PP, check out this site they are really awesome. http://www.aroundthedinnertable.org/?forum=136439#gsc.tab=0 |
My oppositional 18 year old DD probably uses weed daily. Just tired of fighting it. |
Happened to mine, wish I had been proactive and had DD talk to therapist. |
I have that too. |
thanks. Honestly, though, reading there just freaks me out even more. Especially because he is 18--we can't make him comply with treatment. I think we've caught it early, but it takes so long to find appropriate practitioners and who knows what will happen and how this will go. I'm wondering if he'll be able to go to college; we can't send him away if this isn't under control, and there is so little time left. I am terrified, and despairing, and completely bewildered. How has this happened? I can't sleep, I can't eat. His eating disorder is giving me one. |
Np, and don't have teens, but this just scares me. You did most everything right. We have no control
|
There are a lot of people on that site who have gotten young adult children to comply with treatment. Even though he's 18, you probably still have leverage with him (paying for college, using your cars, etc.). |
To PP with DS with eating disorder. If this developed suddenly, there is a chance this is PANDAS. Did he have strep or something akin prior to this beginning? It may be an outside chance, but this would be much more amenable to medication and so it is worth exploring. |
No, but the onset of his generalized anxiety/OCD was sudden and within 2 weeks of a strep infection, when he was 9. Unfortunately, it has never entirely gone away. So far, he's managed without medication, but I think he needs to try the meds now. I am hopeful that this is more about OCD than it is about an entrenched ED, since he was the one who alerted us to the problem (told us that he had become obsessed with counting calories and avoiding highly caloric foods, that it was making him crazy and starting to get out of control and that he thought he had lost too much weight). Hopeful, because I think perhaps OCD might be easier to treat than an ED, but maybe I am fooling myself.
|
|
PP if your DS came down with OCD after strep when he was 9, there is even greater chance to suppose the ED is OCD driven and strep may be the culprit. An OCD like ED is frequently associated with PANDAS, often in the form of of an aversion to, say, certain textures of food. There is some evidence that PANDAS outbreaks in teenagers more often take the form of an ED like disorder.
This is what I would do: Get a strep culture for your DS and also have the ASO and anti-DNASE B titers done. If one of these is positive, see if you can get antibiotics prescribed for your DS to see if that helps. Steroid sometimes help as well. Call someone like Charles Mansueto at the Behavior Therapy Center and explain the situation to him and see if they can help with CBT. Make an appointment now with Dr. Beth Latimer in Georgetown. She is the go to PANDAS person in this area. There is a long waiting list but many come from out of town to see her, so frequently there are cancellations. Ask to be put on the cancellation list, but don't rely on that. Call up every week to see if there are cancellations. If this is PANDAS OCD behavior, it often can be more treatable than a pure ED. Further, the usual ED treatments often aren't that effective if it is actually PANDAS. I would also suggest that you go to Latitudes.org and register on the PANDAS forum. There are some very knowledgeable people on there, many in this area, who could give you some good advice on how to get treatment. As for the OCD never entirely going away after your DS was 9. I had a DS in this position. He was treated very late for PANDAS as not much was available at the time. He did get SSRIs for OCD, but they did not help and for him caused side effects we could not live with. He was diagnosed at the NIH but not accepted into their trial because he was deemed too chronic, which was definitely the case. CBT at BTC (a year and a half!--ugh) basically took care of it until he got strep again as a college freshman. The manifestations that time were quite different from what they were when he was a child. It took a long course of antibiotics to bring the OCD to acceptable levels. |
Thank you so much. I will definitely look into this. |
|
|
| I want to add my thanks to you all for sharing your stories. Best of luck to us all. |
Anonymous
How is this a helpful addition to the thread, PP? Go MYOB. |