Just keep your kid in a bubble. Why do you blame other people when you haven't explained her problem? I bet play dates are never repeated. |
If that’s the case this should be in special needs.. prader willi is a lifelong genetic condition |
Where does she say she hasn't explained the problem? She's literally here asking for another way to explain the problem. |
People with disabilities are part of society. The special needs board is one place that they should be able to post, but the rest of the board, and the rest of the world is for them too! |
I meant that it’s confusing to a four year old. I am going to guess that the times OP is standing right there to ask, this isn’t an issue. It’s the other times. Drop off parties, staying with grandma, play dates, etc. |
Gosh, my child DOESN'T have a disorder and I get annoyed when my mom gives my kids donuts/cakes/candies.
I'm sorry, OP. Just say STOP. |
It sounds like OP has waffled, tried to keep the diagnosis private and is running into issues with that approach. Some disorders cannot be kept private. Diabetes is one. This may be another. |
Totally. I would abide by it but I would think OP is a typical white mom who is obsessed with being skinny and fearful that her daughter is chubby and feel bad for the kid bc she's headed for an eating disorder. I hear stuff like this all the time and I know all these kids don't have genetic disorders. And if they do, there is something in the water in Chevy Chase! |
I don't think so. OP's kid is not going to exhibit the symptoms of hypoglycemia and those would be the symptoms calling for immediate access to food. So no one will be in a situation in which they are inadvertently learning the wrong response to a life-threatening situation for a kid who is actually diabetic. If OP were able to say briefly what the diagnosis actually is and educate people a bit, that would be great, but she does not seem to want to do that here and so she probably doesn't want to do it IRL either. And TBH, it's not her job to do this; people shouldn't be jackasses as often as they are. Still, the odds that people without metabolic problems are going to follow rules this strict without some additional help are pretty low. Food is currency in this society. I wish it weren't, but it is. Her options for saying "it could really hurt my child if you feed her" are pretty limited. |
No, they are Amish. |
Ok just say she has X disorder, and people need to check with you before giving her anything.
Be direct. |
OP, I’m going to disagree with the people on this thread who think you owe anyone in this world your family’s private medical information. You saying it’s serious should be enough to convey its seriousness. I also believe you about the prevalence of treats; I’ve worked in schools and food rewards are everywhere even as we talk about the need to reduce them.
I think the explanation you gave on this thread was excellent. If read aloud it would take relatively little time to deliver the message. Your real issue is what happens when people don’t respect this very important boundary. This is a health and safety issue. If it’s a school event, you should probably be there. Swoop in and say, “No thanks, Larla. It’s doctor’s orders.” Hand the plate back to Larla or lead your child away from the table. Later, when the kids are playing a game or cleanup is happening, you can give a longer explanation if you’d like: “Sorry to be brusque. It’s upsetting to my daughter that she can’t have seconds like the other children. Unfortunately, she has a very serious medical condition that requires us to carefully monitor her diet, and it’s already been difficult to budget for the sweets she’s had so far today.” When it’s family who may have your child without you present or who violate your rules despite knowing the reasons for them, that’s more serious. Tell them that this is a health and safety issue. You know it’s sad because food is so enjoyable and part of socializing, so you’ve worked with a dietician to balance social-emotional well-being and long-term health. Explain that breaking your rules means no unsupervised visitation with your daughter, no exceptions. Give them ideas for other ways to show love and give special non-food treats. Help them with coping mechanisms if your daughter insists she’s hungry. But hold firm on your rules. |
Wowza! That is a very challenging combination. Stay the course! It's awesome that you're beyond caring what people think of you. Keeping your child safe is always Priority Number One. |
Prader-Willi? |
Same here. |