Reply to Parents of newborns- how are you approaching RSV?

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[quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous][quote=Anonymous]Voice of dissent here. My 16 week old contracted RSV her first week of daycare. She had a very bad case but was not hospitalized. Her pediatrician probably should have had us take her in, but hindsight is 2020. That illness caused lung damage and gave her asthma, though we did not know it for a while because we thought she recovered. But the damage was done from that and We have spent the last 6 plus years with her catching every respiratory infection known to Man and being extremely vulnerable to illness. No cold or runny nose for her is ever a cold. She will be up all night struggling to breathe and needing nebulizer treatments every few hours. Talk about working mom guilt.

She would get sick every 2-3 weeks as an infant and toddler following the RSV and I used so much PTO I was worried about losing my job. I would have play dates with friends who failed to mention their kid had a cough or cold, and then a few days later my DD h would have pneumonia or bronchiolitis. She was so sick, all the time. It took a huge toll on me emotionally, on my marriage, health, and sleep. We are still dealing with the impact of that one illness almost every day of her life.

We now have a pediatric pulmonologist, multiple inhalers, an asthma action plan, etc. but dealing with the chronic stress of her condition and constant illness has been a burden I would not wish on anyone. I wish I had known how bad RSV could ge for a baby, and now it can haunt your kid for a lifetime.[/quote]

Is this the narrative that your doctor agrees with?

I have a kid whose bad reaction to his first virus, at 4 weeks, was the first warning sign of lifelong asthma.  It almost certainly wasn't RSV, based on the time of year.  But the virus didn't cause the asthma.  It was just the first trigger that he was exposed to. [/quote]

Yes, our 3 pediatricians she has seen and the pulmonologist all say this. [/quote]

I doubt that, since it isn’t known whether there’s a causal link between RSV and asthma or merely a correlation between kids that will develop asthma and kids that develop more serious RSV cases.[/quote]

So tell me, where did you go to medical school? Because I would like to know your credentials to be questioning the opinion of a pediatric pulmonologist, and several different pediatricians, not all of whom even work in the same practice. It’s incredibly rude to challenge someone’s lived, and extremely difficult, experience with their child because it does not suit whatever narrative you have in your head. My child had no other risk factors for asthma: born full term in a family where no one (immediate or extended family) has asthma. People deserve to hear the full spectrum of experiences when it comes to RSV. Some children are ok with it, and suffer no lasting consequences, and some do not.

Just because the evidence is not available yet does not make me or our health care team wrong.

“RSV infection during infancy might increase the susceptibility to asthma by impairing the developing immune and pulmonary systems of infants.”

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3215509/[/quote]

This is DCUM. If you are disturbed by something disturbing, you have anxiety and need to hop on a SSRI. [/quote]

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