Schools and Advice for Severe Double Deficit Dyslexia, Dysgraphia and Dyscalculia in 10 YO

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:How about an OG tutor, not ASDEC, who also uses strong phonological program? Ask your current OG tutor what they do for phonological training. That's often the missing piece - why OG doesn't work as well as it should. Kids really need OG PLUS strong phonological training. If your current tutor says they do a little of this and a little of that for the phonological piece, find an OG tutor with a really strong phonological program like Heggerty or Kilpatrick. Kids Up Reading Coaches has a really strong program.

You have no clue what you’re talking about. ASDEC uses OG and sounds and syllables. It’s the very best there is. It IS OG plus phonological work. Get the information before you opine.

DP - I'm relatively new to the dyslexia world (DS was diagnosed earlier this year), but have professional expertise in clinical psychology and clinical neuroscience. One thing that's abundantly clear is that there is no "best" approach to treating dyslexia, not for every kid. ASDEC may or may not be best for the OP's kid, but rigid adherence to one specific model of dyslexia remediation is, if nothing else, not supported by the published, peer-reviewed science.

Being rude to someone who is clearly trying to help a fellow parent isn't a great approach. And especially not when the data doesn't support your assertions.

DP. Over the course of four years, my kid was exposed to a few different programs and we found Sounds & Syllables to be the most comprehensive. I wish we had started that from the start and saved my kid a couple of years of spotty remediation. My kid is just one data point, but for him it was the best.

https://asdec.org/page-1599218
"These methods integrate evidence-based practice from neurology, cognitive sciences, psychology, speech-language pathology, and linguistics to produce the most durable remediation for students with even the most severe learning disabilities. 


Academic Therapists learn the precise articulation of the sounds of English and sound-symbol relationships. They learn to "cement" learning by using multisensory methods that trigger positive changes in the way students process learning. Research on these strategies demonstrates that multisensory approaches delivered through the sequential and simultaneous methods of SIS actually strengthen weak neural pathways and build new ones"

[Anonymous]

^ Sounds In Syllables

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:How about an OG tutor, not ASDEC, who also uses strong phonological program? Ask your current OG tutor what they do for phonological training. That's often the missing piece - why OG doesn't work as well as it should. Kids really need OG PLUS strong phonological training. If your current tutor says they do a little of this and a little of that for the phonological piece, find an OG tutor with a really strong phonological program like Heggerty or Kilpatrick. Kids Up Reading Coaches has a really strong program.

You have no clue what you’re talking about. ASDEC uses OG and sounds and syllables. It’s the very best there is. It IS OG plus phonological work. Get the information before you opine.

DP - I'm relatively new to the dyslexia world (DS was diagnosed earlier this year), but have professional expertise in clinical psychology and clinical neuroscience. One thing that's abundantly clear is that there is no "best" approach to treating dyslexia, not for every kid. ASDEC may or may not be best for the OP's kid, but rigid adherence to one specific model of dyslexia remediation is, if nothing else, not supported by the published, peer-reviewed science.

Being rude to someone who is clearly trying to help a fellow parent isn't a great approach. And especially not when the data doesn't support your assertions.

No, it was rude to state that OG was superior to ASDEC in the face of numerous recommendations for asdec. And the data actually does support it. The only people who try to obfuscate that data are the schools.

[Anonymous]

Anonymous wrote:How about an OG tutor, not ASDEC, who also uses strong phonological program? Ask your current OG tutor what they do for phonological training. That's often the missing piece - why OG doesn't work as well as it should. Kids really need OG PLUS strong phonological training. If your current tutor says they do a little of this and a little of that for the phonological piece, find an OG tutor with a really strong phonological program like Heggerty or Kilpatrick. Kids Up Reading Coaches has a really strong program.

Here in the SN Forum I've noticed a recent uptick in promotion of Kids Up Reading Coaches. I don't have any experience with this company. I can see from the website that sessions are held virtually and the founder is based in Tucson.

ASDEC is a local non-profit dedicated to dyslexia intervention. They are very aware of phonological awareness research and interventions. They also adhere to the OG principle that intervention should be "diagnostic and prescriptive", which is education-speak for being responsive to a student's individual needs.

[Anonymous]

My child had an ASDEC tutor during Covid, after being in a dyslexia school for 4 yrs. In the yr she had the ASDEC tutor, her spelling went from 2nd grade to 6th, it was phenomenal. I will recommend ASDEC every time. We have been in the dyslexic world for over a decade and it is by far the best program we have ever done.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Schools should not have to do push ins and its really disruptive to other kids. I would put them in public and spend them money on a tutor for every day as you have to get them reading asap.

This is what we ultimately did after a private school “with OG” failed to help.

The ASDEC tutor was amazing and kid finally made progress.

What school if you could kindly say? I will be applying this year for my dyslexic 3rd grader who is so sweet and social and am so torn bt these options, she's just started sounds in syllables now from an asdec tutor and will do that throughout the school year but I want to continue the same program in whatever school she goes to for 4th grade to stay consistent.

[Anonymous]

This situation stinks. I'm so sorry.
Even though it will be even more of a money-suck, I would see about getting a lawyer to access public school funding for a private placement and additional tutoring if needed.

I have heard mixed things about Lab, so if your child didn't succeed there, they might not be the only one. My child is doing better at Siena, though they seem to have trouble incorporating spelling and memorizing in general. If you haven't explored Siena, maybe that's a good fit; if that's where you are and it's not working, I'm very sorry!

[Anonymous]

5th grade teacher here, I have a low income child with this profile in my class this year and I'd love to connect his mother with some outside services. Does anyone know if ASDEC offers services on a sliding scale?

[Anonymous]

Anonymous wrote:This situation stinks. I'm so sorry.
Even though it will be even more of a money-suck, I would see about getting a lawyer to access public school funding for a private placement and additional tutoring if needed.

I have heard mixed things about Lab, so if your child didn't succeed there, they might not be the only one. My child is doing better at Siena, though they seem to have trouble incorporating spelling and memorizing in general. If you haven't explored Siena, maybe that's a good fit; if that's where you are and it's not working, I'm very sorry!

It’s gonna be hard to get private funding without enrolling in the public school.

[Anonymous]

would send your child to Lab

[Anonymous]

Anonymous wrote:DC is 10 YO and has severe double deficit dyslexia, dysgraphia, dyscalculia along with memory and processing speed issues. No ADHD. Bright, curious, happy kid with a love of learning. But basically illiterate. Has been enrolled in a popular private school for kids with learning disabilities for two years, but isn’t making “sufficient progress” and now the school is saying they can no longer service DC bc DC is more than 2 grade levels behind. We don’t know what to do. Public school was a nightmare and DC ended up in self contained classrooms with severely cognitively delayed kids and kids with behavioral problems. But after two years of paying $50k in tuition, DC still can’t read and clearly isn’t wanted bc DC doesn’t have “dyslexia lite.”

Any advice on what to do or where to place our DC? They are happy at current school and are well liked with a lot of friends. We are in the process of getting more private testing done.

I’m just so sad.

Our specifics are slightly different. My DC has very profound double deficit dyslexia and dysgraphia and ADHD, but not dyscalculia. In fact, he is very math and science oriented. However, he did have a very difficult time acquiring his rote math facts.

He received his first IEP midway in second grade and had it until the end of 12th grade. I believe that we need to look at our children’s strengths and support those as much as we support their weaknesses. As a result, we chose to keep him in public school because that was the best place to support his math and science strengths. And we fought for what we could get in the IEP and still had to make sure that IEP was implemented with Fidelity. We supplemented with an outside reading tutor. He started midway through second grade and saw her 2 to 3 times a week until midway through seventh grade. She was very experienced in many different reading programs and with children with dyslexia. The main one we used was Wilson, which was chosen because of his mix of strengths and weaknesses. She also taught us what to do at home on the non-tutoring days. On the non-tutoring days we worked with him about an hour a day.

Other things that we did, included 30 minutes plus a day of listening to books that were at his cognitive level and his reading level. Arlington Central library had a large number of books on CDs especially the Newberry award and Honor books - those plus Harry Potter and Rick Riordan got us through elementary school. I think it’s important for our children to listen to books at their cognitive level so that they can continue to progress in background knowledge, character development, plot developments, vocabulary, and language.

In the summers, we did a typing program and when there was a timed test, I took it because he would’ve never progressed out of the first level. He still types slowly, but he says he is fast enough to keep up with his brain. When he took tests and quizzes at school and when he did homework at home, he dictated to us until he became better at his keyboarding skills. He was fully on technology in his junior year of high school. It is a long slow process. He had a reader and scribe for his IEP accommodations through high school, and then in college he has electronic readers and electronics scribes as an accommodation. He has also had a simple calculator accommodation that he kept in college, even though he is math major. He does know his math facts, but they still come very slowly. When he had to take math tests in upper elementary and middle school, he did not have a timed test.

In middle school, we took the gas off reading remediation and only had him take a reading class in seventh grade and eighth grade. Then we put the gas on full throttle to learn the technology that helped him in college and beyond.

Most of the dyslexia schools in this area, concentrate on the moderate levels and not the profound and serious levels. You need to remember that this is a marathon and not a sprint. One thing that helped me was looking at yearly progress and just celebrating any progress no matter how small. The small steps add up overtime. Good luck n your search.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Were you at McLean or lab? I am unsurprised if so. So, we had to do a special needs school and ASDEC. I know many families who have had to do the same. My kid has a low IQ but has been given a solid education. He tested in grade level recently in seventh for reading and math despite all the diagnoses you listed, and more. We have also done private tutors 4-5 nights a week for math. Fun, fun.

Op here thank you. Sounds like a similar profile to our DC. Did your DC attend a private or did you take a different course? Our private said no to ASDEC when I found a tutor willing to go to school during the day. They also didn’t want ASDEC tutor during the summer bc it’s a different curriculum. We are at a loss.

well at this point if the school is saying they can't help your kid, then they really don't get a say over what outside tutoring you use.