Reply to Schools and Advice for Severe Double Deficit Dyslexia, Dysgraphia and Dyscalculia in 10 YO

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[quote=Anonymous][quote=Anonymous]DC is 10 YO and has severe double deficit dyslexia, dysgraphia, dyscalculia along with memory and processing speed issues. No ADHD. Bright, curious, happy kid with a love of learning. But basically illiterate. Has been enrolled in a popular private school for kids with learning disabilities for two years, but isn’t making “sufficient progress” and now the school is saying they can no longer service DC bc DC is more than 2 grade levels behind. We don’t know what to do. Public school was a nightmare and DC ended up in self contained classrooms with severely cognitively delayed kids and kids with behavioral problems. But after two years of paying $50k in tuition, DC still can’t read and clearly isn’t wanted bc DC doesn’t have “dyslexia lite.”

Any advice on what to do or where to place our DC? They are happy at current school and are well liked with a lot of friends. We are in the process of getting more private testing done.

I’m just so sad. [/quote]

Our specifics are slightly different. My DC has very profound double deficit dyslexia and dysgraphia and ADHD, but not dyscalculia. In fact, he is very math and science oriented.  However, he did have a very difficult time acquiring his rote math facts.

He received his first IEP midway in second grade and had it until the end of 12th grade. I believe that we need to look at our children’s strengths and support those as much as we support their weaknesses. As a result, we chose to keep him in public school because that was the best place to support his math and science strengths. And we fought for what we could get in the IEP and still had to make sure that IEP was implemented with Fidelity. We supplemented with an outside reading tutor. He started midway through second grade and saw her 2 to 3 times a week until midway through seventh grade. She was very experienced in many different reading programs and with children with dyslexia. The main one we used was Wilson, which was chosen because of his mix of strengths and weaknesses. She also taught us what to do at home on the non-tutoring days. On the non-tutoring days we worked with him about an hour a day.

Other things that we did, included 30 minutes plus a day of listening to books that were at his cognitive level and his reading level.  Arlington Central library had a large number of books on CDs especially the Newberry award and Honor books - those plus Harry Potter and Rick Riordan got us through elementary school.  I think it’s important for our children to listen to books at their cognitive level so that they can continue to progress in background knowledge, character development, plot developments, vocabulary, and language.

In the summers, we did a typing program and when there was a timed test, I took it because he would’ve never progressed out of the first level. He still types slowly, but he says he is fast enough to keep up with his brain. When he took tests and quizzes at school and when he did homework at home, he dictated to us until he became better at his keyboarding skills. He was fully on technology in his junior year of high school. It is a long slow process. He had a reader and scribe for his IEP accommodations through high school, and then in college he has electronic readers and electronics scribes as an accommodation. He has also had a simple calculator accommodation that he kept in college, even though he is math major. He does know his math facts, but they still come very slowly. When he had to take math tests in upper elementary and middle school, he did not have a timed test.

In middle school, we took the gas off reading remediation and only had him take a reading class in seventh grade and eighth grade. Then we put the gas on full throttle to learn the technology that helped him in college and beyond.

Most of the dyslexia schools in this area, concentrate on the moderate levels and not the profound and serious levels. You need to remember that this is a marathon and not a sprint. One thing that helped me was looking at yearly progress and just celebrating any progress no matter how small.  The small steps add up overtime.  Good luck n your search. [/quote]

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