Schools and Advice for Severe Double Deficit Dyslexia, Dysgraphia and Dyscalculia in 10 YO

Anonymous
DC is 10 YO and has severe double deficit dyslexia, dysgraphia, dyscalculia along with memory and processing speed issues. No ADHD. Bright, curious, happy kid with a love of learning. But basically illiterate. Has been enrolled in a popular private school for kids with learning disabilities for two years, but isn’t making “sufficient progress” and now the school is saying they can no longer service DC bc DC is more than 2 grade levels behind. We don’t know what to do. Public school was a nightmare and DC ended up in self contained classrooms with severely cognitively delayed kids and kids with behavioral problems. But after two years of paying $50k in tuition, DC still can’t read and clearly isn’t wanted bc DC doesn’t have “dyslexia lite.”

Any advice on what to do or where to place our DC? They are happy at current school and are well liked with a lot of friends. We are in the process of getting more private testing done.

I’m just so sad.
Anonymous
Have you done intensive ASDEC/OG? You have to start there
Anonymous
Were you at McLean or lab? I am unsurprised if so. So, we had to do a special needs school and ASDEC. I know many families who have had to do the same. My kid has a low IQ but has been given a solid education. He tested in grade level recently in seventh for reading and math despite all the diagnoses you listed, and more. We have also done private tutors 4-5 nights a week for math. Fun, fun.
Anonymous
The private testing will be helpful bc you will see if any progress was made. Are they saying next year they can’t help him or now? If you have resources, I would get ASDEC tutor and do 5 days a week. Also, ASDEC may be able to recommend a math tutor. In the past they recommended made for math online tutoring. Just focus on those two and the rest of the education piece can be really flexible. You can find a teacher, micro school, or online for the rest of it.
I’m so sorry this is happening, it really is a difficult situation.
ASDEC is amazing and it really changed the course for my child, who is very similar to yours.
Anonymous
OP here. We found an ASDEC tutor and school wasnt on board with letting the tutor push in during the day and also didn’t agree with outside ASDEC tutor bc ASDEC uses a different curriculum than OG. We tried.
Anonymous
I'm sorry you're in this position. While it hurts to be told you need to switch schools, clearly his current school couldn't meet his needs. Jemicy and Katherine Thomas can serve kids farther below grade level.
Anonymous
Anonymous wrote:Has been enrolled in a popular private school for kids with learning disabilities for two years, but isn’t making “sufficient progress” and now the school is saying they can no longer service DC bc DC is more than 2 grade levels behind.

OP were you at McLean, Lab or Siena? Also, has your DC already done the ASDEC program?
Anonymous
Anonymous wrote:Have you done intensive ASDEC/OG? You have to start there


OP here. I found an ASDEC tutor and school refused to allow push in and also said it was a different curriculum that would confuse DC. We are using an OG tutor. Clearly something isn’t working.
Anonymous
Anonymous wrote:OP here. We found an ASDEC tutor and school wasnt on board with letting the tutor push in during the day and also didn’t agree with outside ASDEC tutor bc ASDEC uses a different curriculum than OG. We tried.


Well, then start now. This is a blessing in disguise. Kids like this need one on one support.
Anonymous
Anonymous wrote:OP here. We found an ASDEC tutor and school wasnt on board with letting the tutor push in during the day and also didn’t agree with outside ASDEC tutor bc ASDEC uses a different curriculum than OG. We tried.

Sounds like you weren't at Siena. I think you should revisit ASDEC and move schools.
Anonymous
Anonymous wrote:Were you at McLean or lab? I am unsurprised if so. So, we had to do a special needs school and ASDEC. I know many families who have had to do the same. My kid has a low IQ but has been given a solid education. He tested in grade level recently in seventh for reading and math despite all the diagnoses you listed, and more. We have also done private tutors 4-5 nights a week for math. Fun, fun.


Op here thank you. Sounds like a similar profile to our DC. Did your DC attend a private or did you take a different course? Our private said no to ASDEC when I found a tutor willing to go to school during the day. They also didn’t want ASDEC tutor during the summer bc it’s a different curriculum. We are at a loss.
Anonymous
[twitter]
Anonymous wrote:
Anonymous wrote:Were you at McLean or lab? I am unsurprised if so. So, we had to do a special needs school and ASDEC. I know many families who have had to do the same. My kid has a low IQ but has been given a solid education. He tested in grade level recently in seventh for reading and math despite all the diagnoses you listed, and more. We have also done private tutors 4-5 nights a week for math. Fun, fun.


Op here thank you. Sounds like a similar profile to our DC. Did your DC attend a private or did you take a different course? Our private said no to ASDEC when I found a tutor willing to go to school during the day. They also didn’t want ASDEC tutor during the summer bc it’s a different curriculum. We are at a loss.


Our private also said no, we disagreed, and skipped their language arts to do asdec. It was the best thing we did. Kid went from not reading, at all, at 9, to being on grade level at 12. Reading comprehension etc. still a disaster. But, onward.
Anonymous
Anonymous wrote:
Anonymous wrote:OP here. We found an ASDEC tutor and school wasnt on board with letting the tutor push in during the day and also didn’t agree with outside ASDEC tutor bc ASDEC uses a different curriculum than OG. We tried.


Well, then start now. This is a blessing in disguise. Kids like this need one on one support.


Op here. And do what for school? DH and I work full time. We can’t just have DC home working with a tutor all day. And how about DC who is happy at their school, is social, has friends. DC is a happy social kid who needs to be in a school environment for social reasons and we also work. How else can we pay for all this?
Anonymous
Anonymous wrote:[twitter]
Anonymous wrote:
Anonymous wrote:Were you at McLean or lab? I am unsurprised if so. So, we had to do a special needs school and ASDEC. I know many families who have had to do the same. My kid has a low IQ but has been given a solid education. He tested in grade level recently in seventh for reading and math despite all the diagnoses you listed, and more. We have also done private tutors 4-5 nights a week for math. Fun, fun.


Op here thank you. Sounds like a similar profile to our DC. Did your DC attend a private or did you take a different course? Our private said no to ASDEC when I found a tutor willing to go to school during the day. They also didn’t want ASDEC tutor during the summer bc it’s a different curriculum. We are at a loss.


Our private also said no, we disagreed, and skipped their language arts to do asdec. It was the best thing we did. Kid went from not reading, at all, at 9, to being on grade level at 12. Reading comprehension etc. still a disaster. But, onward.


And they didn’t kick your DC out? We have been getting threats for 6 months now that DC will get kicked out bc they aren’t making progress. But school also won’t let us push in ASDEC. dC needs to be in school for social and emotional reasons.
Anonymous
Will your current school let you finish the year? Get an ASDEC tutor now if so (screw what the school wants - they clearly can’t effectively educate your kid) and see if that allows enough progress to either stay or be in a better position to apply out.

If you need a school immediately for this year, that’s a whole other kettle of fish.
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