My post got eaten in the crash, but essentially it said that my own dc with sn was not able to handle the mornings on her own until recently at age 8. At 6, I was dressing her and doing teeth and hair. It wasn’t PDA , she has asd and some delays.
Some of our kids mature in some ways way later than nt kids. No amount of parenting changes that. I’d dial down the conflict OP and just do stuff for her as she is maturing. She can practice the routine on non school days. I’d talk to the doctor about the skin picking, might be anxiety. |
It sounds very hard and clearly she has some kind of emotional issue about following directions. I can tell that you are doing all you can. My advice would be to try some sort of medication that doesn’t affect appetite. You can get blood testing to find out which would be best. I’d also try to find a parent coach who can come to the house to help you with strategies, and/or a parenting group. I used to have students who had in-home therapy through social services, so I know they exist. I know it’s one more thing to add to your plate.
I also had a student who put his parents through craziness every morning, and when I found out about it, I offered a school incentive for each day that I got a note from home saying he had cooperated in the morning, and it seemed to help. He was also embarrassed that I knew about, I think. I’m sorry. Best of luck. |
This is our story as well. We pick ours up out of bed and move her to ours or the couch. She eats simple breakfast every morning like cereal. She is allowed to watch a favorite cartoon while eating. We set a timer in the bathroom and remind every few minutes to finish up. I dress her and then get her out the door. |
OP, I think you are a little defensive and rationalizing your current formula which isn't working for you. Two hours is really long in the morning, even for adults. It's fine to give her 10 minutes in the bathroom in the morning. Keep that but let's try a visual timer and constant verbal reminders. Also shrink breakfast time with smaller and faster to eat. What about oatmeal or waffles/pancakes with fruit. She will eat when she is hungry and will not starve herself to death. Pack lunches she will eat even if they are multiple smaller items or a repetitive menu. Also, you must physically dress her. She clearly cannot do it herself so stop setting her up to fail by allowing her to do it. Keep going through the tantrum and don't stop. Don't create urgency or a rewards/consequence scenario. Be matter of fact and stay on a timetable. 1 hour from wake-up to out the door. If you can't get anything to change or work, there may be another problem besides ADHD. |
I am the ADHD parent you are replying to and the bolded text nails it. I have a NT spouse and he handles morning routine or any event where we have to leave punctually so much different than I do and that helps me have a different perspective. NT people, especially those without an ADHD kid, might not realize that ADHD people can swing to two wildly different extremes in these situations. I have ADHD and I am never late to anything- ever. But it comes at a cost. I am fixated on being punctual and I go into “waiting mode” for important deadlines where I am scared to start something or do anything not related to the deadline lest I get distracted and miss it. I can also get anxious or short tempered if my plan is disrupted. Other people with ADHD have “time blindness” where they think they have more time than they do and get distracted or lose track of time. It would not surprise me if OP has a rigid plan and an inability to adjust the plan on the fly while the daughter tends towards time blindness and distractibility. |
This is such a helpful perspective. My 11 yo adhd child definitely seems to ping pong between these extremes, at times (hyper focus on timing and then freak out if any of us are a minute behind her), or totally lose track of time. |
OP - have you had your child screened for PANS/PANDAS? Our child was diagnosed as "autism-PDA", but much of that resolved after diagnosis and treatment for PANS/PANDAS. (I honestly think that for some kids, PDA is a missed PANS/PANDAS diagnosis - it'll be interesting to see whether they converge in the future.)
What makes me think this: - extremely difficult behavior, puts you at your wits' end - normal parenting strategies (incentives, consequences, rules) completely do not work [if it's PANS/PANDAS, you cannot discipline yourself out of a fundamentally medical issue (brain inflammation) driving the behavior] - super irritable, rage-y - frequent meltdowns/tantrums, including physical violence - food restrictions (ARFID-like limitations/"pickiness") - ADHD/adhd-like behavior - sleep difficulties Look out for whether there are any OCD-like behaviors (does not have to be classic OCD like repetitive handwashing), tics, repeated actions or words. In our kid's case, it was initially very subtle because they would fly into panic attacks / meltdowns over seemingly small triggers that were not readily apparent as OCD (but at root they were) because they did not want to give the "real" reason (e.g., that X was causing "contamination") - they knew it didn't make sense and were embarrassed about it. Also look out for dilated pupils (one of the indicators that our kid is in a flare). Our diagnosis was delayed because doctors expect there to be sudden onset of the OCD aspect - in our case, overall onset was (as far as we can tell) in the preschool years when kids are tantrumy anyway so the meltdowns and OCD behaviors initially blended in and then over time were attributed to general anxiety. In our case, mold seems to have been the underlying trigger. Resources: - https://kidshealth.org/en/parents/pandas.html - https://aspire.care/what-is-pans/definition/ - https://childmind.org/guide/parents-guide-to-pans-and-pandas/ - https://pandasnetwork.org/understanding-pandas/ Wishing you good luck - whatever the cause, your child sounds like a challenge and I've been there. Sympathies! |
When I first started the journey down the path of life with an ADHD kid I sat down with a therapist and we talked about what life would be like for my kid with ADHD, I was medication resistant because I too had ADHD and didn’t really even know it until my own therapist suggested I might be dealing with my own neuro issues. Turns out I have been all the flu mice but I was able to make and compensate because of a really high IQ. So I lost things and was late to most things but When you are brilliant you learn compensate. Flash forward ADHD kid who has a high average IQ, who is bright but brilliant and he struggles with so much. It was his therapist who suggested that unlike me he’d probably need to take medication because many things wouldn’t come naturally or easily to him and he struggle to figure basic things out even with help. Those early years I took care of morning routine, and many times I lost my cool bit reminded myself that I was partly to blame since I had a hard time with routines. I hired help, did PT and OT and got IEP to help my kid until he could better help himself. I also let some things go. I dressed him at 6. What’s the big deal? The first OT appt. I realized how far behind he was in basic fine motor skills no wonder he struggled to dress himself. I almost cried when he couldn’t balance on one leg in OT. Of course he struggled to put his pants on. Taking him to therapies helped me to see just what how hard things were for him. Much harder than they ever were for me. Compassion and learning to let things go. When he was older I put him on medication and he’s so much better able to cope now. Your kid is young so I get not medically treating the ADHD yelling at your kid isn’t going to fix anything, your kid is skin picking, something is clearly not working. My kid self harms like that and I’m at every specialist I can get into to figure out what I need to do to help them. You have a long road ahead of you. Good luck |
My 6 yr old is expected to do exactly 3 things in the morning:
1) Eat breakfast (fruit and cereal with milk, every morning) 2) Brush teeth 3) Put on the clothes we lay out for (school uniform do same every day) We brush her hair, make her lunch, pack her bag, put her coat on her, etc. She can do this routine in 20 minutes— 15 minutes to eat (she’s a very slow eater) and teeth and dressed in 5 if we walk her through that part. Ideally she sleeps until 7:45 and we leave the house at 8:05 or 8:10. If she gets up early, she gets to linger over breakfast longer which she enjoys. If she sleeps until 8, we have to stay on her to get through the routine so we can leave before 8:30, but that’s okay since we’ll have been up for an hour and be totally done getting ourselves ready so we can focus on her. |
OP, my childhood sounded similar to yours. I had inattentive ADHD with no help from my family. No doctors, no nothing. I was good a school but it was a struggle to get anything done. I had to stay up late to get anything done and still am like that today. My parents were like yours in that they believed in natural consequences. I had to get a taxi once because my parents refused to drive me in when I missed the bus in high school.
Fast forward to now and I have a 6 year old who may have ADHD (we are in the initial stages). She is difficult, like yours. My one saving grace is that she loves the bus and hates to miss it. I had to make many changes to our routine and only sometimes have to yell. My DD typically sleeps in her clothes, I won't talk to her (she loves to talk and will chatter endlessly if we let her) until she is sitting at the breakfast table. We give her pre made breakfast sandwiches or pre made pancakes, waffles, etc. I am making her lunch while she eats (heating up premade pasta portions, because she is also a picky eater and likes a hot lunch). TV is my DD's currency so if she is dressed and ready before the bus, she gets whatever time left for Prodigy, an online math game. I can do this because we have worked very hard at telling her that she needs to follow our directions about turning off screens or all of them will be taken away. If she doesn't comply with the morning routine she already knows that the TV is gone. She also gets an allowance just for getting dressed and out the door in the morning. She loves getting money! We have gotten to the point where we have added in hair brushing., which she will do herself (I used to do it if we had time). One day I will add in tooth brushing,
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My small daughter is on a non stimulant ADHD medication (Qelbree). We have had no issues with appetite depression. As for interactions, the doctor can determine what will work with the asthma medications. I think it’s time you rethink your opposition to medication, OP. |
Has she had a full neuropsych screening to make sure you aren’t dealing with more than just ADHD? |
OP: I have a9 yr old who got so many tardy slips, the principal called. So here's what I did;
1. Sat down with ADHD spouse and had the talk with them about how important this was and they couldn't undermine the getting to school on time thing. 2. We all wake up 15 minutes earlier (and spouse 30 min earlier). 3. Made a schedule. Spouse is supposed to make breakfast but doesn't half the time so I do it all in the am. 4. I ensure they are both out the door on time before waking and dealing with second ADHD kid. 5. I get dressed/ready while #2 is getting ready. Yes, I can do it in 30 min so by the time I need to force him out the door, I'm ready to go. 6. I arrive at work at 9:30. If I had to be there for 9, I am not sure what I'd do. I guess I'd wake up earlier, get ready earlier and leave ADHD spouse and child to get to second school on time which they wouldn't and it would all fall apart. Good luck. You've just got to try stuff and unfortunatly, you might have to do more and sleep less. |
^^ It's been a month and no tardy's and fewer melt downs. |
tardies... |