Parents of newborns- how are you approaching RSV?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

My premature twins received the shot but we still had to stay isolated. One child was a micro preemie. To this day, I detest and still have anger towards the idiots who were mad we didn't take our kids out or allow grandma to take them to her grandma shower.

You have anger issues and I’m grateful you’re not in my family! Yes of course people who don’t have preemies during a scary illness season are not going to fully comprehend what you’re going through or how you feel about it. Move the eff on. They sure as heck have.

NP- you obviously have reading comprehension issues. PP isn't talking about people with full term infants, she's talking about how people expected her to take out her preemies.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Voice of dissent here. My 16 week old contracted RSV her first week of daycare. She had a very bad case but was not hospitalized. Her pediatrician probably should have had us take her in, but hindsight is 2020. That illness caused lung damage and gave her asthma, though we did not know it for a while because we thought she recovered. But the damage was done from that and We have spent the last 6 plus years with her catching every respiratory infection known to Man and being extremely vulnerable to illness. No cold or runny nose for her is ever a cold. She will be up all night struggling to breathe and needing nebulizer treatments every few hours. Talk about working mom guilt.

She would get sick every 2-3 weeks as an infant and toddler following the RSV and I used so much PTO I was worried about losing my job. I would have play dates with friends who failed to mention their kid had a cough or cold, and then a few days later my DD h would have pneumonia or bronchiolitis. She was so sick, all the time. It took a huge toll on me emotionally, on my marriage, health, and sleep. We are still dealing with the impact of that one illness almost every day of her life.

We now have a pediatric pulmonologist, multiple inhalers, an asthma action plan, etc. but dealing with the chronic stress of her condition and constant illness has been a burden I would not wish on anyone. I wish I had known how bad RSV could ge for a baby, and now it can haunt your kid for a lifetime.

Is this the narrative that your doctor agrees with?

I have a kid whose bad reaction to his first virus, at 4 weeks, was the first warning sign of lifelong asthma. It almost certainly wasn't RSV, based on the time of year. But the virus didn't cause the asthma. It was just the first trigger that he was exposed to.

Yes, our 3 pediatricians she has seen and the pulmonologist all say this.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

My premature twins received the shot but we still had to stay isolated. One child was a micro preemie. To this day, I detest and still have anger towards the idiots who were mad we didn't take our kids out or allow grandma to take them to her grandma shower.

You have anger issues and I’m grateful you’re not in my family! Yes of course people who don’t have preemies during a scary illness season are not going to fully comprehend what you’re going through or how you feel about it. Move the eff on. They sure as heck have.

NP- you obviously have reading comprehension issues. PP isn't talking about people with full term infants, she's talking about how people expected her to take out her preemies.

Not just take them out but let grandma take them to a large party and pass them around despite being on monitors and around the clock medicines and grandma didn't want us there. I was criticized by people I barely knew and we could not step out of our house with random people trying to not just touch my kids, but pick them up. More than one stranger would ignore me when I told them to not touch my kid. I had one woman start to pick up my kid and tell me I didn't know what I was doing that the kid would be fine with her. I had near strangers arguing with me who wanted to hold my children. I couldn't go out in public without people trying to pick up my infants. My kids had to see all kinds of specialists and the doctors knew to move me into a room immediately or even a storage room.

Anyone who attacks a new mom with medically fragile children belongs in hell.

[Anonymous]

If it's any consolation my 4 month old got rsv the minute she started daycare. She's a thriving 4 year old now

[Anonymous]

Anonymous wrote:Our 4yo had it when she was 6 months old. We did have to take her into urgent care once, but ultimately it wasn't THAT bad.

We have a second child now that's 1yo and we're laying low as much as we can, but older DD is in preschool.

My child had to have hernia surgery at 5 months and the child dc shared a room with at Fairfax had RSV. The idiots took so long to admit it was RSV I was lucky my kid didn't get it. The child was a preemie who had been discharged from the nicu and got sick. The parents didn't spend the night with their child had no clue how the nurses were ignoring what was going on. I knew from other moms to stay. Their child's breathing was horrible to listen to. They gave the child one breathing treatment and it didn't help. I stayed awake the whole night and called the nurses twice because of that child was getting worse. I also had to stop the nurses every time because they weren't changing gloves or washing hands when they came to check on my dc after working on the other child.

For those of you making light of what RSV can do to infants, talk to a picu nurse. They've seen children die from rsv. If you had been in the hospital that night with me to hear how this infant couldn't breathe, you'd be less cavalier about it. If it was nothing for your child, great. Premies lungs and airways often take a long time to develop outside of the nicu. Anyone who criticizes a mom for being serious about rsv is a jerk. But this is just like all the covid craziness, you only care about yourself and if if wasn't bad for your child, who cares about any other children.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Our 4yo had it when she was 6 months old. We did have to take her into urgent care once, but ultimately it wasn't THAT bad.

We have a second child now that's 1yo and we're laying low as much as we can, but older DD is in preschool.

My child had to have hernia surgery at 5 months and the child dc shared a room with at Fairfax had RSV. The idiots took so long to admit it was RSV I was lucky my kid didn't get it. The child was a preemie who had been discharged from the nicu and got sick. The parents didn't spend the night with their child had no clue how the nurses were ignoring what was going on. I knew from other moms to stay. Their child's breathing was horrible to listen to. They gave the child one breathing treatment and it didn't help. I stayed awake the whole night and called the nurses twice because of that child was getting worse. I also had to stop the nurses every time because they weren't changing gloves or washing hands when they came to check on my dc after working on the other child.

For those of you making light of what RSV can do to infants, talk to a picu nurse. They've seen children die from rsv. If you had been in the hospital that night with me to hear how this infant couldn't breathe, you'd be less cavalier about it. If it was nothing for your child, great. Premies lungs and airways often take a long time to develop outside of the nicu. Anyone who criticizes a mom for being serious about rsv is a jerk. But this is just like all the covid craziness, you only care about yourself and if if wasn't bad for your child, who cares about any other children.

That is horrific. And what parent leaves a child alone in the hospital?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Our 4yo had it when she was 6 months old. We did have to take her into urgent care once, but ultimately it wasn't THAT bad.

We have a second child now that's 1yo and we're laying low as much as we can, but older DD is in preschool.

My child had to have hernia surgery at 5 months and the child dc shared a room with at Fairfax had RSV. The idiots took so long to admit it was RSV I was lucky my kid didn't get it. The child was a preemie who had been discharged from the nicu and got sick. The parents didn't spend the night with their child had no clue how the nurses were ignoring what was going on. I knew from other moms to stay. Their child's breathing was horrible to listen to. They gave the child one breathing treatment and it didn't help. I stayed awake the whole night and called the nurses twice because of that child was getting worse. I also had to stop the nurses every time because they weren't changing gloves or washing hands when they came to check on my dc after working on the other child.

For those of you making light of what RSV can do to infants, talk to a picu nurse. They've seen children die from rsv. If you had been in the hospital that night with me to hear how this infant couldn't breathe, you'd be less cavalier about it. If it was nothing for your child, great. Premies lungs and airways often take a long time to develop outside of the nicu. Anyone who criticizes a mom for being serious about rsv is a jerk. But this is just like all the covid craziness, you only care about yourself and if if wasn't bad for your child, who cares about any other children.

That is horrific. And what parent leaves a child alone in the hospital?

Don't do that. You have no idea what was going on in that parent's life. Not everyone has the privilege to have childcare or unlimited work leave.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Our 4yo had it when she was 6 months old. We did have to take her into urgent care once, but ultimately it wasn't THAT bad.

We have a second child now that's 1yo and we're laying low as much as we can, but older DD is in preschool.

My child had to have hernia surgery at 5 months and the child dc shared a room with at Fairfax had RSV. The idiots took so long to admit it was RSV I was lucky my kid didn't get it. The child was a preemie who had been discharged from the nicu and got sick. The parents didn't spend the night with their child had no clue how the nurses were ignoring what was going on. I knew from other moms to stay. Their child's breathing was horrible to listen to. They gave the child one breathing treatment and it didn't help. I stayed awake the whole night and called the nurses twice because of that child was getting worse. I also had to stop the nurses every time because they weren't changing gloves or washing hands when they came to check on my dc after working on the other child.

For those of you making light of what RSV can do to infants, talk to a picu nurse. They've seen children die from rsv. If you had been in the hospital that night with me to hear how this infant couldn't breathe, you'd be less cavalier about it. If it was nothing for your child, great. Premies lungs and airways often take a long time to develop outside of the nicu. Anyone who criticizes a mom for being serious about rsv is a jerk. But this is just like all the covid craziness, you only care about yourself and if if wasn't bad for your child, who cares about any other children.

That is horrific. And what parent leaves a child alone in the hospital?

Don't do that. You have no idea what was going on in that parent's life. Not everyone has the privilege to have childcare or unlimited work leave.

I'm the poster above and agree. The parents thought their child was going to be fine when they left. When I referred to idiots I was referring to the nurse who ignored the fact that the child was getting worse, did one breathing treatment and didn't show back up at regular intervals to check on the child. The child was in distress and they ignored it and pretended like it was nothing. After I called the nurses the second time, they had a team in working on the child. My dh and I were so sleep deprived that I was planning to to leave my child to go home for 3 or 4 hours to sleep. Other moms who had been through it told me not to leave. We all assumed the ped ward at the hospital was a great and safe place after experiencing how well run the nicu was.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Our 4yo had it when she was 6 months old. We did have to take her into urgent care once, but ultimately it wasn't THAT bad.

We have a second child now that's 1yo and we're laying low as much as we can, but older DD is in preschool.

My child had to have hernia surgery at 5 months and the child dc shared a room with at Fairfax had RSV. The idiots took so long to admit it was RSV I was lucky my kid didn't get it. The child was a preemie who had been discharged from the nicu and got sick. The parents didn't spend the night with their child had no clue how the nurses were ignoring what was going on. I knew from other moms to stay. Their child's breathing was horrible to listen to. They gave the child one breathing treatment and it didn't help. I stayed awake the whole night and called the nurses twice because of that child was getting worse. I also had to stop the nurses every time because they weren't changing gloves or washing hands when they came to check on my dc after working on the other child.

For those of you making light of what RSV can do to infants, talk to a picu nurse. They've seen children die from rsv. If you had been in the hospital that night with me to hear how this infant couldn't breathe, you'd be less cavalier about it. If it was nothing for your child, great. Premies lungs and airways often take a long time to develop outside of the nicu. Anyone who criticizes a mom for being serious about rsv is a jerk. But this is just like all the covid craziness, you only care about yourself and if if wasn't bad for your child, who cares about any other children.

That is horrific. And what parent leaves a child alone in the hospital?

Don't do that. You have no idea what was going on in that parent's life. Not everyone has the privilege to have childcare or unlimited work leave.

No, I will absolutely do that. I don’t care what someone’s situation is, I work in health care and it’s a known fact that you do not leave a family member alone in the hospital, let alone one who cannot speak or communicate. Medical mistakes are common and you cannot just blindly trust nurses to care for your child. After two inpatient stays I learned the hard way that everyone needs a family member to be their advocate in the hospital. Medication errors are made, charting is not done and someone gets doses twice, nurses get tied up with patients and forget to deliver meds on time or round on you, etc. etc. everyone needs an advocate in the hospital!

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Our 4yo had it when she was 6 months old. We did have to take her into urgent care once, but ultimately it wasn't THAT bad.

We have a second child now that's 1yo and we're laying low as much as we can, but older DD is in preschool.

My child had to have hernia surgery at 5 months and the child dc shared a room with at Fairfax had RSV. The idiots took so long to admit it was RSV I was lucky my kid didn't get it. The child was a preemie who had been discharged from the nicu and got sick. The parents didn't spend the night with their child had no clue how the nurses were ignoring what was going on. I knew from other moms to stay. Their child's breathing was horrible to listen to. They gave the child one breathing treatment and it didn't help. I stayed awake the whole night and called the nurses twice because of that child was getting worse. I also had to stop the nurses every time because they weren't changing gloves or washing hands when they came to check on my dc after working on the other child.

For those of you making light of what RSV can do to infants, talk to a picu nurse. They've seen children die from rsv. If you had been in the hospital that night with me to hear how this infant couldn't breathe, you'd be less cavalier about it. If it was nothing for your child, great. Premies lungs and airways often take a long time to develop outside of the nicu. Anyone who criticizes a mom for being serious about rsv is a jerk. But this is just like all the covid craziness, you only care about yourself and if if wasn't bad for your child, who cares about any other children.

Typical sanctimonious nonsense from I'm guessing an entitled nurse. What if this mom had no one to watch her other children? What if she worked shifts and her boss said she'd be fired if she didn't come in to work? You have no idea what people go though.

That is horrific. And what parent leaves a child alone in the hospital?

Don't do that. You have no idea what was going on in that parent's life. Not everyone has the privilege to have childcare or unlimited work leave.

No, I will absolutely do that. I don’t care what someone’s situation is, I work in health care and it’s a known fact that you do not leave a family member alone in the hospital, let alone one who cannot speak or communicate. Medical mistakes are common and you cannot just blindly trust nurses to care for your child. After two inpatient stays I learned the hard way that everyone needs a family member to be their advocate in the hospital. Medication errors are made, charting is not done and someone gets doses twice, nurses get tied up with patients and forget to deliver meds on time or round on you, etc. etc. everyone needs an advocate in the hospital!

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Voice of dissent here. My 16 week old contracted RSV her first week of daycare. She had a very bad case but was not hospitalized. Her pediatrician probably should have had us take her in, but hindsight is 2020. That illness caused lung damage and gave her asthma, though we did not know it for a while because we thought she recovered. But the damage was done from that and We have spent the last 6 plus years with her catching every respiratory infection known to Man and being extremely vulnerable to illness. No cold or runny nose for her is ever a cold. She will be up all night struggling to breathe and needing nebulizer treatments every few hours. Talk about working mom guilt.

She would get sick every 2-3 weeks as an infant and toddler following the RSV and I used so much PTO I was worried about losing my job. I would have play dates with friends who failed to mention their kid had a cough or cold, and then a few days later my DD h would have pneumonia or bronchiolitis. She was so sick, all the time. It took a huge toll on me emotionally, on my marriage, health, and sleep. We are still dealing with the impact of that one illness almost every day of her life.

We now have a pediatric pulmonologist, multiple inhalers, an asthma action plan, etc. but dealing with the chronic stress of her condition and constant illness has been a burden I would not wish on anyone. I wish I had known how bad RSV could ge for a baby, and now it can haunt your kid for a lifetime.

Is this the narrative that your doctor agrees with?

I have a kid whose bad reaction to his first virus, at 4 weeks, was the first warning sign of lifelong asthma. It almost certainly wasn't RSV, based on the time of year. But the virus didn't cause the asthma. It was just the first trigger that he was exposed to.

Yes, our 3 pediatricians she has seen and the pulmonologist all say this.

I doubt that, since it isn’t known whether there’s a causal link between RSV and asthma or merely a correlation between kids that will develop asthma and kids that develop more serious RSV cases.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Voice of dissent here. My 16 week old contracted RSV her first week of daycare. She had a very bad case but was not hospitalized. Her pediatrician probably should have had us take her in, but hindsight is 2020. That illness caused lung damage and gave her asthma, though we did not know it for a while because we thought she recovered. But the damage was done from that and We have spent the last 6 plus years with her catching every respiratory infection known to Man and being extremely vulnerable to illness. No cold or runny nose for her is ever a cold. She will be up all night struggling to breathe and needing nebulizer treatments every few hours. Talk about working mom guilt.

She would get sick every 2-3 weeks as an infant and toddler following the RSV and I used so much PTO I was worried about losing my job. I would have play dates with friends who failed to mention their kid had a cough or cold, and then a few days later my DD h would have pneumonia or bronchiolitis. She was so sick, all the time. It took a huge toll on me emotionally, on my marriage, health, and sleep. We are still dealing with the impact of that one illness almost every day of her life.

We now have a pediatric pulmonologist, multiple inhalers, an asthma action plan, etc. but dealing with the chronic stress of her condition and constant illness has been a burden I would not wish on anyone. I wish I had known how bad RSV could ge for a baby, and now it can haunt your kid for a lifetime.

Is this the narrative that your doctor agrees with?

I have a kid whose bad reaction to his first virus, at 4 weeks, was the first warning sign of lifelong asthma. It almost certainly wasn't RSV, based on the time of year. But the virus didn't cause the asthma. It was just the first trigger that he was exposed to.

Yes, our 3 pediatricians she has seen and the pulmonologist all say this.

I had pneumonia when I was 5 or 6 mo old. Like for your child, I then had years of being sick and no cold ever being just a cold. I mostly outgrew it when I was a preteen, although I have mild and manageable asthma now, and some of my doctors think my pneumonia caused this - and trust me my mom is still guilt ridden about this and is petrified any time my kids are sick - more doctors believe now - when I am an adult - that I was always predisposed to asthma and the pneumonia triggered it. This is all to say I hope your daughter feels better soon and try not to feel too guilty.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Voice of dissent here. My 16 week old contracted RSV her first week of daycare. She had a very bad case but was not hospitalized. Her pediatrician probably should have had us take her in, but hindsight is 2020. That illness caused lung damage and gave her asthma, though we did not know it for a while because we thought she recovered. But the damage was done from that and We have spent the last 6 plus years with her catching every respiratory infection known to Man and being extremely vulnerable to illness. No cold or runny nose for her is ever a cold. She will be up all night struggling to breathe and needing nebulizer treatments every few hours. Talk about working mom guilt.

She would get sick every 2-3 weeks as an infant and toddler following the RSV and I used so much PTO I was worried about losing my job. I would have play dates with friends who failed to mention their kid had a cough or cold, and then a few days later my DD h would have pneumonia or bronchiolitis. She was so sick, all the time. It took a huge toll on me emotionally, on my marriage, health, and sleep. We are still dealing with the impact of that one illness almost every day of her life.

We now have a pediatric pulmonologist, multiple inhalers, an asthma action plan, etc. but dealing with the chronic stress of her condition and constant illness has been a burden I would not wish on anyone. I wish I had known how bad RSV could ge for a baby, and now it can haunt your kid for a lifetime.

Is this the narrative that your doctor agrees with?

I have a kid whose bad reaction to his first virus, at 4 weeks, was the first warning sign of lifelong asthma. It almost certainly wasn't RSV, based on the time of year. But the virus didn't cause the asthma. It was just the first trigger that he was exposed to.

Yes, our 3 pediatricians she has seen and the pulmonologist all say this.

I doubt that, since it isn’t known whether there’s a causal link between RSV and asthma or merely a correlation between kids that will develop asthma and kids that develop more serious RSV cases.

So tell me, where did you go to medical school? Because I would like to know your credentials to be questioning the opinion of a pediatric pulmonologist, and several different pediatricians, not all of whom even work in the same practice. It’s incredibly rude to challenge someone’s lived, and extremely difficult, experience with their child because it does not suit whatever narrative you have in your head. My child had no other risk factors for asthma: born full term in a family where no one (immediate or extended family) has asthma. People deserve to hear the full spectrum of experiences when it comes to RSV. Some children are ok with it, and suffer no lasting consequences, and some do not.

Just because the evidence is not available yet does not make me or our health care team wrong.

“RSV infection during infancy might increase the susceptibility to asthma by impairing the developing immune and pulmonary systems of infants.”

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3215509/

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

A friend of mines baby died of RSV in the UK because the NHS thought the med used to treat it was too expensive to waste on him.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I kept my eldest out of kindergarten. If you can't do it the whole winter, at least do it for 6 weeks when they are the most fragile.

I once walked out of a lab appointment because they wanted me to wait in a line in a hallway. Another time my MIL flew across the country and I would only meet her outdoors in the park in the freezing cold

Don't mess around with surgical masks. That was the biggest hoax of all during this covid business. Anything less than an n95 that totally seals to your face is theatre.

-signed 2x covid pregnancy veteran who managed to dodge covid unvaccinated

what in the world.

co-signed. This is crazy.

Btw I had RSV as an infant and was fine. And my DD had it as a <2yo (highest-risk period) and was also fine.

I think the following are reasonable precautions:

-ask people to wear masks when visiting brand-new newborn
-limit indoor visitors to grandparents only for the first 2 months (when hospital sick visits for newborn would require a spinal tap)
-limit contact with actively sick people
-"divide and conquer" with spouse if you have an older kid who is sick; don't isolate the kid, but keep them from touching the baby and have them use separate bathrooms, etc.

Just remember, babies have been getting sick from their older siblings for millennia and usually it turns out fine.

That is absolutely not true. We absolutely did not get slammed with new flu strains every year from China from international air travel and have literal babies in grubby daycares getting so many cold one after the other you can't tell when one stops and the next starts "for millennia". That is absolutely not true. Sorry! We were evolved to live in groups of a couple dozen families. I would not be surprised at all if we find out in the future all these language delays and behavioral problems that are occurring more frequently nowadays are party due to endless virus exposure and very young ages.