Moms Who Won't Get Their Kids Dx, Won't Get Therapy

[Anonymous]

[quote=AnonymousBut I said I didn't believe that was the case because I've seen a steady deterioration in these children over the years. Plus some of the mothers have stated to me they will not get therapy.




Hey OP, want some insight into an ugly truth? Sometimes, autistic kids just steadily deteriorate. Maybe your friends aren't talking to you about it because they dont' want to get into it with you.

[Anonymous]

Anonymous wrote:

Spelling errors are irrelevant. They do not negate or even minimize the point each poster is making. How about we look past spelling errors to focus on the point each poster is trying to make.

Typos are irrelevant. However, the PP who doesn't know the proper spelling of Asperger's Syndrome is therefore unlikely to know enough to diagnose it in her child's classmate.

And I fully agree with the utility of consulting specialists to determine if there is a specific problem that a general pediatrician may have missed. But the OP is not a specialist, nor are the other DCUMs who are complaining about the many undiagnosed children they encounter. You all are practicing medicine by Google, and presuming you know more about children you encounter than anyone else. That is simply arrogant and ridiculous.

Can you give me a legal definition of 'practicing medicine' by Google or without a medical degree? We are not treating these kids, we are not diagnosing these kids. If we can get the real definition of what it means to diagnose we can all get off this hijacked train ride on how wrong it is for DCUM'ers to diagnose kids. Diagnosing a child means we are assigning a label to a child's medical condition and a recommending a course of treatment based on it. It is permitted by only those professionals such as doctors, osteopathic or medical, nurses, psychologists, dev pedo's, and psychiatirsts. We did not assign a label to any child in particular, and even if we did, nobody has recommended a course of treatment based on our label. We are merely speculating about what it might be with our admittedly untrained eye. AT minimum we THINK it MIGHT BE SOMETHING for a parent to want to look into. I emphasize, MIGHT. It's not only legal, it's ethical and moral because we are obviously concerned about kids who are falling through the cracks. So please everyone get off the how wrong it is to diagnose these children track. It's a legal term I'm sure and we're using it, not only loosely, but improperly. And I disagree that just because the poster spelled Aspergers Asburgers she didn't know enough to talk about it. I doubt she actually DIAGNOSED it. More likely, she was guessing it. Not the same as a diagnosis. I have actually heard an adult woman, educated, with Aspergers refer to her own disorder as Asburgers.

[Anonymous]

Anonymous wrote:[quote=AnonymousBut I said I didn't believe that was the case because I've seen a steady deterioration in these children over the years. Plus some of the mothers have stated to me they will not get therapy.

Hey OP, want some insight into an ugly truth? Sometimes, autistic kids just steadily deteriorate. Maybe your friends aren't talking to you about it because they dont' want to get into it with you.

Yes I know that. These are not the majority of Autistic kids, only a small small minority who deteriorate despite good therapy.

[Anonymous]

I am wondering what are parents who have kids that do unsually quirky things afraid of in seeking an evaluation? If it's nothing you lose out on little. Insurance would cover most people for an eval. If you get a dx, you can get coverage for therapy (for most). So why fight it? It makes me wonder if the reason is more deep than we are seeing in these posts...Are these parents afraid of knowing their child might not be 'normal'?

Lining up toys or doing anything occasionally or rarely wouldn't signal alarm to me. But if my child lined up toys so excessively and was prone to meltdowns regularly over small things I'd have him checked out. If my child was regularly licking unusal things, I'd get that checked out too. If my child was hitting another child for no reason at all on any kind of a regular basis, he'd be taken to a psychiatrist. I'd take money out of our vacation fund to get him evaluated. I'd take money out of my night out fund to get him checked out.

[Anonymous]

Anonymous wrote:I am wondering what are parents who have kids that do unsually quirky things afraid of in seeking an evaluation? If it's nothing you lose out on little. Insurance would cover most people for an eval. If you get a dx, you can get coverage for therapy (for most). So why fight it? It makes me wonder if the reason is more deep than we are seeing in these posts...Are these parents afraid of knowing their child might not be 'normal'?

Lining up toys or doing anything occasionally or rarely wouldn't signal alarm to me. But if my child lined up toys so excessively and was prone to meltdowns regularly over small things I'd have him checked out. If my child was regularly licking unusal things, I'd get that checked out too. If my child was hitting another child for no reason at all on any kind of a regular basis, he'd be taken to a psychiatrist. I'd take money out of our vacation fund to get him evaluated. I'd take money out of my night out fund to get him checked out.

Do you have children?

[Anonymous]

OP,
I really wouldnt lose too much sleep over why your friends (and strangers) children are not getting the evaluations and treatments you feel they require. Most children with significant developmental disorders will get referred to treatment by a teacher or MD by at least age 4-5. Agreed the earlier a child gets treatment, the better, but if they enter a tad later it's not the end of the world.

Toddler boys are incredibly quirky and their range of normal behaviors is simply unbelievable. Without a lens into their home, school, and family life, you are only seeing a very small portion of their behavior and likely not enough to accurately diagnose them.

Honestly, there are far more important things to worry about than other's undiagnosed children. I find it's always a losing battle (and friendship strain) to offer close friends your unsolicited advice on their kids.

Kids, marriages, religion-sacred ground. Keep your opinions to yourself and focus your worry and energy on kids in acute crisis with life or death needs, like those in Darfur, Gaza, SE DC...they need your attention more than the child lining up his toy cars at playdates.

[Anonymous]

Anonymous wrote:

Hey OP, want some insight into an ugly truth? Sometimes, autistic kids just steadily deteriorate. Maybe your friends aren't talking to you about it because they dont' want to get into it with you.

Yes I know that. These are not the majority of Autistic kids, only a small small minority who deteriorate despite good therapy.

Sometimes autistic kids get older, and get different. Older sometimes looks like improvement. How do you know so much about autism? Got any autistic kids? Just curious.

[Anonymous]

Or do you, um, just kind of have it out for boys?

[Anonymous]

Anonymous wrote:

Anonymous wrote:I am wondering what are parents who have kids that do unsually quirky things afraid of in seeking an evaluation? If it's nothing you lose out on little. Insurance would cover most people for an eval. If you get a dx, you can get coverage for therapy (for most). So why fight it? It makes me wonder if the reason is more deep than we are seeing in these posts...Are these parents afraid of knowing their child might not be 'normal'?

Lining up toys or doing anything occasionally or rarely wouldn't signal alarm to me. But if my child lined up toys so excessively and was prone to meltdowns regularly over small things I'd have him checked out. If my child was regularly licking unusal things, I'd get that checked out too. If my child was hitting another child for no reason at all on any kind of a regular basis, he'd be taken to a psychiatrist. I'd take money out of our vacation fund to get him evaluated. I'd take money out of my night out fund to get him checked out.

Do you have children?

I SURE DO!

[Anonymous]

Anonymous wrote:OP,
I really wouldnt lose too much sleep over why your friends (and strangers) children are not getting the evaluations and treatments you feel they require. Most children with significant developmental disorders will get referred to treatment by a teacher or MD by at least age 4-5. Agreed the earlier a child gets treatment, the better, but if they enter a tad later it's not the end of the world.

The human brain is very moldable, flexible before the age of 5. This is according to the child psychiatrist and neurologist my son has seen. So yes, it is not only better kids get therapy before the age of 5, it's extremely important if a parent wants their child to have the maximum benefit.

Toddler boys are incredibly quirky and their range of normal behaviors is simply unbelievable. Without a lens into their home, school, and family life, you are only seeing a very small portion of their behavior and likely not enough to accurately diagnose them.

ARRRRRGGGH!!!!! Nobody is diagnosing anybody!!!!! I am saying their behaviors look like they need further examining and not ignoring!

Honestly, there are far more important things to worry about than other's undiagnosed children. I find it's always a losing battle (and friendship strain) to offer close friends your unsolicited advice on their kids.

Again...ARRRRRGGGH, I never offered my friends or even acquaintances unsolicited advice on their kids. My goodness, does nobody read these posts after they are one page long?

Kids, marriages, religion-sacred ground. Keep your opinions to yourself and focus your worry and energy on kids in acute crisis with life or death needs, like those in Darfur, Gaza, SE DC...they need your attention more than the child lining up his toy cars at playdates.

As a mother one needs to be able to multitask. Think and read up about how she can help Darfur and Gaza and SE DC as well as be a good mother to her own kids. If her child is showing behavioral abnormalities on any kind of a regular basis, it's best to have it looked at. Otherwise we get alot of unwanted aggressive behavior at preschools, neighborhoods, playdates. We get antisocial children. LEft untreated, these affect a child's self esteem. A lower self esteem can lead to all kinds of problems later in life...