Obviously knowing or not knowing the label was not the issue, so "high-functioning autism didn't used to exist" was not the issue - the issue was that the kindergarten teacher who had known hundreds and hundreds of kids had no idea what to do with my kid. Disclosing a label isn't helpful. Camp counselors just have to deal with the kids they get. That's how it works. |
this is the most ignorant comment ever. |
My good friend and her spouse are attentive parents with bachelor’s from Yale and MIT, respectively. Their 8th grader was just diagnosed with ASD and she was diagnosed with ADHad and dyslexia in 6th grade. In ES her teachers said they wanted more kids like her and “missed” her social and academic struggles. Then things fell apart in middle school. I had assumed my friend’s child had ASD, based on my interactions with her child and by just observing her interactions with her child and knowing her as well as I do. I was surprised when she told me the diagnosis was new. Social categorization is automatic, so when someone sees another person display behaviors that in the aggregate make them appear to be ND then that’s the category that they’ll be grouped into in someone’s brain on some level. A camp counselor assuming a camper is ND based on their behavior is literally just trying to account for what they are seeing and experiencing. |
Are you saying that camp counselors are more qualified than school teachers to "socially categorize" a child as ND? |
N=1 lady. |
No, it isn't ignorant. Should parents of bullies or just mean/exclusive kids have to disclose this fact to camps? The reality is that mean kid behavior can be a lot more disruptive and problematic to a school or camp environment than SN, but no one ever suggests that those parents disclose. I'm tired of the insistence that SN need to be disclosed (even to high school or college students) when they don't know the first thing about the issues. What does an ASD label show? Literally some kids with ASD might get through camp posing no issue whatsoever to other campers or counselors. This is where parents need to know their children and make a judgment call about how much to disclose. But I object strenuously to the notion that parents owe the disclosure to camps or schools without any consideration for the circumstances. |
That's just it -- they don't know a thing about it, and you not telling them means it stays that way, even if your SN child would have benefitted from someone having some insight into how to engage them better if they needed it and in order to make their camp experience better. Hope it works out for your kid, but if they have a rough experience (that you actually hear about) then I hope you'll reconsider your approach. Your strenuous objection made me laugh though -- "I strenuously object?" Is that how it works? Hm? "Objection." "Overruled." "Oh, no, no, no. No, I STRENUOUSLY object." . |
Camp counselors couldn’t “just deal” with my adhd and likely ASD level 1 kid before he was properly medicated and treated. These counselors are in high school and have 15 other kids to watch and keep safe - it’s unfair to them. It is very hard as a parent to watch your kid struggle but being in denial doesn’t help. |
And by you not disclosing, you are making it magnitudes harder for families with SN kids in camps because our kids just get lumped in with those who are perceived as "defiant or out of control" rather than what is truly happening and biases form. |
The kids have no idea what the label means. You have to describe your kid not just claim they are disabled. |
+1000 |
Personally we disclose each time but our kid is young and the camps we do are with the local parks department or with organizations familiar with our kid (e.g. the school aftercare provider's summer camp) so we aren't concerned about being discriminated against.
But there absolutely are cases where disclosure of a diagnosis can be used in a discriminatory manner. I don't have personal experience with this, but have heard from friends of it happening with private schools. Meaning, regardless of the child's individual needs, the school has a blanket policy of rejecting kids with ASD diagnoses. Most people who interact with my kid are confused when I tell them about the diagnosis. I've sensed when I disclose in some cases a nervousness about having my kid in the program. Then at the end a kind of implied questioning of it ("Larla was fine!"). We still disclose because kid is young and growing and changing so quickly that we can't be completely sure how they will do in different settings. But I can definitely see with an older kid wanting them to access camps that don't prioritize inclusivity as much but offer valuable opportunities for kids, if I feel confident my kid will do okay in that setting. |
This is true across the board, though. Obviously parents can try their best to find camps with lots of structure and in a familiar place and setting, but even those types of camps are less predictable. There is usually a wider age range and different children and it’s not as easy for the child to anticipate what will come next. |