Getting on GLP-1 after doctor says no

Anonymous
Anonymous wrote:
Anonymous wrote:https://www.pennmedicine.org/physicians-hub/physician-article/implications-of-glp-1-medications-for-eating-disorder-care

“There’s no protocol in place to screen for eating disorders prior to prescribing GLP-1 receptor agonists,” says Dr. Boswell. “In addition, those taking these medications are not monitored for the psychological, social, or medical effects of malnutrition, which can be an issue at any body size.”


BS!!!! I go to my doctor every three months and do bloodwork twice a year. Stop trying to invent things to fit your narrative.


You missed the point. Were you screened for an eating disorder?
Anonymous
Anonymous wrote:
Anonymous wrote:https://www.pennmedicine.org/physicians-hub/physician-article/implications-of-glp-1-medications-for-eating-disorder-care

“There’s no protocol in place to screen for eating disorders prior to prescribing GLP-1 receptor agonists,” says Dr. Boswell. “In addition, those taking these medications are not monitored for the psychological, social, or medical effects of malnutrition, which can be an issue at any body size.”


BS!!!! I go to my doctor every three months and do bloodwork twice a year. Stop trying to invent things to fit your narrative.


NP. I had anorexia nervosa for 20+ years and not a single one of my doctors noticed. Nobody ever asked why I was 20-30 lbs underweight. And I had breast cancer in that span! Not one question from all the medical professionals I encountered. I kept waiting to be called out on my weight and it never happened. Which reinforced my deranged feelings that what I was doing was "not that bad." When I developed osteoporosis at 35, still no questions. The anorexia went from mild to moderate to severe. A week before I went to inpatient treatment, one of my doctors looked at me in a gown and told me I looked "great." When I got to the treatment program, they flagged various things in my bloodwork that were indicative of an eating disorder/malnutrition. I was confused and pointed out that these things had been showing up for several years, and nobody said anything. I was told that this is not uncommon and most doctors are horribly uneducated about eating disorders. If you're not obese, you must be fine.

I assume now that with a diagnosis of severe anorexia nervosa now all over my records, I will never be able to get GLP-1s and if I do, it's an indicator that the doctor is incompetent. But something like 80% of eating disorders go undiagnosed. If there is no mechanism at all to catch this and doctors don't know what they're doing, free access could spell disaster for many people.
Anonymous
Anonymous wrote:
Anonymous wrote:https://www.pennmedicine.org/physicians-hub/physician-article/implications-of-glp-1-medications-for-eating-disorder-care

“There’s no protocol in place to screen for eating disorders prior to prescribing GLP-1 receptor agonists,” says Dr. Boswell. “In addition, those taking these medications are not monitored for the psychological, social, or medical effects of malnutrition, which can be an issue at any body size.”


BS!!!! I go to my doctor every three months and do bloodwork twice a year. Stop trying to invent things to fit your narrative.


Op isn’t intending to though. They want to know how to handle their doc while going against medical orders. You are not the same.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:She probably knows the realty that for 15lbs you will use it to lose weight but are unlikely to rally stay on it for life which means you will just quickly regain the weight the minute you go off. Because if you can not lose the weight through diet and exercise you will not maintain it that way and need to be on these medications for LIFE.

Especially for 15 pounds. You can lose that over a few months with small dietary changes. Why take the nuclear option for 15 pounds? That doesn't bode well for future weight management if you have to stop the glp or if it becomes ineffective for you.


That's not true though. Not op but it took me months and months to lose a couple pounds. That was with great frustration too. With GLP-1s? Down to almost normal weight fairly rapidly, and I am eating better than ever and have actually become athletic and fit. I often wonder what women here think losing 15lbs in middle age is really that easy with "small changes".


You miss the side effects part? Sure, it's not "easy", but it's definitely doable without drugs.


Definitely doable according to whom? Your experienced as a middle aged woman? Reality is there is nothing "nuclear" about GLP-1s, quite the opposite: it makes what seemed like climbing Mount Everest ever so slowly and with great difficulty feel like a normal, brisk run around the neighborhood. It's actually so liberating to see eating well and exercising pay off and it feels a lot more sustainable. As for side effects, they are something every med can come with, but thankfully most people do not experience serious side effects or even mild ones from most meds. I personally have none other than the mildest nausea here and there.


The potential longer term side effects like gallbladder issues, pancreatitis, bowel obstruction and paralysis as well as thyroid cancer, kidney damage, eye problems, and potential heart issues since the heart rate goes up.

These side effects are still being studied and people whose health will improve dramatically should take GLP-1s, but if someone is a healthy weight and just wants to be skinnier without working out or eating differently the potential.side effects probably don’t support the risks. I have a family member on a GLP-1 and they have a history of cancer and stomach issues (diverticulitis). They wanted to lose about 15 pounds and have and want to keep taking it forever (they are early 70s). Obviously it’s between them and their doctor, but I question whether the potential long term risks justify that. Is losing 10 pounds worth battling thyroid cancer or getting pancreatitis?
Anonymous
This sub-reddit on the topic of patient GLP-1 issues, which was started last year, is potentially eye opening: https://www.reddit.com/r/medicine/comments/1i4ehrv/what_is_the_worst_sideeffectcomplications_of/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

Pancreatitis seems to be the most prevalent in research (7-10%) and on this sub-reddit, but lots of other gnarly stuff.
Anonymous
Anonymous wrote:This sub-reddit on the topic of patient GLP-1 issues, which was started last year, is potentially eye opening: https://www.reddit.com/r/medicine/comments/1i4ehrv/what_is_the_worst_sideeffectcomplications_of/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

Pancreatitis seems to be the most prevalent in research (7-10%) and on this sub-reddit, but lots of other gnarly stuff.


By all means, let's use Reddit for our medical advice and research.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:She probably knows the realty that for 15lbs you will use it to lose weight but are unlikely to rally stay on it for life which means you will just quickly regain the weight the minute you go off. Because if you can not lose the weight through diet and exercise you will not maintain it that way and need to be on these medications for LIFE.

Especially for 15 pounds. You can lose that over a few months with small dietary changes. Why take the nuclear option for 15 pounds? That doesn't bode well for future weight management if you have to stop the glp or if it becomes ineffective for you.


That's not true though. Not op but it took me months and months to lose a couple pounds. That was with great frustration too. With GLP-1s? Down to almost normal weight fairly rapidly, and I am eating better than ever and have actually become athletic and fit. I often wonder what women here think losing 15lbs in middle age is really that easy with "small changes".


You miss the side effects part? Sure, it's not "easy", but it's definitely doable without drugs.


Definitely doable according to whom? Your experienced as a middle aged woman? Reality is there is nothing "nuclear" about GLP-1s, quite the opposite: it makes what seemed like climbing Mount Everest ever so slowly and with great difficulty feel like a normal, brisk run around the neighborhood. It's actually so liberating to see eating well and exercising pay off and it feels a lot more sustainable. As for side effects, they are something every med can come with, but thankfully most people do not experience serious side effects or even mild ones from most meds. I personally have none other than the mildest nausea here and there.


The potential longer term side effects like gallbladder issues, pancreatitis, bowel obstruction and paralysis as well as thyroid cancer, kidney damage, eye problems, and potential heart issues since the heart rate goes up.

These side effects are still being studied and people whose health will improve dramatically should take GLP-1s, but if someone is a healthy weight and just wants to be skinnier without working out or eating differently the potential.side effects probably don’t support the risks. I have a family member on a GLP-1 and they have a history of cancer and stomach issues (diverticulitis). They wanted to lose about 15 pounds and have and want to keep taking it forever (they are early 70s). Obviously it’s between them and their doctor, but I question whether the potential long term risks justify that. Is losing 10 pounds worth battling thyroid cancer or getting pancreatitis?


So the fat people see their heart risks and weight and diabetes decrease, but the fluffy people get targeted for vanity side-effects and get cancer. Sounds scientific.
Anonymous
Anonymous wrote:
Anonymous wrote:This sub-reddit on the topic of patient GLP-1 issues, which was started last year, is potentially eye opening: https://www.reddit.com/r/medicine/comments/1i4ehrv/what_is_the_worst_sideeffectcomplications_of/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

Pancreatitis seems to be the most prevalent in research (7-10%) and on this sub-reddit, but lots of other gnarly stuff.


By all means, let's use Reddit for our medical advice and research. :roll: :roll: :roll: :roll: :roll:


It’s a subreddit where doctors are sharing GLP-1 horror stories. Just like the big law subreddit shares industry horror stories.

It’s pretty stark and given how prevalent usage is now and how common it is for people to play doctor with the dosage, the side effects - pancreatitis, thyroid cancer, perforated bowel, gastroperesis, and others will increase. One dr also predicting more stomach cancer based on their observations about the medicine.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:She probably knows the realty that for 15lbs you will use it to lose weight but are unlikely to rally stay on it for life which means you will just quickly regain the weight the minute you go off. Because if you can not lose the weight through diet and exercise you will not maintain it that way and need to be on these medications for LIFE.

Especially for 15 pounds. You can lose that over a few months with small dietary changes. Why take the nuclear option for 15 pounds? That doesn't bode well for future weight management if you have to stop the glp or if it becomes ineffective for you.


That's not true though. Not op but it took me months and months to lose a couple pounds. That was with great frustration too. With GLP-1s? Down to almost normal weight fairly rapidly, and I am eating better than ever and have actually become athletic and fit. I often wonder what women here think losing 15lbs in middle age is really that easy with "small changes".


You miss the side effects part? Sure, it's not "easy", but it's definitely doable without drugs.


Definitely doable according to whom? Your experienced as a middle aged woman? Reality is there is nothing "nuclear" about GLP-1s, quite the opposite: it makes what seemed like climbing Mount Everest ever so slowly and with great difficulty feel like a normal, brisk run around the neighborhood. It's actually so liberating to see eating well and exercising pay off and it feels a lot more sustainable. As for side effects, they are something every med can come with, but thankfully most people do not experience serious side effects or even mild ones from most meds. I personally have none other than the mildest nausea here and there.


The potential longer term side effects like gallbladder issues, pancreatitis, bowel obstruction and paralysis as well as thyroid cancer, kidney damage, eye problems, and potential heart issues since the heart rate goes up.

These side effects are still being studied and people whose health will improve dramatically should take GLP-1s, but if someone is a healthy weight and just wants to be skinnier without working out or eating differently the potential.side effects probably don’t support the risks. I have a family member on a GLP-1 and they have a history of cancer and stomach issues (diverticulitis). They wanted to lose about 15 pounds and have and want to keep taking it forever (they are early 70s). Obviously it’s between them and their doctor, but I question whether the potential long term risks justify that. Is losing 10 pounds worth battling thyroid cancer or getting pancreatitis?


So the fat people see their heart risks and weight and diabetes decrease, but the fluffy people get targeted for vanity side-effects and get cancer. Sounds scientific.



It’s risk-reward. The reward for someone who wants to lose 10 vanity pounds may not be worth the risk (thyroid cancer). That would change for someone who is severely obese and suffering from related symptoms.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:She probably knows the realty that for 15lbs you will use it to lose weight but are unlikely to rally stay on it for life which means you will just quickly regain the weight the minute you go off. Because if you can not lose the weight through diet and exercise you will not maintain it that way and need to be on these medications for LIFE.

Especially for 15 pounds. You can lose that over a few months with small dietary changes. Why take the nuclear option for 15 pounds? That doesn't bode well for future weight management if you have to stop the glp or if it becomes ineffective for you.


That's not true though. Not op but it took me months and months to lose a couple pounds. That was with great frustration too. With GLP-1s? Down to almost normal weight fairly rapidly, and I am eating better than ever and have actually become athletic and fit. I often wonder what women here think losing 15lbs in middle age is really that easy with "small changes".


You miss the side effects part? Sure, it's not "easy", but it's definitely doable without drugs.


Definitely doable according to whom? Your experienced as a middle aged woman? Reality is there is nothing "nuclear" about GLP-1s, quite the opposite: it makes what seemed like climbing Mount Everest ever so slowly and with great difficulty feel like a normal, brisk run around the neighborhood. It's actually so liberating to see eating well and exercising pay off and it feels a lot more sustainable. As for side effects, they are something every med can come with, but thankfully most people do not experience serious side effects or even mild ones from most meds. I personally have none other than the mildest nausea here and there.


The potential longer term side effects like gallbladder issues, pancreatitis, bowel obstruction and paralysis as well as thyroid cancer, kidney damage, eye problems, and potential heart issues since the heart rate goes up.

These side effects are still being studied and people whose health will improve dramatically should take GLP-1s, but if someone is a healthy weight and just wants to be skinnier without working out or eating differently the potential.side effects probably don’t support the risks. I have a family member on a GLP-1 and they have a history of cancer and stomach issues (diverticulitis). They wanted to lose about 15 pounds and have and want to keep taking it forever (they are early 70s). Obviously it’s between them and their doctor, but I question whether the potential long term risks justify that. Is losing 10 pounds worth battling thyroid cancer or getting pancreatitis?


So the fat people see their heart risks and weight and diabetes decrease, but the fluffy people get targeted for vanity side-effects and get cancer. Sounds scientific.


You sound more reactive than reasonable. It’s a risky medicine. Your body your choice though. Include your medical team.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:She probably knows the realty that for 15lbs you will use it to lose weight but are unlikely to rally stay on it for life which means you will just quickly regain the weight the minute you go off. Because if you can not lose the weight through diet and exercise you will not maintain it that way and need to be on these medications for LIFE.

Especially for 15 pounds. You can lose that over a few months with small dietary changes. Why take the nuclear option for 15 pounds? That doesn't bode well for future weight management if you have to stop the glp or if it becomes ineffective for you.


That's not true though. Not op but it took me months and months to lose a couple pounds. That was with great frustration too. With GLP-1s? Down to almost normal weight fairly rapidly, and I am eating better than ever and have actually become athletic and fit. I often wonder what women here think losing 15lbs in middle age is really that easy with "small changes".


You miss the side effects part? Sure, it's not "easy", but it's definitely doable without drugs.


Definitely doable according to whom? Your experienced as a middle aged woman? Reality is there is nothing "nuclear" about GLP-1s, quite the opposite: it makes what seemed like climbing Mount Everest ever so slowly and with great difficulty feel like a normal, brisk run around the neighborhood. It's actually so liberating to see eating well and exercising pay off and it feels a lot more sustainable. As for side effects, they are something every med can come with, but thankfully most people do not experience serious side effects or even mild ones from most meds. I personally have none other than the mildest nausea here and there.


The potential longer term side effects like gallbladder issues, pancreatitis, bowel obstruction and paralysis as well as thyroid cancer, kidney damage, eye problems, and potential heart issues since the heart rate goes up.

These side effects are still being studied and people whose health will improve dramatically should take GLP-1s, but if someone is a healthy weight and just wants to be skinnier without working out or eating differently the potential.side effects probably don’t support the risks. I have a family member on a GLP-1 and they have a history of cancer and stomach issues (diverticulitis). They wanted to lose about 15 pounds and have and want to keep taking it forever (they are early 70s). Obviously it’s between them and their doctor, but I question whether the potential long term risks justify that. Is losing 10 pounds worth battling thyroid cancer or getting pancreatitis?


So the fat people see their heart risks and weight and diabetes decrease, but the fluffy people get targeted for vanity side-effects and get cancer. Sounds scientific.



It’s risk-reward. The reward for someone who wants to lose 10 vanity pounds may not be worth the risk (thyroid cancer). That would change for someone who is severely obese and suffering from related symptoms.


Does anyone have the numbers? How many people have actually gotten thyroid cancer as a result of taking these drugs? Are we just throwing that around as a way of scaring people needlesly?

Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:This sub-reddit on the topic of patient GLP-1 issues, which was started last year, is potentially eye opening: https://www.reddit.com/r/medicine/comments/1i4ehrv/what_is_the_worst_sideeffectcomplications_of/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

Pancreatitis seems to be the most prevalent in research (7-10%) and on this sub-reddit, but lots of other gnarly stuff.


By all means, let's use Reddit for our medical advice and research. :roll: :roll: :roll: :roll: :roll:


It’s a subreddit where doctors are sharing GLP-1 horror stories. Just like the big law subreddit shares industry horror stories.

It’s pretty stark and given how prevalent usage is now and how common it is for people to play doctor with the dosage, the side effects - pancreatitis, thyroid cancer, perforated bowel, gastroperesis, and others will increase. One dr also predicting more stomach cancer based on their observations about the medicine.


1) how do you know they are doctors?
2) do you understand the difference between anecdotal evidence and actual research?
3) How do you know they will increase when you don't even have the studies yet?
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Yes, and the doctor was really happy I’d lost weight and my #s were good a year later. But still wouldn’t write a prescription.


This is because they know that, somewhere down the line, there are going to be massive lawsuits when we begin to see what these drugs are really doing to people’s long term health.


Please go away with your ignorant wishful thinking. I have had my cardiologist and my primary doctor tell me that these drugs are only going to gain traction in treating many different things off label as well as for weight loss. They are pretty much a miracle drug.

Maybe it's not the heart it affects, like Fen/phen. Maybe it is the gastric system and intestines. Time will tell.

But at least they will get ten years, instead of dying of a heart attack or stroke.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:This sub-reddit on the topic of patient GLP-1 issues, which was started last year, is potentially eye opening: https://www.reddit.com/r/medicine/comments/1i4ehrv/what_is_the_worst_sideeffectcomplications_of/?utm_source=share&utm_medium=mweb3x&utm_name=mweb3xcss&utm_term=1&utm_content=share_button

Pancreatitis seems to be the most prevalent in research (7-10%) and on this sub-reddit, but lots of other gnarly stuff.


By all means, let's use Reddit for our medical advice and research. :roll: :roll: :roll: :roll: :roll:


It’s a subreddit where doctors are sharing GLP-1 horror stories. Just like the big law subreddit shares industry horror stories.

It’s pretty stark and given how prevalent usage is now and how common it is for people to play doctor with the dosage, the side effects - pancreatitis, thyroid cancer, perforated bowel, gastroperesis, and others will increase. One dr also predicting more stomach cancer based on their observations about the medicine.


1) how do you know they are doctors?
2) do you understand the difference between anecdotal evidence and actual research?
3) How do you know they will increase when you don't even have the studies yet?



I’m not spoon feeding you information. There’s lots of information out there and you can access and review whatever information you want (or not) and draw your own conclusions.

As patients doctor shop to get drugs and lie about their weight to online portals to get and continue medication there is going to be less supervision and there will probably be more issues as patients dose themselves without all the information. How many complications get back to MedWatch is unknown, but looking at the subreddit gave me an idea of the types of issues getting reported to MedWatch and it’s sobering.

The increase in issues would be because the drugs are being taken by a much more medically diverse population with far less monitoring. And because people are taking these drugs for years.

Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:Yes, and the doctor was really happy I’d lost weight and my #s were good a year later. But still wouldn’t write a prescription.


This is because they know that, somewhere down the line, there are going to be massive lawsuits when we begin to see what these drugs are really doing to people’s long term health.


Please go away with your ignorant wishful thinking. I have had my cardiologist and my primary doctor tell me that these drugs are only going to gain traction in treating many different things off label as well as for weight loss. They are pretty much a miracle drug.

Maybe it's not the heart it affects, like Fen/phen. Maybe it is the gastric system and intestines. Time will tell.

But at least they will get ten years, instead of dying of a heart attack or stroke.

You mean 10 years of being thin and then suffering painful cancer deaths?
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