She hasn't refused school yet, but I'm really afraid that might be next. It's the first time she's refused to talk to us for days. She used to love the outside, so that is new too. I feel like we are at the very beginning cusp of refusing to eat and sleep, but she's always denied these are actual needs in her. |
re: eating and sleeping - it's always been a struggle. but in the end, we've always been able to essentially make her eat and sleep even though she didn't want to. Now we are starting to see the very beginning of her using that as something she can control and we can do nothing about. |
| OP, please cross-post to the special needs board--I think you will get better suggestions there. |
PP you replied to. I'm very relieved to hear your child will be evaluated! That's the first step in the process. I hope it's a full neuropsych? With complex cases such as these, a shorter eval (some providers offer just a few hours worth of tests to diagnose ADHD, for example, or conduct testing for private school entrance requirements) won't cut it, and you're basically wasting your money. |
She has a terrible social life and she is lashing out at you because she can't be herself in public. She feels she has no control over life, and fears for her future, and she doesn't feel safe to tell anyone about it. She is treating herself even worse than she is treating you. |
We're starting with an evaluation through the school. First, we'll see if that is sufficient to work with - if not, we also have a private eval that is more comprehensive scheduled as well. |
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OP, I am very sorry for your family. It must be hell for her siblings.
This is not her "personality." She has something wrong in her brain. This is not typical or just a personality flaw. |
| I would encourage you to search PDA on the special needs board. There are some parent there that have recommended books related to how to best parent I those situation. That might give you at least a bit of a toolkit to get started. |
That's what worries me the most. That saying those types of things to us must also make her feel like a terrible person - and she actually does say things like "I know I'm messed up. I hate everyone and wouldn't care if everyone died". The truth is, she'd care a lot. She's just so disconnected from her feelings. I also noticed she has been voicing worries about her future as well. And keeps talking about wanting to go back to being 8, when everything was shut down during the pandemic. |
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OP, my kids are past this age, but whenever they were like those, they were terribly unhappy.
It sounds like your daughter is very, very unhappy. Which means this isn’t a discipline thing — or at least not exclusively that. It’s also very much a relationship thing — because she needs someone who can work through this moment with her…and you’re it. |
I suspect this also. And I'd much rather her be outwardly angry at us than to turn that in toward herself. I feel like that might be inevitable unless we address it. |
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I opened this thread and at first thought I was going to be able to commiserate. I have one kid who can be very tricky and spirals if given negative consequences. It makes her double, triple down. However she is very successful socially etc. And can be reasonable.
With her this whole authoritarian approach many on this site recommend just really does not work. She has to feel connected to us in order to de-escalate. My best approach is to walk away and then re-engage in a concerned way. What is going on. Why are you talking to us like this. Etc. People on DCUM would mock this approach and also what many suggest doesn’t work with some kids. I have another kid who responds very standard. Give the consequence, he stops. The end. Point is trust your own instincts and don’t let yourself be judged. What you are describing seems way beyond this but I do want to strongly offer that I think a kid like this needs help not punishment. Good luck OP. |
As I read your posts, I agree that you should be worried that she will never be able to be on her own. Thriving sounds like an extremely lofty goal. Like a PP, I initially thought PDA (didn't jump to autism). But I also think that she is on the road to a personality disorder. I would definitely seek an evaluation. I would consider parent training. And, I think you need to hang on to your hat. This could get so much worse given how young she is to be engaging in this level of behavior. We went through some very serious mental health challenges with my middle child, who also didn't respond to consequences and, even more scary, didn't care if he lived or died or whether people physically hurt him. We were able to get through this and my son is independent now but it was neither easy nor inexpensive in both time and money. And, he's almost thriving with the potential to thrive. But, my goal was to get through it and get him independent. Thriving dropped off my list. One last thing. We were told when my son was a couple of years older than your daughter that if we didn't intervene and really get things turned around, our son would be diagnosed with a personality disorder which is a permanent condition. I wasn't sure it was even possible to turn it around, but we followed the recommendations of the professionals (which often were tough love and that's really hard) and were able to turn it around. And, I know it sounds like we the parents put in the effort as opposed to our son. But in reality that is what happened because my son didn't care. |
I am the PP who mentioned personality disorder and shared a bit about my son. I have to say that the neuropsych was totally worthless from a mental health point of view. They wouldn't consider most diagnoses because of my son's age - he was 17 at the time of the last one. When I shared that after a recent inpatient hospitalization that the working diagnosis was bipolar, the evaluator admitted that they thought so but wouldn't have even mentioned it had the hospital psychiatrists (there was more than one hospitalization) had pretty much settled on the diagnosis. So, I got a sort of confirmation that the neuropsych was thinking bipolar as well. My son has other disabilities so the eval was useful for other reasons. But it shed absolutely no light on the mental health aspect of his condition. His psychiatrist recommended it only because he felt that we needed an IEP related to disabilities and given all of the mental health issues, the neuropsych would provide the best information and recommendations for the least cost. |
PP you replied to. It's free, but it will not even begin to scratch the surface, OP. School psychologists are not PhDs, they are not trained in the same way as private practice psychologists, they have access to the same (very expensive) diagnostic manuals, and on top of all that, they simply do not have the time to work with a student - and take them out of class for the equivalent of 8 hours of testing! School evaluations are made to quickly check if a child has a severe learning disability, developmental issue or severe attention deficit such that they would need accommodations in school. They absolutely cannot diagnose complex psychological issues such as your child seems to have. If you understand this, then at least you won't be led down the garden path if the school eval comes back with a label of "attention issues" or "red flag for autism - please explore further" or whatever else - they might be true, but they will not give you the full picture. You will need to do a full neuropsych in the future. In case your child rations her goodwill, please be mindful not to waste it on efforts that will not lead to thorough examination. |