does this sound like regressive autism? is it time to seek another ASD evaluation?

Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would get him an evaluation at Children's Center for Autism Spectrum Disorders:

http://childrensnational.org/departments/center-for-autism-spectrum-disorderscasd

Specifically for ADOS/ADI-R, which is considered the gold standard for diagnosing ASDs.

Your son sounds a lot like my son who was diagnosed with Aspergers's when he was 4. At this age, it isn't so much the social communication issues (parallel play is still considered OK) but the repetitive behaviors and obsessive interests that got DS diagnosed with ASD.

DS is 8 now and was also diagnosed with ADHD, combined type, at 7 through a full neuropsych eval but the ASD/Asperger's type diagnosis at 4 was spot on.

Good luck!


Interesting that no one else agrees with you. But here you are, suggesting ASD, as you do for 90 percent of children with any issues.


I gave my opinion and recommendation. Did not realize OP was taking a poll for a diagnosis by describing her son's symptoms on the Internet from people who never met her son.


She just had an evaluation 8 months ago. Most 3 year olds have similar tendancies -- they aren't autism related. Not even the teachers are concerned!


But OP is still concerned. So I recommend ADOS/ADI-R which by the time she gets the appointment, it will be longer than 8 months.

Also, the avg age for diagnosing Asperger's is 7. Most don't get catch early but early intervention is best.


Child is social and teachers are unconcerned. This child is not like your child.
Anonymous
Op, coming from a parent who started getting weekly to monthly calls about my "different" DS starting at 18 months of age (he is now 5). Please back off. You are obsessing. What are you afraid of here? Let your kid be a kid. All kids are different and all kids have some sort of challenges. If his teachers are not concerned, and he already went to KKI, and you have no diagnosis, and your child is happy and developing, just STOP. And get yourself into therapy. What you are doing is supremely unhealthy and you are robbing yourself and your family of enjoying each other for who you all are.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:The only thing that sounds remotely concerning is the not responding to his name. Otherwise, it seems age appropriate to have a favorite toy, especially since it sounds like he's playing with it appropriately.

How are his interactions with peers? His expressive and receptive language?


OP here. He understands everything, speaks well, has big vocabulary, great articulation, etc. but his speech is not quite conversational. For example, I will ask, "how was school today?" he might respond, "it was great mom." if I follow up with "what did you do?" I hear crickets. He is able to tell us when he's mad, or frustrated, etc. sometimes before a tantrum, sometimes after.

Most of his time around other children is at daycare, but as far as I know, his peer interactions are fine. He has a best friend at daycare that he loves and gets very excited to see outside of daycare on the rare occasion, but beyond that, has few consistent play dates. On the playground, he always seek out and find one kid that he will follow around and imitate. BUT, he's known to be pushy and territorial sometimes too, say, when we visit the train display at our local bookstore.

I forgot to mention in my original post that he often repeats phrases he hears from his favorite cartoons. Sometimes we'll ask him where he heard [whatever statement he made] and he will tell us which cartoon.


That sounds like an expressive language disorder and/or receptive.

His behavior sounds pretty normal for his age. His language does not. I'd have him evaluated by a speech clinic and see what they say.


I don't think so. He is 3.5. Most of them quote their favorite shows and have a hard time responding to open ended questions like that.


Most 3-4 year olds can say something that they did at school that day. If they don't remember, they'll make it up. An inability to say one thing that happened at school is absolutely a warning sign for a language disorder.
Here is a helpful milestone chart that shows you what a 3-4 year old should do: http://www.asha.org/public/speech/development/34/

Excessive repetition of phrases from TV shows is also a symptom of a language disorder and/or ASD.
http://lessonplans.blogs.nytimes.com/2008/10/15/it-bears-repeating/?_r=0

Do you have a kid with a SN? If you don't, please get off the forum. You don't know what you're talking about and you aren't helpful.


I do! Mine has language delays! Thanks, though. I merely said - many kids repeat lines from shows. Both my kids do, one is advanced, one delayed. Neither of my kids would have responded to such a broad question.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would get him an evaluation at Children's Center for Autism Spectrum Disorders:

http://childrensnational.org/departments/center-for-autism-spectrum-disorderscasd

Specifically for ADOS/ADI-R, which is considered the gold standard for diagnosing ASDs.

Your son sounds a lot like my son who was diagnosed with Aspergers's when he was 4. At this age, it isn't so much the social communication issues (parallel play is still considered OK) but the repetitive behaviors and obsessive interests that got DS diagnosed with ASD.

DS is 8 now and was also diagnosed with ADHD, combined type, at 7 through a full neuropsych eval but the ASD/Asperger's type diagnosis at 4 was spot on.

Good luck!


Interesting that no one else agrees with you. But here you are, suggesting ASD, as you do for 90 percent of children with any issues.


I gave my opinion and recommendation. Did not realize OP was taking a poll for a diagnosis by describing her son's symptoms on the Internet from people who never met her son.


She just had an evaluation 8 months ago. Most 3 year olds have similar tendancies -- they aren't autism related. Not even the teachers are concerned!


But OP is still concerned. So I recommend ADOS/ADI-R which by the time she gets the appointment, it will be longer than 8 months.

Also, the avg age for diagnosing Asperger's is 7. Most don't get catch early but early intervention is best.


Child is social and teachers are unconcerned. This child is not like your child.


My child with ASD/ADHD passed the playdate and was accepted at one of the private schools that is obsessed about on the private school forum when he was 3 yrs old... so it depends on symptoms and age.

This child is not like my child. My child never had sleep issues and was obsessed with elevators not cars at that age. So yeah, I agree with you, every child is different.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would get him an evaluation at Children's Center for Autism Spectrum Disorders:

http://childrensnational.org/departments/center-for-autism-spectrum-disorderscasd

Specifically for ADOS/ADI-R, which is considered the gold standard for diagnosing ASDs.

Your son sounds a lot like my son who was diagnosed with Aspergers's when he was 4. At this age, it isn't so much the social communication issues (parallel play is still considered OK) but the repetitive behaviors and obsessive interests that got DS diagnosed with ASD.

DS is 8 now and was also diagnosed with ADHD, combined type, at 7 through a full neuropsych eval but the ASD/Asperger's type diagnosis at 4 was spot on.

Good luck!


Interesting that no one else agrees with you. But here you are, suggesting ASD, as you do for 90 percent of children with any issues.


I gave my opinion and recommendation. Did not realize OP was taking a poll for a diagnosis by describing her son's symptoms on the Internet from people who never met her son.


She just had an evaluation 8 months ago. Most 3 year olds have similar tendancies -- they aren't autism related. Not even the teachers are concerned!


But OP is still concerned. So I recommend ADOS/ADI-R which by the time she gets the appointment, it will be longer than 8 months.

Also, the avg age for diagnosing Asperger's is 7. Most don't get catch early but early intervention is best.


Child is social and teachers are unconcerned. This child is not like your child.


My child with ASD/ADHD passed the playdate and was accepted at one of the private schools that is obsessed about on the private school forum when he was 3 yrs old... so it depends on symptoms and age.

This child is not like my child. My child never had sleep issues and was obsessed with elevators not cars at that age. So yeah, I agree with you, every child is different.


But it was the teachers, was it not, who expressed concern about your child, who was fine at home but not at school? And who every clinician who saw him said classic Asperger's?

Unlike your child, this child doesn't seem to have anything to fix. What would he get therapy for, exactly?

Anonymous
If you want to read a book about regressive autism, read Craig Schultze's book When Snow Turns To Rain. I think it is a pretty good description of what it looks like (which does NOT) sound like what you described.
He is a local parent. I think the book can still be found on Amazon. Beautifully written but Warning: not a happy ending.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would get him an evaluation at Children's Center for Autism Spectrum Disorders:

http://childrensnational.org/departments/center-for-autism-spectrum-disorderscasd

Specifically for ADOS/ADI-R, which is considered the gold standard for diagnosing ASDs.

Your son sounds a lot like my son who was diagnosed with Aspergers's when he was 4. At this age, it isn't so much the social communication issues (parallel play is still considered OK) but the repetitive behaviors and obsessive interests that got DS diagnosed with ASD.

DS is 8 now and was also diagnosed with ADHD, combined type, at 7 through a full neuropsych eval but the ASD/Asperger's type diagnosis at 4 was spot on.

Good luck!


Interesting that no one else agrees with you. But here you are, suggesting ASD, as you do for 90 percent of children with any issues.


I gave my opinion and recommendation. Did not realize OP was taking a poll for a diagnosis by describing her son's symptoms on the Internet from people who never met her son.


She just had an evaluation 8 months ago. Most 3 year olds have similar tendancies -- they aren't autism related. Not even the teachers are concerned!


But OP is still concerned. So I recommend ADOS/ADI-R which by the time she gets the appointment, it will be longer than 8 months.

Also, the avg age for diagnosing Asperger's is 7. Most don't get catch early but early intervention is best.


Child is social and teachers are unconcerned. This child is not like your child.


My child with ASD/ADHD passed the playdate and was accepted at one of the private schools that is obsessed about on the private school forum when he was 3 yrs old... so it depends on symptoms and age.

This child is not like my child. My child never had sleep issues and was obsessed with elevators not cars at that age. So yeah, I agree with you, every child is different.


But it was the teachers, was it not, who expressed concern about your child, who was fine at home but not at school? And who every clinician who saw him said classic Asperger's?

Unlike your child, this child doesn't seem to have anything to fix. What would he get therapy for, exactly?



We decided to go to a immersion language charter (100% Mandarin ) for preK4 for DS with ADHD/ASD not the private school. Funny looking back on it now... Behavior that is considered "normal" at 3 can be problematic at 4. Dr. Shapiro called DS "classic Asperger's" - but I (and DS's psychiatrist now) disagree at this point, most of DS's issues including his social issues comes from the ADHD not ASD but DS has had a lot of interventions since he was diagnosed including Speech, OT, social skills (you need more than parallel play after 3), etc. DS's symptoms for are very mild. He is medicated for the ADHD and appears NT. His eye contact has always been normal.

OP's son can just as easily have ADHD for all we know. Anyway, ADOS/ADI-R is the gold standard for diagnosing or ruling out ASDs. and should be covered by insurance and OP can get an answer one way or another and move on from there.

Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I would get him an evaluation at Children's Center for Autism Spectrum Disorders:

http://childrensnational.org/departments/center-for-autism-spectrum-disorderscasd

Specifically for ADOS/ADI-R, which is considered the gold standard for diagnosing ASDs.

Your son sounds a lot like my son who was diagnosed with Aspergers's when he was 4. At this age, it isn't so much the social communication issues (parallel play is still considered OK) but the repetitive behaviors and obsessive interests that got DS diagnosed with ASD.

DS is 8 now and was also diagnosed with ADHD, combined type, at 7 through a full neuropsych eval but the ASD/Asperger's type diagnosis at 4 was spot on.

Good luck!


Interesting that no one else agrees with you. But here you are, suggesting ASD, as you do for 90 percent of children with any issues.


I gave my opinion and recommendation. Did not realize OP was taking a poll for a diagnosis by describing her son's symptoms on the Internet from people who never met her son.


She just had an evaluation 8 months ago. Most 3 year olds have similar tendancies -- they aren't autism related. Not even the teachers are concerned!


But OP is still concerned. So I recommend ADOS/ADI-R which by the time she gets the appointment, it will be longer than 8 months.

Also, the avg age for diagnosing Asperger's is 7. Most don't get catch early but early intervention is best.


Child is social and teachers are unconcerned. This child is not like your child.


My child with ASD/ADHD passed the playdate and was accepted at one of the private schools that is obsessed about on the private school forum when he was 3 yrs old... so it depends on symptoms and age.

This child is not like my child. My child never had sleep issues and was obsessed with elevators not cars at that age. So yeah, I agree with you, every child is different.


But it was the teachers, was it not, who expressed concern about your child, who was fine at home but not at school? And who every clinician who saw him said classic Asperger's?

Unlike your child, this child doesn't seem to have anything to fix. What would he get therapy for, exactly?



We decided to go to a immersion language charter (100% Mandarin ) for preK4 for DS with ADHD/ASD not the private school. Funny looking back on it now... Behavior that is considered "normal" at 3 can be problematic at 4. Dr. Shapiro called DS "classic Asperger's" - but I (and DS's psychiatrist now) disagree at this point, most of DS's issues including his social issues comes from the ADHD not ASD but DS has had a lot of interventions since he was diagnosed including Speech, OT, social skills (you need more than parallel play after 3), etc. DS's symptoms for are very mild. He is medicated for the ADHD and appears NT. His eye contact has always been normal.

OP's son can just as easily have ADHD for all we know. Anyway, ADOS/ADI-R is the gold standard for diagnosing or ruling out ASDs. and should be covered by insurance and OP can get an answer one way or another and move on from there.



You are putting way too much faith in the ADOS. Do some research.
Anonymous
^ it's the best diagnostic tool for diagnosing ASD that exists currently according to the Yale Child Study Center, Children's National, etc. If you can think of a better one, please inform us.
Anonymous
Op does even know what regressive ASD looks like. Her child was evaluated 8 month ago.

See a neurologist if you must for the spacing out. I would forget about autism.
Anonymous
does not
Anonymous
Anonymous wrote:^ it's the best diagnostic tool for diagnosing ASD that exists currently according to the Yale Child Study Center, Children's National, etc. If you can think of a better one, please inform us.


Actually, in the absence of any medical test, the best "tool" is an experienced evaluator.
Anonymous
Anonymous wrote:Op does even know what regressive ASD looks like. Her child was evaluated 8 month ago.

See a neurologist if you must for the spacing out. I would forget about autism.


Neurologist?!? You don't even know what kind of doctor to see. You see a neurologist for neurological issues like CP not developmental issues like autism.
Anonymous
Anonymous wrote:
Anonymous wrote:Op does even know what regressive ASD looks like. Her child was evaluated 8 month ago.

See a neurologist if you must for the spacing out. I would forget about autism.


Neurologist?!? You don't even know what kind of doctor to see. You see a neurologist for neurological issues like CP not developmental issues like autism.


YOU WERE not following the conversation. The OP is worried that her child sometimes is not responsive and acting wierd. So it was suggested that she check him out for seizures.
Anonymous
Anonymous wrote:
Anonymous wrote:Op does even know what regressive ASD looks like. Her child was evaluated 8 month ago.

See a neurologist if you must for the spacing out. I would forget about autism.


Neurologist?!? You don't even know what kind of doctor to see. You see a neurologist for neurological issues like CP not developmental issues like autism.

NP here. You see a neurologist for neurological issues like absence seizures, which my daughter has. It looks like she's spacing out and doesn't respond to her name. Yes, neurologist. No need to be nasty.
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