. She doesn't need to repeatedly lash out simply because we offered up something.

[Anonymous]

Op, have you tried those outdoor summer camp? My asd/adhd has been doing great with almost 100% outdoor camps that they stay outside in the sun daily for 10 weeks every summer. He is not medicated. He loves it, and they are on the go all the time. I think they kick soccer/street hockey/bball, hiking, play in pool, rock climbing, fishing, playground etc. It is quite hot and buggy outdoor, and they stay outside in the rain unless it is thunderstrom. He still has a ton of energy once he gets home. He is hyperactive. He went to those camps starting at age 5.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

NP. You, OP, are the one who came to the board seeking answers.

You do not get to dictate respondents' questions surrounding the current situation. If you don't like the answers...that is on you. Many of us have BTDT and it's awful to go through.

Many people are suggesting to you that the meds are not working and/or are not the correct ones, etc.
Perhaps you need a fresh set of eyes from a new and different doctor. (We had meds check-ins bi-weekly when things were rough.)

My kid [now 20-year-old] started meds in pre-K after an evaluation and second opinion. He was counseled out of private K and had a horrible public K experience. As parents, needed to assess what was working and what was not. Meds were changed, added, subtracted, until a reasonable balance was achieved with better outcomes. Far from perfect, as is any solution, but an improvement. All the play therapy, workshops, diet change, OT, PT rolled into one did not mitigate what the meds could.

To answer your direct question, we stopped trying sports and sports camps.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Medication? A little boy in my child's K class had to start meds because he was just entirely out of control. It's on the early side, but in rare cases, some patients do actually need medication.

I wouldn't medicate for summer camps, mind you. But if he's like this now, he'll be a holy terror in school. He needs medication for school. Most ADHD simulants are habit-forming, so he needs medication breaks regularly (on weekends and holidays). My son was medicated from 5th to 12th grade and now in college doesn't need regular meds anymore.

Camp has way more transitions and unstructured time than schools. Meds are essential at camp.

She doesn't want to head about meds. Don't bother.

Op here. Read the effing thread. My kid has been medicated since he was 3, on stimulants since 4. We’ve been on 10 different psych meds at various doses. We see a child psychiatrist monthly. I’m not interested in discussing meds because I am already having those discussions with my son’s medical team. I do not need that kind of input here. He’s currently on 3 different psychiatric meds, and he’s 5 years old.

Based on your OP and your follow-ups, camps and others are just tired of dealing with... if you come at them with they way you have responded to some trying to be helpful.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Medication? A little boy in my child's K class had to start meds because he was just entirely out of control. It's on the early side, but in rare cases, some patients do actually need medication.

I wouldn't medicate for summer camps, mind you. But if he's like this now, he'll be a holy terror in school. He needs medication for school. Most ADHD simulants are habit-forming, so he needs medication breaks regularly (on weekends and holidays). My son was medicated from 5th to 12th grade and now in college doesn't need regular meds anymore.

Camp has way more transitions and unstructured time than schools. Meds are essential at camp.

She doesn't want to head about meds. Don't bother.

Op here. Read the effing thread. My kid has been medicated since he was 3, on stimulants since 4. We’ve been on 10 different psych meds at various doses. We see a child psychiatrist monthly. I’m not interested in discussing meds because I am already having those discussions with my son’s medical team. I do not need that kind of input here. He’s currently on 3 different psychiatric meds, and he’s 5 years old.

Based on your OP and your follow-ups, camps and others are just tired of dealing with... if you come at them with they way you have responded to some trying to be helpful.

DP here. I've expressed similar frustrations on DCUM and my child has never been kicked out of anything. It's not because I'm a nicer person, as many DCUM posters would agree if I was anonymous. It's that we have different children.

These types of comments are so dumb and rude. SMH.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Is he on medication?

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise :) I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work.

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues.

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?

Are you this kind to the camp staff?