Prostate cancer? 55 yo

[Anonymous]

Good thoughts for you both tomorrow OP! My neighbor had prostate cancer at age 45 treated with Da Vinci (robotic) prostatectomy and now no evidence of disease. He did not need any other treatments but is checked periodically.

You guys were smart to choose sedation.

[Anonymous]

Will be thinking of you both. Let us know how you're doing.

[Anonymous]

I’m sorry to hear this.

Go to Sibley, see Dr Channing Paller, who is one of their MedOncs…. She’s one of the top experts in prostate cancer in the area.

[Anonymous]

Anonymous wrote:Good thoughts for you both tomorrow OP! My neighbor had prostate cancer at age 45 treated with Da Vinci (robotic) prostatectomy and now no evidence of disease. He did not need any other treatments but is checked periodically.

You guys were smart to choose sedation.

These stories aren't useful. I know lots of people treated for breast cancer who are doing fine. I know lots of people who died. Individual outcomes may vary, so one story isn't helpful.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Good thoughts for you both tomorrow OP! My neighbor had prostate cancer at age 45 treated with Da Vinci (robotic) prostatectomy and now no evidence of disease. He did not need any other treatments but is checked periodically.

You guys were smart to choose sedation.

These stories aren't useful. I know lots of people treated for breast cancer who are doing fine. I know lots of people who died. Individual outcomes may vary, so one story isn't helpful.

But you can look at the data, read the studies, and run the nomograms and you will see an extremely high long term survival rate for most prostate cancer patients. Those things are very useful and very comforting.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Good thoughts for you both tomorrow OP! My neighbor had prostate cancer at age 45 treated with Da Vinci (robotic) prostatectomy and now no evidence of disease. He did not need any other treatments but is checked periodically.

You guys were smart to choose sedation.

These stories aren't useful. I know lots of people treated for breast cancer who are doing fine. I know lots of people who died. Individual outcomes may vary, so one story isn't helpful.

But you can look at the data, read the studies, and run the nomograms and you will see an extremely high long term survival rate for most prostate cancer patients. Those things are very useful and very comforting.

I bet the doctors aren't going to make such proclamations until they see the biopsies and staging. These kind of remarks aren't comforting to those with more serious outcomes and can be seen as making light of their valid concerns. Are you going to say this to someone like Joe Biden with Gleasons 9 and bone mets? From experience, these statements are not helpful.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Good thoughts for you both tomorrow OP! My neighbor had prostate cancer at age 45 treated with Da Vinci (robotic) prostatectomy and now no evidence of disease. He did not need any other treatments but is checked periodically.

You guys were smart to choose sedation.

These stories aren't useful. I know lots of people treated for breast cancer who are doing fine. I know lots of people who died. Individual outcomes may vary, so one story isn't helpful.

But you can look at the data, read the studies, and run the nomograms and you will see an extremely high long term survival rate for most prostate cancer patients. Those things are very useful and very comforting.

I bet the doctors aren't going to make such proclamations until they see the biopsies and staging. These kind of remarks aren't comforting to those with more serious outcomes and can be seen as making light of their valid concerns. Are you going to say this to someone like Joe Biden with Gleasons 9 and bone mets? From experience, these statements are not helpful.

You are being rude. JB is almost 80 years old. He’s at the end of natural life. OP’s husband is very young. Prostate cancer doesn’t usually have a fatal prognosis.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Good thoughts for you both tomorrow OP! My neighbor had prostate cancer at age 45 treated with Da Vinci (robotic) prostatectomy and now no evidence of disease. He did not need any other treatments but is checked periodically.

You guys were smart to choose sedation.

These stories aren't useful. I know lots of people treated for breast cancer who are doing fine. I know lots of people who died. Individual outcomes may vary, so one story isn't helpful.

But you can look at the data, read the studies, and run the nomograms and you will see an extremely high long term survival rate for most prostate cancer patients. Those things are very useful and very comforting.

I bet the doctors aren't going to make such proclamations until they see the biopsies and staging. These kind of remarks aren't comforting to those with more serious outcomes and can be seen as making light of their valid concerns. Are you going to say this to someone like Joe Biden with Gleasons 9 and bone mets? From experience, these statements are not helpful.

You are being rude. JB is almost 80 years old. He’s at the end of natural life. OP’s husband is very young. Prostate cancer doesn’t usually have a fatal prognosis.

No, I'm not. There's nothing worse than people telling you "it's a nothingburger, you'll be fine", then getting bad results. That is rude. All I'm saying is that people should refrain from proclaiming everything will be fine before this is known, especially when it's based on the experience of one neighbor.

[Anonymous]

Stay positive, OP. It's scary but it really sounds like you're doing a great job getting your husband the care he needs. Praying he has promising results.

[Anonymous]

Prayers and graces for you and you husband OP.

[Anonymous]

Anonymous wrote:OP here. Prostate biopsy is tomorrow morning. On cipro now. 6 cores on either side. 12 total. Doc is particularly concerned about one side where there is a hard mass. They are using some type of guided imagery. Sedation too so hopefully it won't be too pleasant. Recovery sounds a little rough. Will update as results come through.

Hoping for good results op.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Good thoughts for you both tomorrow OP! My neighbor had prostate cancer at age 45 treated with Da Vinci (robotic) prostatectomy and now no evidence of disease. He did not need any other treatments but is checked periodically.

You guys were smart to choose sedation.

These stories aren't useful. I know lots of people treated for breast cancer who are doing fine. I know lots of people who died. Individual outcomes may vary, so one story isn't helpful.

But you can look at the data, read the studies, and run the nomograms and you will see an extremely high long term survival rate for most prostate cancer patients. Those things are very useful and very comforting.

I bet the doctors aren't going to make such proclamations until they see the biopsies and staging. These kind of remarks aren't comforting to those with more serious outcomes and can be seen as making light of their valid concerns. Are you going to say this to someone like Joe Biden with Gleasons 9 and bone mets? From experience, these statements are not helpful.

Did you read the part I said about reading the data and using the nomograms? Do you understand it was presented so people can see the data and not reply on anonymous forum anecdotes?

Do you understand that the vast majority of diagnoses are not the one you describe?

Do you not think the people with those other diagnoses deserve to be shown the data and facts for both their comfort and decision making?

[Anonymous]

OP here. I think the positive stories are nice. And the person above I know their intentions are good. But thr fact is that it isn't nothing if indeed we are looking at pc. I had a friend tell me similar positive stories about men who are living. And that it is no big deal. But it is a big deal. i know one standard common treatment is chemical castration which is devastating I think to happen to someone especially middle aged. It is life changing to kiss your sex life goodbye and your testosterone and identity as a man changes. Obviously if that is the only option of course I'd want my dh on it. I'd rather have him alive and here than not.

In terms of today procedure was fine with light sedation 12 cores. His blood pressure did drop very low though during sedation and they were concerned. 88 over 40.

Recovery will be a few days and they talked a lot about signs of sepsis. Apparently transrectal biopsies are risky with 3% infection rate.

Will definitely keep you posted. Thanks all.

[Anonymous]

Well, it sounds rough but they will have a good idea of what you're dealing with and treatment plans.
Best wishes for his uneventful recovery from the biopsies.

[Anonymous]

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Anonymous wrote:OP here. I think the positive stories are nice. And the person above I know their intentions are good. But thr fact is that it isn't nothing if indeed we are looking at pc. I had a friend tell me similar positive stories about men who are living. And that it is no big deal. But it is a big deal. i know one standard common treatment is chemical castration which is devastating I think to happen to someone especially middle aged. It is life changing to kiss your sex life goodbye and your testosterone and identity as a man changes. Obviously if that is the only option of course I'd want my dh on it. I'd rather have him alive and here than not.

In terms of today procedure was fine with light sedation 12 cores. His blood pressure did drop very low though during sedation and they were concerned. 88 over 40.

Recovery will be a few days and they talked a lot about signs of sepsis. Apparently transrectal biopsies are risky with 3% infection rate.

Will definitely keep you posted. Thanks all.

FWIW, there are other treatments and I don’t know the ins and outs of when different treatments are indicated but ADT is typically when there is mets. And I’m not sure all hormone therapy will definitely result in an end of sex.

The davinci prostatectomy referenced above is very common and can avoid damaging anatomy related to sexual function.

If he gets a cancer diagnosis getting a second opinion from a top prostate cancer specialist is really important.