Reply to Kicked out of every activity and summer camp we’ve ever tried

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Is he on medication? [/quote]

Op here. Yes. And we’ve done evaluations and we have an army of doctors. We have a diagnosis. We know the cause.

If possible, I would greatly appreciate if we could stick to the question I am asking, which is NOT-how do I prevent this from happening or why is this happening. Because I have already done ALL THE THINGS-promise :) I am not looking for comprehensive feedback on our medical and therapy regime. I assure you I have left no stone unturned. Just asking specifically about experiences with SN kids and activities/summer camps.[/quote]

It is happening due to the hyperactivity. The only treatment for ADHD/hyperactivity is medication. No need to be touchy about it. We all have kids with issues in this forum. The medication he is on is not working if his hyperactivity is not managed to this degree.

The only other suggestion I have is camps that are sports/running heavy. So soccer, swimming, etc. But even then if his inattention is preventing him from following directions, I'm not sure it would work. [/quote]

Op here. I put my 4 year old on stimulants. I’m aware he’s hyperactive. I am not looking for explanations. I know my kid.

If you look at my OP, I had a specific question which is:

At what point do you just decide that your kid won’t be in anything and stop trying?[/quote]

Your question is about you feeling sorry for yourself at the moment and not actually looking for solutions. I get it. I have a kid on the spectrum who also has ADHD and ticks. I get it. It took me a long come to come to terms with some things.

But I am telling you as a mother to a 16 year old that the medication is not working and it could fix a lot of the issues. [/quote]

Op here. Just go away. You’re not helping. We literally have a child psychiatrist who we see every month. You honestly think you can do better on an anonymous board than what our psychiatrist who is an MD and has actually seen our child for years can? Did you see the part where I said we put our 4 year old on stimulants? Do you think that happens by just waltzing into a pediatrician appointment? It took tenacity and follow up and advocacy and specialists and doctor shopping to get a 4 year old on stimulants, mmmkay?[/quote]

You can be offended all you want, but I'm telling you as someone who has a lot more experience dealing with this than you do that whatever the psychiatrist put him on is not working. Good luck. [/quote]

Op here. What is it that you imagine occurs in our monthly visits to our child psychiatrist? Do you think I just fail to mention the struggles? Do you think we have only ever tried one medication and never ever changed the dosage/timing/etc? Do you think these appointments are for recreation or chit chat? WE HAVE TRIED NO FEWER THAN 10 DIFFERENT PSYCHIATRIC MEDICATIONS ON OUR 5 YEAR OLD AT VARIOUS DOSES. Why do you think you know more than I do, when I have had the tenacity and wherewithal to get my 4 year old ok stimulants? How many people have you ever met that have done that? Doctors do not like to diagnose ADHD at 4, let alone prescribe STIMULANTS for it at that age. And yet, I managed to get my son on them on his 4th birthday.

But sure, by all means, tell me more about how I’m in denial and need to try a new medication. Wow, amazing, I’ll have to show your post to our psychiatrist! Because it never occurred to any of us to try a different medication or dose or time of day or…..[/quote]

It's amazing to me that you came here and asked for advice considering you already know it all. So sorry to offend you by sharing my personal experience. GOOD LUCK.[/quote]

Op here. I had a specific question, which I’ll share here for the 3rd time:

At what point do you just decide that your kid won’t be in anything and stop trying?

I prefer to work with the MDs who actually see my child rather than getting medical advice from an anonymous forum. 
[/quote]

My opinion is different - summer camps are pretty boring. Most parents don't pay much attention to them and neither did I until one day I had to take a call before picking up my kid which gave me the chance to observe the camp at a distance for about an hour and then I started dropping in at other ones too over the years. It didn't matter how much we paid or what the description was, the camps were all the same. They were staffed by a few college kids and maybe some high school counselors who knew very little about group child care and had no idea that activities they would do , would interest a kid at most 15 minutes. Except they would plan them for an hour. the rest of the time was just making kids stay seating, yelling by counselors to get kids to stay seated and then eventually seated activities like puzzles, coloring or some easy craft like stringing beads.

Most summer camps are done in age ranges like 5 to 8 or 6 to 9 and those age ranges are very difficult for young people with no group child care skills to manage. It always turns into a free for all. Summer camp is babysitting with some pauses for an interesting activity. Kids like them because they make a friend, and the counselors are usually nice and push overs and let them get away stuff.

There is an exception and this was sports focused camps for a single sport that spent the majority of the day engaged in the sport.

All that to say, OP, given your child's struggles and the fact that summer camp can include a lot of dead time sitting and waiting, take a break for the summer. [/quote]

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