Parents of newborns- how are you approaching RSV?

[Anonymous]

Spiriling here.

[Anonymous]

OP sending hugs.

I do not have a new born but I do know people whose children had RSV.

Yes, RSV can be scary, but it is very treatable..

[Anonymous]

Same as covid and flu - Masks for visitors, hand washing as soon as we enter the house or just before eating/preparing food , purell when that's not available. Honest alcohol wipes for baby's hands, toys. Adults wearing masks when in public indoors to keep us from bringing yuck home.

[Anonymous]

Not the same, but I had my firstborn in November. I remember going to the pediatrician in the early weeks and she told me not to take him out in public to the grocery store or the mall as it was flu season. I was shocked. I asked how am I supposed to go Christmas shopping. She said “online”. So, I’d assume the same goes now with rsv, flu and covid. A friend’s toddler was recently hospitalized for 3 days with rsv. It’s not something to mess around with. If you don’t need to expose your baby, be a hermit until the spring.

[Anonymous]

I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

[Anonymous]

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

[Anonymous]

Do you have older kids who are in school and could expose the baby?

If not, agree with others, just cocoon and try to enjoy the time at home. Mostly avoid crowded indoor places etc. I would still see family etc - RSV isn't like Covid where asymptomatic people routinely expose others.

My older infant got RSV and ended up in the ICU. It's terrifying. But to be blunt, even in those scenarios, outcomes are generally okay. So be cautious but doesn't freak out.

[Anonymous]

I was a hermit. The older toddler changed her clothes and took a bath immediately back from school. When she got sick I was fortunate to have help to separate both the children. It sucks to isolate during holiday season but it is what it is. The baby won’t be a baby for long, time flies. But worrying about the baby during cold rsv and flu season is why I will never have another child.

[Anonymous]

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

[Anonymous]

I hear you. My son is 6 months old and has a lung condition and a heart condition. If he gets RSV, he is definitely going to the PICU again. (We were already there a few months ago.) We are trying to get him Synagis, the monoclonal antibody that prevents serious illness. He almost meets every criteria for it, but doesn't perfectly meet any of them, so insurance rejected the claim even though all his doctors agree that he needs it. We have appealed, but this whole process has been going on for about 6 weeks and we still don't have a clear answer about whether he can get it. So we just continue to live like it's 2020. We limit where we take him and who he sees. I work with kids, so I wear a mask all day, every day. It sucks, but I guess the benefit of Covid is that now we're used to it.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

It isn’t even available to 32 weekers any more. No evidence that it improves outcomes unless the preemie is born before 28 weeks. So that is what insurance companies cover now.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

It isn’t even available to 32 weekers any more. No evidence that it improves outcomes unless the preemie is born before 28 weeks. So that is what insurance companies cover now.

https://www.fda.gov/drugs/postmarket-drug-safety-information-patients-and-providers/makena-hydroxyprogesterone-caproate-injection-information

It didn’t do anything, has some bad side effects, and was super expensive.
Also, the progesterone was a big disaster. It just got pulled.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

It isn’t even available to 32 weekers any more. No evidence that it improves outcomes unless the preemie is born before 28 weeks. So that is what insurance companies cover now.

https://www.fda.gov/drugs/postmarket-drug-safety-information-patients-and-providers/makena-hydroxyprogesterone-caproate-injection-information

It didn’t do anything, has some bad side effects, and was super expensive.
Also, the progesterone was a big disaster. It just got pulled.

Only one progesterone got pulled, the others work. I was one of the lucky recipient of progesterone injections back in the day, and so was my mother. Otherwise I'd have died as a micro-preemie, and my kid would have too. The RSV vaccine works.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

It isn’t even available to 32 weekers any more. No evidence that it improves outcomes unless the preemie is born before 28 weeks. So that is what insurance companies cover now.

https://www.fda.gov/drugs/postmarket-drug-safety-information-patients-and-providers/makena-hydroxyprogesterone-caproate-injection-information

It didn’t do anything, has some bad side effects, and was super expensive.
Also, the progesterone was a big disaster. It just got pulled.

Only one progesterone got pulled, the others work. I was one of the lucky recipient of progesterone injections back in the day, and so was my mother. Otherwise I'd have died as a micro-preemie, and my kid would have too. The RSV vaccine works.

Have you actually looked at the data? Synagis barely moves the needle.

Progesterone has zero evidence of working. That was the whole thing with Makena. Pre-Makena, it was prescribed off-label with no data to support it. Then the poorly run Makena trial. Then it got sold. They had to do post-approval surveillance and the data was not good.

It doesn’t get prescribed very often now. Little benefit and lots of potential issues.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I don't have a newborn currently, but when DS was born at 32 weeks, he received a vaccine for RSV for preemies.

I'm not sure why it's not given out to all newborns, maybe you can ask your pediatrician.

Also, clinical studies have just shown that a new vaccine given to pregnant mothers protects their newborns against RSV. It's not available right now, but it's something to follow.

It's 10k and only available to premies.

This is one of the things I hate most about the USA: life-saving meds exist, but the government is too weak to force pharmaceutical companies to lower their prices, like the European Union and other countries do. Same for the life-saving progesterone injection to prevent pre-term labor. Same for insulin.

It's an outrage.

It isn’t even available to 32 weekers any more. No evidence that it improves outcomes unless the preemie is born before 28 weeks. So that is what insurance companies cover now.

https://www.fda.gov/drugs/postmarket-drug-safety-information-patients-and-providers/makena-hydroxyprogesterone-caproate-injection-information

It didn’t do anything, has some bad side effects, and was super expensive.
Also, the progesterone was a big disaster. It just got pulled.

Only one progesterone got pulled, the others work. I was one of the lucky recipient of progesterone injections back in the day, and so was my mother. Otherwise I'd have died as a micro-preemie, and my kid would have too. The RSV vaccine works.

Have you actually looked at the data? Synagis barely moves the needle.

Progesterone has zero evidence of working. That was the whole thing with Makena. Pre-Makena, it was prescribed off-label with no data to support it. Then the poorly run Makena trial. Then it got sold. They had to do post-approval surveillance and the data was not good.

It doesn’t get prescribed very often now. Little benefit and lots of potential issues.

Here is the Synagis statement from the AAP https://publications.aap.org/pediatrics/article/134/2/415/33013/Updated-Guidance-for-Palivizumab-Prophylaxis-Among?autologincheck=redirected?nfToken=00000000-0000-0000-0000-000000000000

Benefit for 28 weekers and younger.