RFK Jr. wants a national autism registry

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Pfft, this is tame compared to some of the other national databases he wants created.

The US is about to be an absolute sh*tshow because he wants everyone on a SSRI put on a list and taken off their meds. He wants insurance companies to stop covering these meds.

They also want a database created of all confirmed pregnancies. They are trying to bypass working with physicians at all and only get this data from insurance companies. Insurances will be required to report a positive pregnancy test result and then later report a live birth or still birth based on what the insurance covers after the birth. And you know exactly why they want this kind of database.

RFK Jr. wants mandatory vaccinations for schooling to be completely eliminated through federal mandate. He also floated an idea of giving BONSUES to physicians who urge their patients not to vaccinate.

These are direct ideas that are seriously being floated at HHS that I've now heard from 2 different people who still work at HHS.

I don’t work in the medical field, but this has to violate some kind of privacy law right????

Ummm. HIPPA to start. But this administration doesn’t actually care about following laws.

I’ve come off of SSRIs. And had a close friend who did. Both for postpartum issues. I was able to come off. It took 6 months of very gradual tapering (to get off a low dose) but was fine. My friend did a similar gradual tapering and crashed and burned. You do not just stop these meds cold turkey. It’s really dangerous.

And BTW, I’m a Fed. If you ever applied for SSI/SSDI, Medicare or Medicaid, Elon already has your medical records. Let that sink in.

I mean yeah, if you are going to claim you are medically unable to work, you are going to need to provide records.

Right. The part you are ignoring is that there is zero reason Elon Musk should have full access to those records to do anything he wants to with them.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:It's so weird this is going on and meanwhile Elon, who himself is autistic, has more power than him and is the richest person in America.

Since it's a spectrum, there's a wide range of abilities and outcomes. It's a very sensitive topic, but most lower functioning teend and adults with autism will need lifetime care/supervision.

Okay fine. Do they need to be on a federal registry? Sent to a work camp?

PP here. I didn't say that. Just commenting that he's very high functioning in compatison to most. .

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Pfft, this is tame compared to some of the other national databases he wants created.

The US is about to be an absolute sh*tshow because he wants everyone on a SSRI put on a list and taken off their meds. He wants insurance companies to stop covering these meds.

They also want a database created of all confirmed pregnancies. They are trying to bypass working with physicians at all and only get this data from insurance companies. Insurances will be required to report a positive pregnancy test result and then later report a live birth or still birth based on what the insurance covers after the birth. And you know exactly why they want this kind of database.

RFK Jr. wants mandatory vaccinations for schooling to be completely eliminated through federal mandate. He also floated an idea of giving BONSUES to physicians who urge their patients not to vaccinate.

These are direct ideas that are seriously being floated at HHS that I've now heard from 2 different people who still work at HHS.

I don’t work in the medical field, but this has to violate some kind of privacy law right????

that whole pesky "HIPAA" thing

Under normal circumstances, you have to consent before your data can be used for research. And you have to be re-consented before researchers can use your previously collected data for something other than what you consented to.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Pfft, this is tame compared to some of the other national databases he wants created.

The US is about to be an absolute sh*tshow because he wants everyone on a SSRI put on a list and taken off their meds. He wants insurance companies to stop covering these meds.

They also want a database created of all confirmed pregnancies. They are trying to bypass working with physicians at all and only get this data from insurance companies. Insurances will be required to report a positive pregnancy test result and then later report a live birth or still birth based on what the insurance covers after the birth. And you know exactly why they want this kind of database.

RFK Jr. wants mandatory vaccinations for schooling to be completely eliminated through federal mandate. He also floated an idea of giving BONSUES to physicians who urge their patients not to vaccinate.

These are direct ideas that are seriously being floated at HHS that I've now heard from 2 different people who still work at HHS.

I don’t work in the medical field, but this has to violate some kind of privacy law right????

Ummm. HIPPA to start. But this administration doesn’t actually care about following laws.

I’ve come off of SSRIs. And had a close friend who did. Both for postpartum issues. I was able to come off. It took 6 months of very gradual tapering (to get off a low dose) but was fine. My friend did a similar gradual tapering and crashed and burned. You do not just stop these meds cold turkey. It’s really dangerous.

And BTW, I’m a Fed. If you ever applied for SSI/SSDI, Medicare or Medicaid, Elon already has your medical records. Let that sink in.

I mean yeah, if you are going to claim you are medically unable to work, you are going to need to provide records.

And normally, anyone claiming that they’re medically unable to work voluntarily submits their medical records.

See how this is different?

There’s no special database of people with a specific diagnosis. This means that they’re open about combing SSI records, Medicaid records, Medicare records, plus records from private insurance companies, pharmacies, smart watches and fitness devices. They’re not even trying to pretend that they’re only looking for what they say they are.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:It's so weird this is going on and meanwhile Elon, who himself is autistic, has more power than him and is the richest person in America.

Since it's a spectrum, there's a wide range of abilities and outcomes. It's a very sensitive topic, but most lower functioning teend and adults with autism will need lifetime care/supervision.

Okay fine. Do they need to be on a federal registry? Sent to a work camp?

PP here. I didn't say that. Just commenting that he's very high functioning in compatison to most. .

No. “Most” neurodivergent are high functioning. Most actually didn’t have daddy’s money and a complete disregard for social norms, but good for him.

And the fact that his high functioning seems to surpass most “neurotypical” people, should everyone be on a registry?

There are also a lot of rich people not really contributing much, not paying what should be their fare share of taxes vs income and evading laws. Most are probably on prescriptions like ED medicine and painkillers or stimulants. Should they be on a registry?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Pfft, this is tame compared to some of the other national databases he wants created.

The US is about to be an absolute sh*tshow because he wants everyone on a SSRI put on a list and taken off their meds. He wants insurance companies to stop covering these meds.

They also want a database created of all confirmed pregnancies. They are trying to bypass working with physicians at all and only get this data from insurance companies. Insurances will be required to report a positive pregnancy test result and then later report a live birth or still birth based on what the insurance covers after the birth. And you know exactly why they want this kind of database.

RFK Jr. wants mandatory vaccinations for schooling to be completely eliminated through federal mandate. He also floated an idea of giving BONSUES to physicians who urge their patients not to vaccinate.

These are direct ideas that are seriously being floated at HHS that I've now heard from 2 different people who still work at HHS.

I don’t work in the medical field, but this has to violate some kind of privacy law right????

Ummm. HIPPA to start. But this administration doesn’t actually care about following laws.

I’ve come off of SSRIs. And had a close friend who did. Both for postpartum issues. I was able to come off. It took 6 months of very gradual tapering (to get off a low dose) but was fine. My friend did a similar gradual tapering and crashed and burned. You do not just stop these meds cold turkey. It’s really dangerous.

And BTW, I’m a Fed. If you ever applied for SSI/SSDI, Medicare or Medicaid, Elon already has your medical records. Let that sink in.

I mean yeah, if you are going to claim you are medically unable to work, you are going to need to provide records.

And normally, anyone claiming that they’re medically unable to work voluntarily submits their medical records.

See how this is different?

There’s no special database of people with a specific diagnosis. This means that they’re open about combing SSI records, Medicaid records, Medicare records, plus records from private insurance companies, pharmacies, smart watches and fitness devices. They’re not even trying to pretend that they’re only looking for what they say they are.

And they voluntarily submit them for a specific reason, not for any future use.

[Anonymous]

Anonymous wrote:I’m autistic! Can I tell my accountant that I don’t have to pay taxes anymore?

Love it. Just got laid off with this sweep of DOJ grants. No more income tax generation from me.

[Anonymous]

How can this be stopped? I am so upset.

[Anonymous]

Anonymous wrote:

Anonymous wrote:It's so weird this is going on and meanwhile Elon, who himself is autistic, has more power than him and is the richest person in America.

Since it's a spectrum, there's a wide range of abilities and outcomes. It's a very sensitive topic, but most lower functioning teend and adults with autism will need lifetime care/supervision.

WTAF is your point? They should be institutionalized? Steralized? Euthanized? Or what?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:It's so weird this is going on and meanwhile Elon, who himself is autistic, has more power than him and is the richest person in America.

Since it's a spectrum, there's a wide range of abilities and outcomes. It's a very sensitive topic, but most lower functioning teend and adults with autism will need lifetime care/supervision.

Okay fine. Do they need to be on a federal registry? Sent to a work camp?

PP here. I didn't say that. Just commenting that he's very high functioning in compatison to most. .

Your ignorance is showing.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Pfft, this is tame compared to some of the other national databases he wants created.

The US is about to be an absolute sh*tshow because he wants everyone on a SSRI put on a list and taken off their meds. He wants insurance companies to stop covering these meds.

They also want a database created of all confirmed pregnancies. They are trying to bypass working with physicians at all and only get this data from insurance companies. Insurances will be required to report a positive pregnancy test result and then later report a live birth or still birth based on what the insurance covers after the birth. And you know exactly why they want this kind of database.

RFK Jr. wants mandatory vaccinations for schooling to be completely eliminated through federal mandate. He also floated an idea of giving BONSUES to physicians who urge their patients not to vaccinate.

These are direct ideas that are seriously being floated at HHS that I've now heard from 2 different people who still work at HHS.

I don’t work in the medical field, but this has to violate some kind of privacy law right????

Ummm. HIPPA to start. But this administration doesn’t actually care about following laws.

I’ve come off of SSRIs. And had a close friend who did. Both for postpartum issues. I was able to come off. It took 6 months of very gradual tapering (to get off a low dose) but was fine. My friend did a similar gradual tapering and crashed and burned. You do not just stop these meds cold turkey. It’s really dangerous.

And BTW, I’m a Fed. If you ever applied for SSI/SSDI, Medicare or Medicaid, Elon already has your medical records. Let that sink in.

I mean yeah, if you are going to claim you are medically unable to work, you are going to need to provide records.

And normally, anyone claiming that they’re medically unable to work voluntarily submits their medical records.

See how this is different?

There’s no special database of people with a specific diagnosis. This means that they’re open about combing SSI records, Medicaid records, Medicare records, plus records from private insurance companies, pharmacies, smart watches and fitness devices. They’re not even trying to pretend that they’re only looking for what they say they are.

And they voluntarily submit them for a specific reason, not for any future use.

+1. This is really bad. I work with people medical records for a federal agency. You want to know who has an unplanned pregnancy, asks about abortion and subsequently has a pregnancy loss in Texas? It’s there. Now, I would never highlight, bookmark or point this out in a write up because it has nothing to do with my reason for reviewing the medical records. I also know who is on ED meds, who is in rehab and whose urine tests positive for what. Again, not something I would ever mark or write up (unless substance abuse was legally an issue). But, I’m a professional civil servant who has had training in appropriate handling of PII and PHI (and has ethics and morals and takes the whole nonpartisan administration of government functions things seriously). Can you say the same for Elon Musk? Because DOGE is in my agency and has accessed these records. Which means Elon has a personal copy. And way more than half the country has given him access to their medical records through the VA, SSA, Medicaid or Medicare (or Department of Education for autism).

An Autism registry is bad. And Musk has access to what he needs to make a good start of a registry. But there are actually even worse places to go, like mining records for women suspected of taking medication to have abortions in red states and pursuing criminal cases. Which should only happen after the men’s ED registry is made public, IMO. (And no, neither should EVER happen).

[Anonymous]

Anonymous wrote:How can this be stopped? I am so upset.

Call your congressmen. Congress is the only real check here. Also, protest, raise awareness, donate, and FFS vote for VA Governor in 2025 and Congress in 2026. For now, Rs in Congress are sitting back and watching. The Courts can’t stop an idea. RFK would have to start the process for them to enjoin it.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:It's so weird this is going on and meanwhile Elon, who himself is autistic, has more power than him and is the richest person in America.

Since it's a spectrum, there's a wide range of abilities and outcomes. It's a very sensitive topic, but most lower functioning teend and adults with autism will need lifetime care/supervision.

Okay fine. Do they need to be on a federal registry? Sent to a work camp?

PP here. I didn't say that. Just commenting that he's very high functioning in compatison to most. .

Your ignorance is showing.

+1. In some ways he’s actually not that high functioning. His interpersonal skills and obsessive behaviors, for example, are worse than many autistic young adults I know.

[Anonymous]

Anonymous wrote:

Anonymous wrote:How can this be stopped? I am so upset.

Call your congressmen. Congress is the only real check here. Also, protest, raise awareness, donate, and FFS vote for VA Governor in 2025 and Congress in 2026. For now, Rs in Congress are sitting back and watching. The Courts can’t stop an idea. RFK would have to start the process for them to enjoin it.

Yeah, I am a dem, represented by VA senators and Connolly. I can call them but that serves no point.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:It's so weird this is going on and meanwhile Elon, who himself is autistic, has more power than him and is the richest person in America.

Since it's a spectrum, there's a wide range of abilities and outcomes. It's a very sensitive topic, but most lower functioning teend and adults with autism will need lifetime care/supervision.

Okay fine. Do they need to be on a federal registry? Sent to a work camp?

PP here. I didn't say that. Just commenting that he's very high functioning in compatison to most. .

Your ignorance is showing.

+1. In some ways he’s actually not that high functioning. His interpersonal skills and obsessive behaviors, for example, are worse than many autistic young adults I know.

I work with and evaluate kids and young adults who are on the autism spectrum, and we have two adult males with autism in my extended family. I'm fully aware of the spectrum. Despite the issues you mentioned, he would be viewed as high functioning.