Ovarian cancer? Bloating, nausea, abdominal pain, fatigue.

Anonymous
Anonymous wrote:OP here.

Still in pain. Finally went to the ER and got a CT scan.

Bilirubin was high but they said it's because I'm not eating and I'm not eating because I feel extremely bloated and uncomfortable but there is nothing in my bowel.

TT

SScan
EEEliminated

Appendix issues
Gallbladder issues
Ovarian issues
Pancreas Issues
Kidney issues
Liver issues

They want me to go to a GI as soon as possible. The soonest that they could squeeze me in is in 2 weeks.

I still have extreme bloating and increasingly worse abdominal pain on only the right side all day and night with some pain spreading to my back.

Please tell me what to ask GI. I assume that they'll give me a colonoscopy but what else do I request. Due to my gene difference, I am at high risk for ovarian and colon cancers. I feel helpless from now until then. Nothing helps with the pain.


You could have ruptured a cyst on your ovary. Takes time to absorb the toxins.
Anonymous
Has stomach cancer been ruled out? Sorry to suggest it, but my mom had it. She was feeling full too and also vomited and burped often. It came on quite suddenly though bloating had been an issue for a long time.
Anonymous
For pain - sip hot water. For right side could be fat deposits or gall stones that don’t show- take psyllium husk (pure form of Metamucil) in large glass of water in the evening or late in the day- exercise as in walking etc.

Had same symptoms after second child was born - a few days of serious fiber mixed with water and movement - months of horror moved out.
Anonymous
Anonymous wrote:Endometriosis. I had what you described and it ended up causing an obstruction of my small intestine. Fun stuff. It is also autoimmune in nature and you can have flares of symptoms.


Np here. How did you get the endometriosis diagnosed? An ultrasound?
Anonymous
Two months later and I'm still in pain.

Finally got a visit with the GI.

I got a fecal tests and yet more blood tests (because bilirubin is high) as a precaution but GI said that with a clear CT scan, it's not likely to be anything and doesn't want to do a colonoscopy.

Gi put me on 1800mg of Advil per day meanwhile to deal with the pain at least. I'm grateful for that -- I haven't been sleeping in months but didn't want to take anything before talking to the GI.

Gi thinks it's just an inflammation because CT scan was clear and Advil will resolve it if it is that simple so after 2 months of pain, bloating, nausea, constipation, diarrhea, and worrying, I should have just taken Advil. That's a lesson.

If Advil doesn't resolve it, GI is going to do a follow-up visit but said that I'm likely to end up with a colonoscopy.
Anonymous
Anonymous wrote:Two months later and I'm still in pain.

Finally got a visit with the GI.

I got a fecal tests and yet more blood tests (because bilirubin is high) as a precaution but GI said that with a clear CT scan, it's not likely to be anything and doesn't want to do a colonoscopy.

Gi put me on 1800mg of Advil per day meanwhile to deal with the pain at least. I'm grateful for that -- I haven't been sleeping in months but didn't want to take anything before talking to the GI.

Gi thinks it's just an inflammation because CT scan was clear and Advil will resolve it if it is that simple so after 2 months of pain, bloating, nausea, constipation, diarrhea, and worrying, I should have just taken Advil. That's a lesson.

If Advil doesn't resolve it, GI is going to do a follow-up visit but said that I'm likely to end up with a colonoscopy.


Forgive me if it’s been asked in the long thread but have you gotten a full autoimmune panel done for bloodwork? This much inflammation would likely show up on those panels and depending on other factors may point to autoimmune or auto inflammatory causes
Anonymous
Watch out for that high Advil dose. I have the ulcer to prove it. Good luck.
Anonymous
Have you seen an acupuncturist?
Anonymous
Why no colonoscopy?
Anonymous
Anonymous wrote:OP here.

Still in pain. Celiac Results were Negative. My IgA Serum value was 290 mg/dL and normal is up to 310 mg/dL and antibody level was even lower.



I still have nausea, fatigue, bloating, and abdominal pain on only the right side (like a cramp all the time day and night with no break). But it's not bad enough to go to the ER -- I would feel ridiculous.

I'm going to the Gyn on Monday so I will ask her to do more tests and refer me to a GI asap.


Since you are still suffering, you may want to review your file to confirm whether your doc only did the TTG-IGA test for celiac (which can miss people), or did the full comprehensive panel (EMA, DGP, etc.). I am just wondering because your symptoms are very on point for celiac and many doctors are not current in celiac disease testing best practices (though it's a good sign they took your baseline IGA).

More info here - https://celiac.org/about-celiac-disease/screening-and-diagnosis/screening/
Anonymous
Anonymous wrote:Two months later and I'm still in pain.

Finally got a visit with the GI.

I got a fecal tests and yet more blood tests (because bilirubin is high) as a precaution but GI said that with a clear CT scan, it's not likely to be anything and doesn't want to do a colonoscopy.

Gi put me on 1800mg of Advil per day meanwhile to deal with the pain at least. I'm grateful for that -- I haven't been sleeping in months but didn't want to take anything before talking to the GI.

Gi thinks it's just an inflammation because CT scan was clear and Advil will resolve it if it is that simple so after 2 months of pain, bloating, nausea, constipation, diarrhea, and worrying, I should have just taken Advil. That's a lesson.

If Advil doesn't resolve it, GI is going to do a follow-up visit but said that I'm likely to end up with a colonoscopy.


This is total nonsense. Inflammation in the gut is not treated via Advil. The cause of the inflammation matters. You need a different GI and you need to be scoped.
Anonymous
Anonymous wrote:Have you seen an acupuncturist?


Asking as it might help with symptoms until you get a diagnosis. Esp the pain and inflammation + stress of it all.
Anonymous
Anonymous wrote:
Anonymous wrote:Two months later and I'm still in pain.

Finally got a visit with the GI.

I got a fecal tests and yet more blood tests (because bilirubin is high) as a precaution but GI said that with a clear CT scan, it's not likely to be anything and doesn't want to do a colonoscopy.

Gi put me on 1800mg of Advil per day meanwhile to deal with the pain at least. I'm grateful for that -- I haven't been sleeping in months but didn't want to take anything before talking to the GI.

Gi thinks it's just an inflammation because CT scan was clear and Advil will resolve it if it is that simple so after 2 months of pain, bloating, nausea, constipation, diarrhea, and worrying, I should have just taken Advil. That's a lesson.

If Advil doesn't resolve it, GI is going to do a follow-up visit but said that I'm likely to end up with a colonoscopy.


This is total nonsense. Inflammation in the gut is not treated via Advil. The cause of the inflammation matters. You need a different GI and you need to be scoped.


Yeah, rare GI doctor who gives a person high dose NSAIDS which can cause ulcers, etc. Get the scopes. Have you been scoped before? if not, definitely get it, you are past due.

Also, any excuse you have to get a hysterectomy including ovaries, jump at it. I have a family history of ovarian and was advised if it's ever a treatment option for something, grab it and ask for ovaries to be included. They are nothing but trouble for people with our fmaily history once done with childbearing.
Anonymous
Anonymous wrote:You're 48 - could these be menopause symptoms?


+100000 welcome to the club no one wants to join!
Anonymous
Anonymous wrote:
Anonymous wrote:OP here.

Still in pain. Finally went to the ER and got a CT scan.

Bilirubin was high but they said it's because I'm not eating and I'm not eating because I feel extremely bloated and uncomfortable but there is nothing in my bowel.

TT

SScan
EEEliminated

Appendix issues
Gallbladder issues
Ovarian issues
Pancreas Issues
Kidney issues
Liver issues

They want me to go to a GI as soon as possible. The soonest that they could squeeze me in is in 2 weeks.

I still have extreme bloating and increasingly worse abdominal pain on only the right side all day and night with some pain spreading to my back.

Please tell me what to ask GI. I assume that they'll give me a colonoscopy but what else do I request. Due to my gene difference, I am at high risk for ovarian and colon cancers. I feel helpless from now until then. Nothing helps with the pain.


You could have ruptured a cyst on your ovary. Takes time to absorb the toxins.


Mom's sign that she had celiac disease was bloating (like she was pregnant.) Make sure to get a blood test for celiac disease. A PCP can order this.
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