I think you've caused her to become ashamed of her toilet habits, she's embarassed and insecure. I think it's time to back off. I think she's traumatized. When I was young, around your daughters age, I went to the bathroom and almost caused the toilet to clog and I panicked and called my mom for help and she humiliated me for it and yelled at me. I was seriously so embarassed and ashamed and worried that it would happen again that I stopped being able to use the bathroom at home. I had terrible anxiety and didn't want to use the toilet at all. It took years, but I got past it. Do you embarass your daughter and yell at her about this? Because that will not help it get better. You should leave her alone, in my opinion. |
| Agree. You should not traumatize her further. Nobody like to shit in her pants unless they are not normal. Let her be. She will deal with it. If she needs help she will come to you. The I don't know is already a message to you that she doesn't want to talk about it with you |
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OP, these people don't know encopresis. Are you from the DC area? I posted about my DS's encropesis in the Special Needs forum last winter/spring. The "I don't know" really brought back memories. Sounds like you need a G/I psych with whom you can build a strong relationship. Have you been to Children's? They have a psychiatrist who works with Dr. Kerzner, who handles a lot of encopresis cases.
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OP, I think people here aren't familiar with the medical problem called encopresis. Once the problem starts (whatever the original cause of withholding poop) it can become a vicious cycle and "just don't pressure her" isn't going to fix the problem. You are seeing all the right specialists so I would be very wary of taking advice form people here who don't know what this condition is, what causes it, and how deeply entrenched the behavior can get.
That said, it does sound like on top of the encopresis you are dealing with some very understandable 12 year old desire for autonomy push back. I would definitely stop asking her to explain why she is doing whatever she is doing. She says "I don't know" because she DOESN'T know. This behavior has become normal to her. I would honestly treat her the same way you treat an anorexic. Eating and pooping are both supposed to be natural, yet for anorexics the act of eating becomes disordered. The best treatment for anorexia is a family based approach -- something called Maudlesy I think. I would look into it and modify it for, well, the reverse. You need to control what medicines she takes. I also think you may need to remove her from school until you can be sure she isn't drinking milk (if her doctor has said no milk) and if she is refusing to poop on the toilet before school. |
| OP I know nothing about this. Just a few thoughts from a lay person. Are you making sure she is hydrating A LOT? My 12 y.o. with mild special needs needs to be reminded to hydrate. Have her drink water or juice before school and then after school, many glasses of fluids until bedtime. A friend found castor oil effectived for her younger daughter--do you use oils, or maybe fish oils? Does she get regular exercise and plenty of it. Since nothing is working, I would try backing off completely. In fact, you could tell her, I am going to back off but if I don't see an improvement we will go back to the GI doc in 3 months. Or compromise and say I will back off as long as you take your miralax without argument. Stop the enemas. Kids that age are so private about their private areas. They give such a creepy feeling. They aren't working so let it go. Serve high fiber foods. Also can't you just not give her money to buy milk at school? Maybe send an appealing substitute, like a juice or milk substitute like almond milk box or something. IF these compromises don't work, see a skilled cognitive-behavioral therapist and work as a family on the behaviors and reward systems. I second the suggestion of the Kazdin Method. This is the clearest explication of the behavioral approach to behavior change. |
| That's the problem, she won't accept any compromises. |
She will just hold it in and than poop in her pants. |
| I'm so sorry OP. I am at the beginning of this journey with a four year old. No advice, just wanted to lend support. |
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if you arent familiar with encopresis you totally cannot relate to this post.
if you are *like me*....you know the hell that this is. OP...my son is 13 and we have been dealing with this since age 3. I go back and forth between feeling furious, trying evreything under the sun, feeling bad for him, feeling guilty...its a total nightmare. we are seeing a new specialist next month so i am really holding my breath. we too have tried everything under the sun. nothing works. its so awful. i take solace ONLY in knowing that everyone i speak to says that it never lasts forever. eventually, the kid outgrows it. you dont hear about 29 year olds with encopresis. ugh, i know how awful it is!! |
| Maybe, since she is 12, you should let solving this be her achievement. |
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I'm sorry OP- I don't have anything constructive to add except that I have a son currently being evaluated for special needs- I do know what it's like to feel frustrated, guilty because I feel frustrated, and sad for my kid.
The special needs forum is a good place to post- you'll receive educated and probably sympathetic responses. |
Good advice here. |
| I would take her for CBT (cognitive behavioral therapy). With encores is there is generally an underlying issue and you described it as "she won't compromise ", she needs to be seen. If you have tried therapy in the past, try it again, it sounds like she still needs it. |
| Could you buy her diapers that she can use when she needs to poop? |
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http://www.hopkinschildrens.org/chronic-constipation-clinic.aspx
Take her to Johns Hopkins Chronic Constipation Clinic |