Parents of newborns- how are you approaching RSV?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

A friend of mines baby died of RSV in the UK because the NHS thought the med used to treat it was too expensive to waste on him.

Liberal Americans are confused. It's not that you don't have to pay, it's that you can't. Big difference.

Canada extended drug coverage to kids... at the expense of kicking very expensive cancer drugs off the formulary. So soccer mom's have their pimply 15 year old's doxycyclin covered while very sick kids will die of cancer.

[Anonymous]

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Anonymous wrote:

Anonymous wrote:

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Anonymous wrote:Voice of dissent here. My 16 week old contracted RSV her first week of daycare. She had a very bad case but was not hospitalized. Her pediatrician probably should have had us take her in, but hindsight is 2020. That illness caused lung damage and gave her asthma, though we did not know it for a while because we thought she recovered. But the damage was done from that and We have spent the last 6 plus years with her catching every respiratory infection known to Man and being extremely vulnerable to illness. No cold or runny nose for her is ever a cold. She will be up all night struggling to breathe and needing nebulizer treatments every few hours. Talk about working mom guilt.

She would get sick every 2-3 weeks as an infant and toddler following the RSV and I used so much PTO I was worried about losing my job. I would have play dates with friends who failed to mention their kid had a cough or cold, and then a few days later my DD h would have pneumonia or bronchiolitis. She was so sick, all the time. It took a huge toll on me emotionally, on my marriage, health, and sleep. We are still dealing with the impact of that one illness almost every day of her life.

We now have a pediatric pulmonologist, multiple inhalers, an asthma action plan, etc. but dealing with the chronic stress of her condition and constant illness has been a burden I would not wish on anyone. I wish I had known how bad RSV could ge for a baby, and now it can haunt your kid for a lifetime.

Is this the narrative that your doctor agrees with?

I have a kid whose bad reaction to his first virus, at 4 weeks, was the first warning sign of lifelong asthma. It almost certainly wasn't RSV, based on the time of year. But the virus didn't cause the asthma. It was just the first trigger that he was exposed to.

Yes, our 3 pediatricians she has seen and the pulmonologist all say this.

I doubt that, since it isn’t known whether there’s a causal link between RSV and asthma or merely a correlation between kids that will develop asthma and kids that develop more serious RSV cases.

So tell me, where did you go to medical school? Because I would like to know your credentials to be questioning the opinion of a pediatric pulmonologist, and several different pediatricians, not all of whom even work in the same practice. It’s incredibly rude to challenge someone’s lived, and extremely difficult, experience with their child because it does not suit whatever narrative you have in your head. My child had no other risk factors for asthma: born full term in a family where no one (immediate or extended family) has asthma. People deserve to hear the full spectrum of experiences when it comes to RSV. Some children are ok with it, and suffer no lasting consequences, and some do not.

Just because the evidence is not available yet does not make me or our health care team wrong.

“RSV infection during infancy might increase the susceptibility to asthma by impairing the developing immune and pulmonary systems of infants.”

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3215509/

This is DCUM. If you are disturbed by something disturbing, you have anxiety and need to hop on a SSRI.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I kept my eldest out of kindergarten. If you can't do it the whole winter, at least do it for 6 weeks when they are the most fragile.

I once walked out of a lab appointment because they wanted me to wait in a line in a hallway. Another time my MIL flew across the country and I would only meet her outdoors in the park in the freezing cold

Don't mess around with surgical masks. That was the biggest hoax of all during this covid business. Anything less than an n95 that totally seals to your face is theatre.

-signed 2x covid pregnancy veteran who managed to dodge covid unvaccinated

You should have gotten vaccinated.

That's what the high risk OB said, while wearing a useless surgical mask, who told me to stop talking over him when I tried to tell him I have a C section isthmocele which ended up being bad enough another doctor said I was at risk of spontaneous uterine rupture (nearly always fatal to baby). Needless to say he was fired and my respect and trust in doctors and the medical establishment, and thus experimental vaccines, is greatly diminished. You have zero right to tell someone what to do to their body.

You chose not to get vaccinated against covid bc you had a crappy high risk ob?

I chose not to get vaccinated because there is zero long term safety data in pregnancy and my husband worked from home and I kept the K out of school. It made sense for our situation.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

My premature twins received the shot but we still had to stay isolated. One child was a micro preemie. To this day, I detest and still have anger towards the idiots who were mad we didn't take our kids out or allow grandma to take them to her grandma shower.

You have anger issues and I’m grateful you’re not in my family! Yes of course people who don’t have preemies during a scary illness season are not going to fully comprehend what you’re going through or how you feel about it. Move the eff on. They sure as heck have.

Here we go again, with the entitled people demanding others to subject their children to their wishes. And if you don't like it, you're the crazy one. Insert psychiatric diagnosis here.

In my book, whoever has to deal with the consequences gets to call the shots.

[Anonymous]

Both of my kids were preemies. Both born in Nov/Dec. I had to stay home with them until April. No trips except doctor visits. Both times we were new to town and yup, it was pretty brutal but we made it through. I wouldn't do it any diferently. Also Synagis is not a vaccine, it is antibodies. Full term babies should have them already.