White Blood Cells 40,000

[Anonymous]

Thinking of your friend. And sending all the hope in the world.

[Anonymous]

Any updates, OP?

[Anonymous]

Anonymous wrote:Thinking of your friend. And sending all the hope in the world.

thank you so much

[Anonymous]

Anonymous wrote:Any updates, OP?

A childrens hospital today diagnosed AML leukemia. I'm not sure if they could test bone marrow or tissue same day, so I'm not sure if this is a preliminary diagnosis or for certain. Parents are devastated but hopeful.

Friend is not sure how to coordinate a second opinion on best treatment, and from where. Does the current hospital oncologist reach out to a facility or doctor of parent's choice at their request? And where/who would be best to chose for it? Who is the best for children's leukemia?

[Anonymous]

My kid’s count was that high with Kawasaki Disease. Spent 17 days in the hospital because it took them so long to figure out what it was

[Anonymous]

Anonymous wrote:

Anonymous wrote:Any updates, OP?

A childrens hospital today diagnosed AML leukemia. I'm not sure if they could test bone marrow or tissue same day, so I'm not sure if this is a preliminary diagnosis or for certain. Parents are devastated but hopeful.

Friend is not sure how to coordinate a second opinion on best treatment, and from where. Does the current hospital oncologist reach out to a facility or doctor of parent's choice at their request? And where/who would be best to chose for it? Who is the best for children's leukemia?

This is very well meaning but the hospital has a dedicated care coordinator who helps guide parents in this process. Don’t try to crowdsource a healthcare plan on the limited info you have, just be the friend and provide emotional support.

[Anonymous]

My count (49M) was near there when I had Lyme disease.

Prayers for the child.

My little sister had a friend in 4th grade die of leukemia and it was horrific. A few days before she passed she told her mom and dad not to worry. She told them to cherish their time here with each other and her sister and that she would see them on the other side. She was dying and what was on her mind was her family's mental health. This was 35 years ago and it still puts tears down my face. She was 9.

[Anonymous]

Me again- posted before I saw diagnosis. Sucks.

I'm picturing your friend's child healing in pure bright light and going on to live a full life with a beautiful child of their own.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Any updates, OP?

A childrens hospital today diagnosed AML leukemia. I'm not sure if they could test bone marrow or tissue same day, so I'm not sure if this is a preliminary diagnosis or for certain. Parents are devastated but hopeful.

Friend is not sure how to coordinate a second opinion on best treatment, and from where. Does the current hospital oncologist reach out to a facility or doctor of parent's choice at their request? And where/who would be best to chose for it? Who is the best for children's leukemia?

This is very well meaning but the hospital has a dedicated care coordinator who helps guide parents in this process. Don’t try to crowdsource a healthcare plan on the limited info you have, just be the friend and provide emotional support.

Last time I sat back with a relative with an aggressive cancer treated at an unnamed DC hospital, rang bell, had no idea how terminal it was (I knew it was) - they died, sort of unexpectedly, from an incredibly common cancer. now I have less trust

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Any updates, OP?

A childrens hospital today diagnosed AML leukemia. I'm not sure if they could test bone marrow or tissue same day, so I'm not sure if this is a preliminary diagnosis or for certain. Parents are devastated but hopeful.

Friend is not sure how to coordinate a second opinion on best treatment, and from where. Does the current hospital oncologist reach out to a facility or doctor of parent's choice at their request? And where/who would be best to chose for it? Who is the best for children's leukemia?

This is very well meaning but the hospital has a dedicated care coordinator who helps guide parents in this process. Don’t try to crowdsource a healthcare plan on the limited info you have, just be the friend and provide emotional support.

Last time I sat back with a relative with an aggressive cancer treated at an unnamed DC hospital, rang bell, had no idea how terminal it was (I knew it was) - they died, sort of unexpectedly, from an incredibly common cancer. now I have less trust

? I don’t understand.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Any updates, OP?

A childrens hospital today diagnosed AML leukemia. I'm not sure if they could test bone marrow or tissue same day, so I'm not sure if this is a preliminary diagnosis or for certain. Parents are devastated but hopeful.

Friend is not sure how to coordinate a second opinion on best treatment, and from where. Does the current hospital oncologist reach out to a facility or doctor of parent's choice at their request? And where/who would be best to chose for it? Who is the best for children's leukemia?

Children's Fairfax for a second opinion if there is time. A good friend's son was treated there and considering the circumstances had a good experience. He is ok now.

[Anonymous]

Anonymous wrote:My count (49M) was near there when I had Lyme disease.

Prayers for the child.

My little sister had a friend in 4th grade die of leukemia and it was horrific. A few days before she passed she told her mom and dad not to worry. She told them to cherish their time here with each other and her sister and that she would see them on the other side. She was dying and what was on her mind was her family's mental health. This was 35 years ago and it still puts tears down my face. She was 9.

Honestly, these stories are not helpful.

[Anonymous]

Anonymous wrote:My count (49M) was near there when I had Lyme disease.

Prayers for the child.

My little sister had a friend in 4th grade die of leukemia and it was horrific. A few days before she passed she told her mom and dad not to worry. She told them to cherish their time here with each other and her sister and that she would see them on the other side. She was dying and what was on her mind was her family's mental health. This was 35 years ago and it still puts tears down my face. She was 9.

Bawling. So wise beyond her years.

[Anonymous]

Anonymous wrote:

Anonymous wrote:My count (49M) was near there when I had Lyme disease.

Prayers for the child.

My little sister had a friend in 4th grade die of leukemia and it was horrific. A few days before she passed she told her mom and dad not to worry. She told them to cherish their time here with each other and her sister and that she would see them on the other side. She was dying and what was on her mind was her family's mental health. This was 35 years ago and it still puts tears down my face. She was 9.

Honestly, these stories are not helpful.

Agree

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:My count (49M) was near there when I had Lyme disease.

Prayers for the child.

My little sister had a friend in 4th grade die of leukemia and it was horrific. A few days before she passed she told her mom and dad not to worry. She told them to cherish their time here with each other and her sister and that she would see them on the other side. She was dying and what was on her mind was her family's mental health. This was 35 years ago and it still puts tears down my face. She was 9.

Honestly, these stories are not helpful.

Agree

Two Karens in one thread. What are the odds?