OP here. The only reason my sister got the school district to do what she wanted is because she hired an attorney and threatened an expensive lawsuit. She should not have done that and the district would have placed my niece in the school they wanted to. I don't know why she thinks it's a bad school. My sister now part of a non-profit in our area that is dedicated to suing local school districts. They provide free legal services to parents and my sister encourages other parents of special needs to "advocate" for their child. "Advocate" means to harass and pressure the school until they they cave into the parents demands. The idea is that parents know more about their child's disability than professionals with degrees and years of education. This is a common theme in the special needs parent world that isn't seen anywhere else. Imagine if diabetics told their doctors "I know my body best and I'm telling you this dose of insulin isn't right for me." They'd all be dead. Imagine if cancer patients told their doctors they don't need the chemo the doctor is recommending. Imagine if an asthmatic pressured their doctor to prescribe a different inhaler and won't stop harassing the doctor until their preferred inhaler is prescribed. This is exactly what Beata Kowalski and my sister did. Would you tell your CPA how to do your taxes? Would you tell your mechanic how to fix your car? After all, it's your car and you know what it needs best. No. But in the special needs parent world, this type behavior is encouraged and celebrated. |
OP here. Did you report the doctors who failed to diagnose your son's diabetes to the state medical board? You should. The state will definitely take disciplinary action, despite what others on this thread are saying. |
No, they absolutely will not take disciplinary action for failure to diagnose that didn't result in death or serious injury. Basically never happens. |
+1 agree with everything above and that OP is very naive. OP level of confidence in a "state investigation" is astounding. |
Disagree, OP is a troll. A doctor would know that state medical boards etc don't operate in the way described. |
What planet are you living on because none of this is true ! |
Your “imagine if” examples are conveniently chosen in that they are situations where the correct course is likely to be obvious. That’s not always the case—and it’s particularly not always the case in the diagnosis Beata Kowalski’s daughter has. If you haven’t been in a situation in which you know more about your dx than your provider, consider yourself lucky and maybe judge people who have a little less. |
You are incredibly ignorant about children with disabilities, their needs, and how schools refuse or fail to follow laws related to IDEA. I would cut you out of my life if you were my sister. How dare you judge her when it is clear you understand none of it. There is nothing worse than an idiot with strong opinions about something they know nothing about. |
| OP is so wildly ignorant that it’s almost astonishing to see. I feel so sorry for her poor sister, who sounds smart. |
Op’s assumptions that public schools do the right thing for children with disabilities and follow the laws show her embarrassing ignorance. In my county the school system has been denying children basic services for decades and parents have to have advocates. It’s sickening to read her comments disparaging her sister and others for advocating for their children. I feel so sorry for her sister. |
This is so true. Hospitals aren't required to fire anyone and they don't fire incompetent doctors. Their cases go to M&M and they get discussed, but hospitals cannot tell a doctor they are too old or too incompetent to practice. To get them away from patient care they will promote them to fake positions where they are "supervisors" and "teachers". The way most hospitals get rid of old doctors who refuse to retire is through breech of contract when they don't meet their required hours and patient care metrics. It's still not easy. |
DP. Then why did JHU continue the treatment? |
It makes perfect sense that the mother was mentally fragile. She had a daughter with an expensive, rare, probably incurable and misdiagnosed disease. She was probably worrying, sleeping little and working overtime to cover med bills. The hospital could have allowed the mother supervised visits once it was clear that the child was not getting better even when removed from her mother's care. |
Maybe watch the trial before you jump to conclusions. The reason for the verdict is exactly because the hospital has zero protocols and let one doctor and one hospital employed social worker go roque. They did not just misdiagnose, they isolated a 10 year old for 90 days and would not let her even talk to other children, all while causing the child immense pain and having her defecate herself because they thought she was faking her pain. This was beyond gross negligence. It was abuse. The hospital needed to pay, to give hospitals reason to make sure they have guardrails in place so such abuse does not happen again. Watch the trial before you make judgements. |
|
FYI there’s no way the family directly got all $211 million. The lawyers took at least $100 million and insurance another $50 million if not more due to the length of the hospital stay, extra medication, extra attention and “treatment” given the room she stayed in, and more. Given how lengthy the legal process and due diligence was, the law firm may have taken more. I’d be surprised if the firm itself won’t ask for another appeal to seek more money as the healthcare industry is lucrative (I guess that’s where the sexual harrassment/assault case plays in, so I guess they already have started to seek more money). I’d say the family only received $50 million give or take. Sounds a lot until you realize where that money has to go: protection of the family in case of further harm, increased insurance premium, new medical costs associated with the trauma of Maya, etc.
Cases with big payouts in the headlines don’t consider the cost of law firms, especially large ones who charge $800/lawyer assigned/billable hour, and that is average. |