DCUM parents with adult children on the autism spectrum, what does your child still struggle with the most as an adult?

Anonymous
Been a bit curious here on considering there isn't much posts about autistic adults in this forum. But I would love to see a different amount of responses of parents of autistic children who are now adults (18+ to be exact or are now in college).
Anonymous
My autistic son at 20 draws furries for the weirdest things.
Anonymous
Seizures, unfortunately. Between that and poor spatial reasoning, I'm not sure a driver's license will ever be a real option.
Anonymous
Anxiety, even with therapy and medication
Anonymous
Anonymous wrote:Seizures, unfortunately. Between that and poor spatial reasoning, I'm not sure a driver's license will ever be a real option.


Seizures and poor spatial reasoning can be symptoms of folate deficiency. You should have him tested for serum folate, for mthfr mutations and for Fraa. I would also seek out any other known caused of folate deficiency from a specialist.
Having adequate blood folate doesnt rule out problems in enzyme activity or other genetic or immune system disorders that can cause poor utilization of folate.
Anonymous
Anonymous wrote:
Anonymous wrote:Seizures, unfortunately. Between that and poor spatial reasoning, I'm not sure a driver's license will ever be a real option.


Seizures and poor spatial reasoning can be symptoms of folate deficiency. You should have him tested for serum folate, for mthfr mutations and for Fraa. I would also seek out any other known caused of folate deficiency from a specialist.
Having adequate blood folate doesnt rule out problems in enzyme activity or other genetic or immune system disorders that can cause poor utilization of folate.


Yeah, unfortunately we know the cause-- it's a congenital malformation. Honestly, it could have turned out so much worse than what it is.
Anonymous
Still a very young adult, but the prevalence of sarcasm and other indirect communication styles are a challenge. She’s in STEM so my help is that there are plenty of other people who just want to be very direct and clear.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Seizures, unfortunately. Between that and poor spatial reasoning, I'm not sure a driver's license will ever be a real option.


Seizures and poor spatial reasoning can be symptoms of folate deficiency. You should have him tested for serum folate, for mthfr mutations and for Fraa. I would also seek out any other known caused of folate deficiency from a specialist.
Having adequate blood folate doesnt rule out problems in enzyme activity or other genetic or immune system disorders that can cause poor utilization of folate.


Yeah, unfortunately we know the cause-- it's a congenital malformation. Honestly, it could have turned out so much worse than what it is.


Interesting we have a family memeber with congenital malformation caused by folate deficiency (spina bifida). They are also autistic.
Anonymous
It's kind of the same stuff, just adult edition. Depression, anxiety, not understanding social cues, trouble relating to peers, loneliness, trouble interpreting written directions if they're ambiguous, executive function, task initiation, difficulty planning time, slow processing.

Anonymous
Anonymous wrote:Still a very young adult, but the prevalence of sarcasm and other indirect communication styles are a challenge. She’s in STEM so my help is that there are plenty of other people who just want to be very direct and clear.


I could have written this about our college aged DD. Also real difficulty dealing with requests that she finds too vague like “tell me about yourself”. She has a strong preference for scripting when it comes to new situations.
Anonymous
Anonymous wrote:
Anonymous wrote:Still a very young adult, but the prevalence of sarcasm and other indirect communication styles are a challenge. She’s in STEM so my help is that there are plenty of other people who just want to be very direct and clear.


I could have written this about our college aged DD. Also real difficulty dealing with requests that she finds too vague like “tell me about yourself”. She has a strong preference for scripting when it comes to new situations.


I'm an autistic adult and in job interviews when I've gotten asked that I open with "Well, I was born in Harlem during a snowstorm ..." and then we both laugh at the cliche, before I launch into a prepped snippet of what would make me a good employee and a bit about the range of experience I have based off my resume. So it brings it back to concrete facts.
Anonymous
Anonymous wrote:
Anonymous wrote:Still a very young adult, but the prevalence of sarcasm and other indirect communication styles are a challenge. She’s in STEM so my help is that there are plenty of other people who just want to be very direct and clear.


I could have written this about our college aged DD. Also real difficulty dealing with requests that she finds too vague like “tell me about yourself”. She has a strong preference for scripting when it comes to new situations.


Scripting is ok! She may need adult stories to choose from.like the pp with the great Harlem line!
Anonymous
DS at 23 still struggles with social communications. Tried everything to help him with social interactions in person but he is always preferred to interact with his friends he has met online on the internet.
Anonymous
Anonymous wrote:DS at 23 still struggles with social communications. Tried everything to help him with social interactions in person but he is always preferred to interact with his friends he has met online on the internet.


And strange thing is, I met one of his online friends because they were close via location. It was interesting, but it went fairly well.
Anonymous
No college, no job, no driver's license, living at home.

Most of the ASD young adults I know are in the same situation.
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