You love your parent but are you upset they are still alive?

Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I hope your kids don’t talk about you like many of you are talking about your parents here. Jesus you’re callous and lacking compassion. Just remember, this will be you someday.


I have told my kids repeatedly. Absolutely do not sacrifice yourselves for me. I would never want a loved one to undergo the stress I have gone through dealing with a parent with dementia for over 8 years with no end in sight.

I intend to end my life if I have dementia. If somehow I don’t do it in time the only thing I care about is not causing my kids to suffer. I also do not want to burn through all my assets instead of leaving them money.

I really hope within 20 years people have more options to chose to die on their own terms.


Giving the declining birth rates, the increasing numbers of people living with Alzheimer's and related dementias and the policy choices being made by the government which are stripping affordable options from people in old age and seriously declining health, the ONLY humane option at this point is for USA to pass federal Medical Aid In Dying (MAID) legislation that allows people to check out of life on their own terms, on their own timetable, in ways that are painless and as minimally traumatic for family as possible.

That MAID legislation should allow people to make choices about end of life while they are still of sound mind/body, and to allow medical professionals to provide the cocktail of exit drugs even when the person's mind has become unsound.

What say you, DCUM?
.

Agree.

We could build a structure around this to limit the abuse of the system and ensure dignity of the patient. I'd be all for it. If my mind is gone, so am I.
Anonymous
Anonymous wrote:When people had kids much younger than they do now, that created more generational layers to provide support. If you were a great-grandparent by age 75 or 80, you might rely on your kids or your grandkids for help. Now, people aren't even becoming grandparents until they're in their 70s, leaving the burden to fall on kids in their 40s who are still raising young kids. And since many older folks aren't dying until their 90s, there's no inheritance until their kids are in their 70s.


+1
And the caregivers are disproportionately women.
Anonymous
Anonymous wrote:
Anonymous wrote:I hope my mom passes soon. She has dementia, is incontinent, has significant mobility issues, makes no sense most of the time, and no longer enjoys going out, or even when I come by (multiple times a week), she barely can interact in a meaningful way so I basically come for 15 minutes, bright my daughter yesterday and my mom barely registers her. she can’t read, follow tv, use a phone, enjoy music, or wipe her own butt. She is a prisoner in her own mind. She never ever wanted this. The next stages are no language, no recognition of me (she recognized me but can’t always say that I’m her daughter just knows my name), essentially wheelchair/ bed bound and feeding by ensure.


Im in the same boat but after 8 1/2 years of being the only sibling nearby while one sibling comes once a year for a day and the other sibling never visits I have given up.

My mother is in the same condition and I now visit every other month. My kids are in high school and I just came to a pony I didn’t want to lose more time with them.

My kids, husband, and I have spent countless hours looking for things she has hidden or can’t find such as her phon, keys, remote control, wallet etc. she is in an assisted living place and they being her meals to her apartment and check on her 2-3 times a day. It takes a 1-2 hours for her to get ready so even stoping by saying let’s go to do an errand or to a medial appt takes so much time.

And she has always had an edge and been critical. I rarely make my kids go over theye because she always mentions how one has gained weight and has other snide comments for the other one as well as myself.

She never took care of her parents or grandparents but was quick to critique my aunt who did take care of my grandmother for the last 10 years of her life.

The best thing I did was at the start jf the school year I prioritized myself, husband and kids and stopped visiting. I was so burned out stopping by after working full time. Because in the end I realized it didn’t matter. She doesn’t remember if I go over there or not. Essentially she had already died and she is just a shell of herself. It’s just so cruel how people are forced to live with ending stages of dementia.


I could have written most of the two posts above.

My remaining parent speaks nonsense, can't wipe their own butt, needs help to shower, and recently ended up in a wheelchair. We can't go out because they are incontinent and you never know when something messy will happen.

I estimate they are around stage five or six (out of seven) on the dementia scale.

They really went steeply downhill after an infection.
Anonymous
Anonymous wrote:With my mother’s dementia, the tough thing is that the good memories I have of her growing up always will be tempered by her lashing out with extreme verbal abuse, saying the most cruel things, name calling —uglyface, loser, things she would have been horrified about saying if she was in her right mind. When you’re already exhausted, it just kicks you down further.

I know it’s not really her, but the advice to just let it roll off your shoulders only goes so far. It cuts, deeply.


I hope they find some medicine to help her stop doing that. Mine can do the same and the medicine prevents it.
Anonymous
Anonymous wrote:When people had kids much younger than they do now, that created more generational layers to provide support. If you were a great-grandparent by age 75 or 80, you might rely on your kids or your grandkids for help. Now, people aren't even becoming grandparents until they're in their 70s, leaving the burden to fall on kids in their 40s who are still raising young kids. And since many older folks aren't dying until their 90s, there's no inheritance until their kids are in their 70s.


And that's assuming there is 1- any money left for an inheritance and 2- if there happens to be an inheritance that you will get anything. I knew a woman, former co-worker in her 40's unmarried/ no children, who was a caretaker to her mother for a decade. Did everything. The father died when she was in her 20's. Her 2 siblings were no help. One lived halfway across the country and had their own life. Another was a jobless mooch who lived wherever there was a couch that would accommodate him and only popped in when he wanted money.
When her mom died she left the family home and all the contents and what was left in the bank to the son because she figured he needed it the most since the lived far away sibling was married and her caretaker daughter had a steady job and her own place to live. Never understimate the twisted rationale of a parent.
Anonymous
Anonymous wrote:
Anonymous wrote:I hope your kids don’t talk about you like many of you are talking about your parents here. Jesus you’re callous and lacking compassion. Just remember, this will be you someday.


You're wrong. People are callous because we are extending life way beyond what is natural and what God intended. Many times out of fear of liability from the doctor. It's ok to let people die naturally. We don't have to keep a sack of flesh alive when the person that was inside is already gone. And it's perfectly appropriate to recognize this fact. Who knows - in the afterlife these life extending measure might be considered torture or inhumane.


I think about this topic. To keep choosing life extending procedures with other medical issues abounding and increasing the chance the body could outlast the mind. I’m not sure this is how it is supposed to be. Why are doctors and insurance proceeding forward in very late ages? Are they profiting off our seniors or unwilling to address the societal issue here? Does respecting life mean invention of dying whenever possible? Are we also going to grasp at life when death is facing us even though we think now we won’t? Will we also not consider the caregiver and taxpayer burdens as a result? Such heavy and ethical issues among the medical advancements.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I hope my mom passes soon. She has dementia, is incontinent, has significant mobility issues, makes no sense most of the time, and no longer enjoys going out, or even when I come by (multiple times a week), she barely can interact in a meaningful way so I basically come for 15 minutes, bright my daughter yesterday and my mom barely registers her. she can’t read, follow tv, use a phone, enjoy music, or wipe her own butt. She is a prisoner in her own mind. She never ever wanted this. The next stages are no language, no recognition of me (she recognized me but can’t always say that I’m her daughter just knows my name), essentially wheelchair/ bed bound and feeding by ensure.


Im in the same boat but after 8 1/2 years of being the only sibling nearby while one sibling comes once a year for a day and the other sibling never visits I have given up.

My mother is in the same condition and I now visit every other month. My kids are in high school and I just came to a pony I didn’t want to lose more time with them.

My kids, husband, and I have spent countless hours looking for things she has hidden or can’t find such as her phon, keys, remote control, wallet etc. she is in an assisted living place and they being her meals to her apartment and check on her 2-3 times a day. It takes a 1-2 hours for her to get ready so even stoping by saying let’s go to do an errand or to a medial appt takes so much time.

And she has always had an edge and been critical. I rarely make my kids go over theye because she always mentions how one has gained weight and has other snide comments for the other one as well as myself.

She never took care of her parents or grandparents but was quick to critique my aunt who did take care of my grandmother for the last 10 years of her life.

The best thing I did was at the start jf the school year I prioritized myself, husband and kids and stopped visiting. I was so burned out stopping by after working full time. Because in the end I realized it didn’t matter. She doesn’t remember if I go over there or not. Essentially she had already died and she is just a shell of herself. It’s just so cruel how people are forced to live with ending stages of dementia.


I could have written most of the two posts above.

My remaining parent speaks nonsense, can't wipe their own butt, needs help to shower, and recently ended up in a wheelchair. We can't go out because they are incontinent and you never know when something messy will happen.

I estimate they are around stage five or six (out of seven) on the dementia scale.

They really went steeply downhill after an infection.


That’s very sad. We grieve the decline and end in many stages.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I hope your kids don’t talk about you like many of you are talking about your parents here. Jesus you’re callous and lacking compassion. Just remember, this will be you someday.


I have told my kids repeatedly. Absolutely do not sacrifice yourselves for me. I would never want a loved one to undergo the stress I have gone through dealing with a parent with dementia for over 8 years with no end in sight.

I intend to end my life if I have dementia. If somehow I don’t do it in time the only thing I care about is not causing my kids to suffer. I also do not want to burn through all my assets instead of leaving them money.

I really hope within 20 years people have more options to chose to die on their own terms.


Giving the declining birth rates, the increasing numbers of people living with Alzheimer's and related dementias and the policy choices being made by the government which are stripping affordable options from people in old age and seriously declining health, the ONLY humane option at this point is for USA to pass federal Medical Aid In Dying (MAID) legislation that allows people to check out of life on their own terms, on their own timetable, in ways that are painless and as minimally traumatic for family as possible.

x1000

That MAID legislation should allow people to make choices about end of life while they are still of sound mind/body, and to allow medical professionals to provide the cocktail of exit drugs even when the person's mind has become unsound.

What say you, DCUM?
.

Agree.

We could build a structure around this to limit the abuse of the system and ensure dignity of the patient. I'd be all for it. If my mind is gone, so am I.
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