This is similar to us. I was helping a lot and walked away when I was paying for their stuff to find out I was not poa and everything is going to a sibling who has equal to us. They did not give me a dime to my kids, including a $10 birthday gift, they have plenty of money and treat me badly. It’s ok to say no. It took me a long time to get there. I gladly cared for my mil but they were so mean to me about it and horrible to her. |
If I'm not mistaken PP's point is to make arrangements for his/her own eldercare NOW so that when the time comes it will help her children now be burdened. So it is about elderly care, his or her own to help out his/her children. |
At my dad's stage of dementia they were in Lala land. Activities were offered at the facility in general but trying to have those activities in a locked Alzheimer's unit would have been a confusing, disorienting disaster. And outings? No way. They really do need to have a certain level of mental functioning to enjoy the little extras offered. Mostly, at this stage it is keeping them safe, clean, fed, watered and talking gently to them/keeping them calm. Yes, my mom is very high functioning which is why the activities, outings, dining room, etc have been so important for her. They can be in wheelchairs and walkers and enjoy the activities from what i've seen. |
Thanks. she has always been like this. It's just gotten worse and I've gotten less tolerant of her abuse. |
People like you amuse me to no end. You spout psychological platitudes and offer no real solution to real world problems. Real life is a lot messier than you describe, and there’s often a lot of spoons trying to stir the soup, oftentimes worrying about their own inheritance. The people making the toddler comments are addressing the actual behavior they have to work with, not the feels behind the behavior. Understanding the feelings changes nothing. |
| My dad isn’t a toddler yet. He’s more like a tween boy who thinks that he’s being slick when he comes up with excuses or then gets moody if he’s caught out. |
No. I unfortunately dealt with this in my 20's with one parent and have a parent in their mid 80's now. They have required very different types of help. One thing that I learned all those years ago was that I can not do this alone. When things get tough they get very, very tough and others can't always drop their lives to help out. I am so very lucky that my living parent decided to downsize and go into a retirement community where the residents have plenty of activities and help with cooking/cleaning/laundry/errands, etc. I can go on vacation without worry. I have no guilt because my parent told me a long time ago that this is what they would want. I am cognizant of the example that I am setting for my own kids. Only 30 years ago (just yesterday!), I was falling in love with their dad. In 30 more years I will be in my mid 80's, myself. Life flies. |
| I've realized recently that ultimately it comes down to the "lifting" (physical lifting). If the senior can't get out of a chair on their own and walk several steps and cannot dress themselves it is really not safe for one family member or one paid caregiver to care for the senior, i.e. the family member and/or paid caregiver are at risk of injuring themselves. |
It's so so so good for you that you learned that you can't do it alone and how lucky you are that your living parent chose well. And so mature of you to do the same. Now tell all these good people who parents are NOT making those decisions how to solve the hell that they are in. If you can't? Stop talking. |
We don’t know what is there or not. They still deserve the same respect and care that others are getting including activities. |
I don't have the answers. I can only say that you learn through doing. You learn what your own limits are and learn what you can and can not expect yourself to handle. |
I don't understand your question. Do you mean that you aren't sure what activities are offered by any given nursing home? Or you aren't sure if the activities would be something your parent could attend. Some of the people in the nursing home can fully engage in the activities, some can not. With a live performance, for instance, people with advanced dementia generally don't transition well. You can't easily take a group of them outside of the locked unit, into a meeting room and expect them to sit still and watch a live performance. They can't play bingo or do crafts, either. They are in a locked unit for a reason, and while it might comfort their families to think that they are going to activities, the reality is that probably isn't going to be the case. They are fed, kept clean and safe. |
The problem is that once the family caregiver reaches their limit, the elderly loved one and often the other relatives are accustomed to the status quo. It’s a much bigger shake up than than if the family caregiver had refused from the start. I admit that part of my resentment toward my sibling is that he never helped out, but a decade later, no one expects anything from him. In contrast, the expect me to figure out a way to make it work because I always have before. It will always be more than you though. More physically taxing. More emotionally draining. More financially devastating. Take what you thought it would be and imagine that doubling every 30 days. https://www.latimes.com/opinion/story/2020-02-16/doctor-patients-send-home-to-die |
| Why was that LA Times op ed a cartoon? Is that normal for op eds now? |
THIS!! I couldn't read the article-wouldn't let me in, but so this. No good deed goes unpunished. The more I did, the less appreciative everyone became and the more entitled they all became culminating in the drama when I stepped back. I was called selfish and guilt tripped and treated like a piece of trash. Everything I did was minimized. There was no understanding of how draining every second of help I gave was. I became the verbal punching bag. One sibling just wanted her dam inheritance without the hard labor. She would visit and not lift a finger and consider herself a saint. It was MY job to take on the dirty work for having the nerve to be in the area. It is absolutely wrong to think anyone should be aging in place when they start having falls. I blame some doctors for this foolishness too. I still have back issues from trying to lift a parent with Alzheimers and all I got from everyone is how cruel it would be to go with memory care. They didn't want to see the pile of gold dwindle even if it meant doing others in. YES to the sibling never doing any real work and nobody expects that person do do a dam thing, yet somehow you become the one expected to put you life on hold and you are the BAD guy if you don't. Boundaries are a beautiful thing even if it means people are angry. They are nasty when you don't have them and at least they allow you to breathe and not seethe. |