Dr. Laura has spoken about this at great length. If it's a lifetime sentence, she highly advocates hiring in help. And for Alzheimers issues, she feels it's MORE dangerous to have that person at home with you. I don't have a long-term situation but I am always caretaking something ALL THE TIME and feel my family uses me to make their lives easier - and I've let myself be used. 20 years later, I am so burned out from it that I'm getting depressed, angry and anxious. It's just not healthy to allow yourself to be used. |
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I'm the one with advanced multiple sclerosis and I have kept it all together for my DC. It doesn't "do something to your personality" that is toxic - whoever wrote that and suggesting that is common is advancing stigma. Shame on you.
It is difficult to be exhausted and in severe pain every hour of the day. But having family who count on you gives you a reason to keep going. I divorced my ex because he was lazy, selfish, and added huge burdens to my life. It is hard knowing that I have no backup, but I have created a non-family village of backup that have provided us with more support than he ever did. There is no excuse for selfish and lazy behavior, but it is extremely toxi to perpetuate a false stereotype that it is the "ill spouse" who created more problems. There is no pattern. (Other than men are statistically more likely to dump an ill spouse, according to several international studies.) |
I support this. |
Citation: The 21% of men who leave their cancer-ridden wives (vs. 3% of women who leave their husbands) https://well.blogs.nytimes.com/2009/11/12/men-more-likely-to-leave-spouse-with-cancer/ |
Yep. Don't marry. Don't get sick. |
It's true. The stress is unreal! |
Apparently 21% of men DO abandon their spouses. |
They are in high school - the older one is graduating next year, the younger is a junior. Hang in there! I hope you have good friends and family to support you. |
Sadly the stress of taking care of family, shouldering normal life and the additional worries that caregiving brings cannot be outsourced to hired help. |
How convenient. That's her recommendation, huh? Wow, that's helpful. Does she recommend I hire someone to mow the lawn and take care of everything else too? Not everyone can hire that kind of help. I did hire in-home nursing but they will only do so much and it's not cheap. |
How do you support your ill spouse while you feel you are drowning yourself under the stress of caring for the kids, yourself, holding a job, managing your household, all without support from your family? |
You do your best and live a life of quiet desperation. That's what I do, anyway. |
Thanks. Some days I accept that this limbo is my life forever. Other days I am crushed by the weight of it all. |
I completely understand. It sucks. |
+1. Except on top of caring for the kids, holding a job, and managing my household without support from family, I am also fighting a severe, disabling chronic disease. I am regularly in so much pain that I pray to die, at the same time that I pray to live because who will care for my kids if I die. |