h1n1 shot reaction - hives

Anonymous
Anonymous wrote:
My hives have taken about 3 months to go away. I do still get them randomly in the evenings, but nothing compared to what they were. I went to an allergist and everything came back neg. They also tested my thyroid and that was fine too. I am waiting the results of the CU Index test.



What is a CU Index test?

I'm still getting hives....almost six weeks now, and wonder if it's even worth going through the testing, as for most people, it doesn't seem to give any answers. And if only antibodies are floating around our bodies after having had the shot, does this mean somehow that getting the shot goofed up the immune system and we'll live with hives indefinitely?????


CU Index tests to see if you have an Autoimmune disorder that is causing the hives. I found this on google: http://www.ibtlabs.com/library/PDF/CU%20Index_rev_020708.pdf

My test came back positive. I'm not sure what is means...have an appt in April to discuss w/ my dr.
Anonymous
Anonymous wrote:I have had the hives on and off for 4 months now, all of the medical tests have been done and have come back negative. I am convinced that it is from the H1N1 vaccine. I work with health care professionals and they say that this could go on for a year. I am taking 5 mg. of Aerius and 150 mg of Zantac at breakfast and supper. I take 50 mgs. of novo-hydroxyzin at bedtime. This is the first week that I have not have huge welts from head to toe. I have small spots but nothing like before. I was sick for one week, couldn't keep anything in me and the hives came back with a vengeance. I guess this is something I will have to deal with until it decides to go away. I am going to ask my allergist for an allergy test to eggs.


Let me know if you get the CU index test done - it's just a blood test. Mine was positive. My hives are pretty much gone after 4-months, but they do randomly appear maybe once every 2 weeks now.
Anonymous
I am 28 and last december after taking the H1N1 shot and after two days hives showed up and after then I have changed 3 to 4 doctors and medication but no luck. even today i still get those, almost its a day to day activity. Doc says it may take upto an year.
Anonymous
my 18 year old got the h1n1 shot today, at about 1pm and now it's after 9pm
and she has some hives behind her ears, and her body and arms are scratching her, I gave
her the Benadryl and waiting to see if it goes away.
Anonymous
I posted 6 weeks ago. I still have hives from H1N1...completely convinced this could go on and on. It has been 14 weeks. Scary to think this could last another 3-6 months....but I think it will. All medical contacts have indicated that this can't be from H1N1..the hives appeared the morning after the injection. Miserable...but I still can work...but very frustrating. I will never have this shot again.
Anonymous
CU Index tests to see if you have an Autoimmune disorder that is causing the hives. I found this on google: http://www.ibtlabs.com/library/PDF/CU%20Index_rev_020708.pdf

My test came back positive. I'm not sure what is means...have an appt in April to discuss w/ my dr.


Thanks for answering my question. I'm into my ninth week with hives. Just curious....did your hives just gradually start disappearing, now that you say you don't really have them much anymore? That would be so nice to have happen!
Anonymous
Anonymous wrote:
CU Index tests to see if you have an Autoimmune disorder that is causing the hives. I found this on google: http://www.ibtlabs.com/library/PDF/CU%20Index_rev_020708.pdf

My test came back positive. I'm not sure what is means...have an appt in April to discuss w/ my dr.


Thanks for answering my question. I'm into my ninth week with hives. Just curious....did your hives just gradually start disappearing, now that you say you don't really have them much anymore? That would be so nice to have happen!


I would say yes they gradually started disappearing. Less and less each night. Hopefully yours will go away like mine did and won't come back!
Anonymous
I'm a physician with urticaria since receiving h1n1 5 months ago. Wish I hadn't taken it!!!!
Anonymous
Anonymous wrote:I'm a physician with urticaria since receiving h1n1 5 months ago. Wish I hadn't taken it!!!!


Thanks for sharing, Doc.

Why is this vaccine different from past vaccines? (Or did the others cause hives, too, which weren't reported?)
Anonymous
I'm a physician with urticaria since receiving h1n1 5 months ago. Wish I hadn't taken it!!!!


As a physician....could you shed light on to why so many doctors are reluctant to concede that the hives could have anything to do with the H1N1 vaccine?

(I've had hives for over three months now.... and when I came down with a virus with cough and fever last week, the hives intensified and nearly covered my legs chest, and arms. Even had them around my eyes, too....making me look like a raccoon.)
Anonymous

Just to add to the post above....the hives that covered me last week when I was ill have dwindled to very few hives this week. I'm hopeful that maybe the virus or the fever jolted them AWAY and maybe their run is over, at least for the time being!
Anonymous
So, do y'all think we've reached the point where this anecdotal evidence can be considered statistically significant? I'm certainly glad I didn't get vaccinated this year. And I didn't get the flu, either.
Anonymous
Anonymous wrote:So, do y'all think we've reached the point where this anecdotal evidence can be considered statistically significant? I'm certainly glad I didn't get vaccinated this year. And I didn't get the flu, either.

Given the huge number of views of this thread (more than I've ever seen on any DCUM thread by a factor of 10 or so), and the fact that this thread is the very top Google return for the search "h1n1 vaccine hives," I assume that posts here are not largely not from usual readers of this board. If our sample is not of DC Urban Moms but a self-selected group of people who fear a connection between hives and the vaccine, there's no way these are statistically significant.
Anonymous
Lots of assumptions there. I think these anecdotes are statistically significant. 12 pages of people reporting a connection between getting the vaccine and suffering hives means something to me.
Anonymous
For the record, as long as you have sampling bias (like, say, people who self-select to post on a bulletin board) you CAN NOT have statistical significance. It's not a random sample, therefor absolute numbers of posts are irrelevent. And this leaves aside the fact that on an anonymous bulletin board you can't know how many actual posters there were...
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