Take Care of Maya

[Anonymous]

So did they eventually give her high dose ketamine? Or did she improve on her own like they said she would?

Seems crazy the mom gave up after less than 3 months. That’s not that long.

[Anonymous]

Anonymous wrote:So did they eventually give her high dose ketamine? Or did she improve on her own like they said she would?

Seems crazy the mom gave up after less than 3 months. That’s not that long.

I don't think that Maya "improved on her own." It took her several years of treatment before she started walking again. Treatment for CRPS usually involves a multi-disciplinary approach that includes counseling, intensive physical therapy, and sometimes pain management. It also involves educating the family.

It's not accurate that the mother gave up after three months. She had been trying to help her daughter for years when the cruel treatment at the hands of Dr. Smith and the hospital put her over the edge. It's hard to imagine what it feels like to have a chronically ill child. My guess is that Beata thought that after the ketamine coma, they were on the right path, so having what seems like a major setback hit her hard.

The difficult thing about CRPS is that not all doctors agree on what to do. An older generation of doctors, which it seems like Dr. Kirkpatrick was a part of, believe that you need to address a patient's pain (calm it down) before you start PT to regain function. The newer approach is to immediately start intensive PT, regardless of the pain level. If, as a parent, you are hearing two different voices, one that appears to be addressing your child's pain and another that is going to cause pain, which one would you choose? It's a huge leap of faith to accept that your child, who is in terrible pain, will get better if you force them to endure even more pain.

It can't be stated enough how unfamiliar with CRPS many healthcare providers are. One of the things mentioned in the documentary (or maybe it was an article) was that Beata was concerned about the nurses causing pain by taking Maya's blood pressure. If your child has a condition where even a light touch causes pain, dealing with providers who don't understand or don't seem willing to understand undermines your confidence in their professional judgment.

[Anonymous]

The documentary did not say how long it took her to walk on her own. It also didn’t say that she walked after many therapies. That’s speculation.

Why isn’t there any footage in the hospital or after she was discharged showing pain? Clearly for feet to turn in, something was wrong. Especially since they were turned in while she was in the medically induced coma. But I do not think she needed the ketamine or trip to Mexico, which seemed like a very risky course of action.

I think the original ketamine prescribing doctor made the mom feel it was ketamine or a painful death, no other options.

Also, there was a lot that was left out - so we know there is more to the story. Why didn’t the current ketamine prescribing doctor testify at the hearings? Why didn’t he go to the hospital to see his patient or talk to the doctors at the hospital? The letter the prior doctor wrote to the court wouldn’t have been evidence, so why didn’t he go testify? And if a letter was written, even if not evidence, why wouldn’t the current ketamine doctor write it?

[Anonymous]

Anonymous wrote:The documentary did not say how long it took her to walk on her own. It also didn’t say that she walked after many therapies. That’s speculation.

Why isn’t there any footage in the hospital or after she was discharged showing pain? Clearly for feet to turn in, something was wrong. Especially since they were turned in while she was in the medically induced coma. But I do not think she needed the ketamine or trip to Mexico, which seemed like a very risky course of action.

I think the original ketamine prescribing doctor made the mom feel it was ketamine or a painful death, no other options.

Also, there was a lot that was left out - so we know there is more to the story. Why didn’t the current ketamine prescribing doctor testify at the hearings? Why didn’t he go to the hospital to see his patient or talk to the doctors at the hospital? The letter the prior doctor wrote to the court wouldn’t have been evidence, so why didn’t he go testify? And if a letter was written, even if not evidence, why wouldn’t the current ketamine doctor write it?

I agree that there are questions about the doctor who told the mother that Maya would die a painful death.

As far as Maya's treatment, it was outlined in the Cut article cited earlier in the threat:

When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack watched, astonished, Maya stood up out of her wheelchair, picked up her crutches, and slowly made her way across the room. After 12 more months of swimming, yoga, and exercise, Maya took her first unassisted steps in four years. “I bawled,” Jack said.

Maya is now 16. Mature and well spoken, with wide brown eyes and blonde hair that falls just below her shoulders, she is as academically ambitious as ever, taking part in Duke University’s Talent Identification Program for gifted children. She manages her pain with a daily regimen of intensive exercise. “I still have pain, but it’s not as severe as it once was,” she says, “and I’m forever grateful for that.” In March, competing in her first figure-skating tournament in five years, she took first place.

[Anonymous]

Anonymous wrote:

Anonymous wrote:So did they eventually give her high dose ketamine? Or did she improve on her own like they said she would?

Seems crazy the mom gave up after less than 3 months. That’s not that long.

I don't think that Maya "improved on her own." It took her several years of treatment before she started walking again. Treatment for CRPS usually involves a multi-disciplinary approach that includes counseling, intensive physical therapy, and sometimes pain management. It also involves educating the family.

It's not accurate that the mother gave up after three months. She had been trying to help her daughter for years when the cruel treatment at the hands of Dr. Smith and the hospital put her over the edge. It's hard to imagine what it feels like to have a chronically ill child. My guess is that Beata thought that after the ketamine coma, they were on the right path, so having what seems like a major setback hit her hard.

The difficult thing about CRPS is that not all doctors agree on what to do. An older generation of doctors, which it seems like Dr. Kirkpatrick was a part of, believe that you need to address a patient's pain (calm it down) before you start PT to regain function. The newer approach is to immediately start intensive PT, regardless of the pain level. If, as a parent, you are hearing two different voices, one that appears to be addressing your child's pain and another that is going to cause pain, which one would you choose? It's a huge leap of faith to accept that your child, who is in terrible pain, will get better if you force them to endure even more pain.

It can't be stated enough how unfamiliar with CRPS many healthcare providers are. One of the things mentioned in the documentary (or maybe it was an article) was that Beata was concerned about the nurses causing pain by taking Maya's blood pressure. If your child has a condition where even a light touch causes pain, dealing with providers who don't understand or don't seem willing to understand undermines your confidence in their professional judgment.

Still, it seems horrible that she took her own life because she “couldn’t take it anymore” but her daughter had been through it all herself and was still coping and still needed her mother. I could never have abandoned my child. Never.

[Anonymous]

Anonymous wrote:

Anonymous wrote:The documentary did not say how long it took her to walk on her own. It also didn’t say that she walked after many therapies. That’s speculation.

Why isn’t there any footage in the hospital or after she was discharged showing pain? Clearly for feet to turn in, something was wrong. Especially since they were turned in while she was in the medically induced coma. But I do not think she needed the ketamine or trip to Mexico, which seemed like a very risky course of action.

I think the original ketamine prescribing doctor made the mom feel it was ketamine or a painful death, no other options.

Also, there was a lot that was left out - so we know there is more to the story. Why didn’t the current ketamine prescribing doctor testify at the hearings? Why didn’t he go to the hospital to see his patient or talk to the doctors at the hospital? The letter the prior doctor wrote to the court wouldn’t have been evidence, so why didn’t he go testify? And if a letter was written, even if not evidence, why wouldn’t the current ketamine doctor write it?

I agree that there are questions about the doctor who told the mother that Maya would die a painful death.

As far as Maya's treatment, it was outlined in the Cut article cited earlier in the threat:

When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack watched, astonished, Maya stood up out of her wheelchair, picked up her crutches, and slowly made her way across the room. After 12 more months of swimming, yoga, and exercise, Maya took her first unassisted steps in four years. “I bawled,” Jack said.

Maya is now 16. Mature and well spoken, with wide brown eyes and blonde hair that falls just below her shoulders, she is as academically ambitious as ever, taking part in Duke University’s Talent Identification Program for gifted children. She manages her pain with a daily regimen of intensive exercise. “I still have pain, but it’s not as severe as it once was,” she says, “and I’m forever grateful for that.” In March, competing in her first figure-skating tournament in five years, she took first place.

Things like this make it seem like it’s very slanted: “When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack …”

This was not what a single video showed from inside the hospital. She pain free and with normal energy. She’s a very thin person, even now.

Crps abates over time for most patients? The first ketamine doctor should lose his license.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:The documentary did not say how long it took her to walk on her own. It also didn’t say that she walked after many therapies. That’s speculation.

Why isn’t there any footage in the hospital or after she was discharged showing pain? Clearly for feet to turn in, something was wrong. Especially since they were turned in while she was in the medically induced coma. But I do not think she needed the ketamine or trip to Mexico, which seemed like a very risky course of action.

I think the original ketamine prescribing doctor made the mom feel it was ketamine or a painful death, no other options.

Also, there was a lot that was left out - so we know there is more to the story. Why didn’t the current ketamine prescribing doctor testify at the hearings? Why didn’t he go to the hospital to see his patient or talk to the doctors at the hospital? The letter the prior doctor wrote to the court wouldn’t have been evidence, so why didn’t he go testify? And if a letter was written, even if not evidence, why wouldn’t the current ketamine doctor write it?

I agree that there are questions about the doctor who told the mother that Maya would die a painful death.

As far as Maya's treatment, it was outlined in the Cut article cited earlier in the threat:

When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack watched, astonished, Maya stood up out of her wheelchair, picked up her crutches, and slowly made her way across the room. After 12 more months of swimming, yoga, and exercise, Maya took her first unassisted steps in four years. “I bawled,” Jack said.

Maya is now 16. Mature and well spoken, with wide brown eyes and blonde hair that falls just below her shoulders, she is as academically ambitious as ever, taking part in Duke University’s Talent Identification Program for gifted children. She manages her pain with a daily regimen of intensive exercise. “I still have pain, but it’s not as severe as it once was,” she says, “and I’m forever grateful for that.” In March, competing in her first figure-skating tournament in five years, she took first place.

Things like this make it seem like it’s very slanted: “When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack …”

This was not what a single video showed from inside the hospital. She pain free and with normal energy. She’s a very thin person, even now.

Crps abates over time for most patients? The first ketamine doctor should lose his license.

How do you know she was pain-free in the hospital? Are you assuming that if she isn't screaming, she isn't in pain?

Also, CRPS may "abate" over time, but not necessarily without treatment. That doesn't mean that the pain goes away, just that it gets better. Living with constant 4/10 pain is an improvement from a 10/10, but it still interferes with daily life.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:So did they eventually give her high dose ketamine? Or did she improve on her own like they said she would?

Seems crazy the mom gave up after less than 3 months. That’s not that long.

I don't think that Maya "improved on her own." It took her several years of treatment before she started walking again. Treatment for CRPS usually involves a multi-disciplinary approach that includes counseling, intensive physical therapy, and sometimes pain management. It also involves educating the family.

It's not accurate that the mother gave up after three months. She had been trying to help her daughter for years when the cruel treatment at the hands of Dr. Smith and the hospital put her over the edge. It's hard to imagine what it feels like to have a chronically ill child. My guess is that Beata thought that after the ketamine coma, they were on the right path, so having what seems like a major setback hit her hard.

The difficult thing about CRPS is that not all doctors agree on what to do. An older generation of doctors, which it seems like Dr. Kirkpatrick was a part of, believe that you need to address a patient's pain (calm it down) before you start PT to regain function. The newer approach is to immediately start intensive PT, regardless of the pain level. If, as a parent, you are hearing two different voices, one that appears to be addressing your child's pain and another that is going to cause pain, which one would you choose? It's a huge leap of faith to accept that your child, who is in terrible pain, will get better if you force them to endure even more pain.

It can't be stated enough how unfamiliar with CRPS many healthcare providers are. One of the things mentioned in the documentary (or maybe it was an article) was that Beata was concerned about the nurses causing pain by taking Maya's blood pressure. If your child has a condition where even a light touch causes pain, dealing with providers who don't understand or don't seem willing to understand undermines your confidence in their professional judgment.

Still, it seems horrible that she took her own life because she “couldn’t take it anymore” but her daughter had been through it all herself and was still coping and still needed her mother. I could never have abandoned my child. Never.

Depression doesn't make your thinking logical. What is your brain had 100% convinced you that your kid would be better off without you. Hard to imagine, but that is how it works.

[Anonymous]

Anonymous wrote:Is it about Munchausen syndrome? I am watching it now.

Not at all what this is about. It’s about a broken system that destroyed this family.

[Anonymous]

Anonymous wrote:The mother took the daughter to so many doctors until she found one who told her what she wanted to hear. It just seemed extreme to treat Maya the way they were. And the parents checked Maya into the hospital. No one forced them.

Example of someone speaking out of opinion instead of experience. Get a medicinal condition that just keeps being blown off by medical professionals and then come back to me about “doctor shopping.”

[Anonymous]

Anonymous wrote:

Anonymous wrote:The mother took the daughter to so many doctors until she found one who told her what she wanted to hear. It just seemed extreme to treat Maya the way they were. And the parents checked Maya into the hospital. No one forced them.

Example of someone speaking out of opinion instead of experience. Get a medicinal condition that just keeps being blown off by medical professionals and then come back to me about “doctor shopping.”

+1 You can't imagine what it's like until you have been there.

[Anonymous]

What does excruciating pain look like for every single person?

[Anonymous]

Anonymous wrote:What does excruciating pain look like for every single person?

Not sure I understand your question.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:The documentary did not say how long it took her to walk on her own. It also didn’t say that she walked after many therapies. That’s speculation.

Why isn’t there any footage in the hospital or after she was discharged showing pain? Clearly for feet to turn in, something was wrong. Especially since they were turned in while she was in the medically induced coma. But I do not think she needed the ketamine or trip to Mexico, which seemed like a very risky course of action.

I think the original ketamine prescribing doctor made the mom feel it was ketamine or a painful death, no other options.

Also, there was a lot that was left out - so we know there is more to the story. Why didn’t the current ketamine prescribing doctor testify at the hearings? Why didn’t he go to the hospital to see his patient or talk to the doctors at the hospital? The letter the prior doctor wrote to the court wouldn’t have been evidence, so why didn’t he go testify? And if a letter was written, even if not evidence, why wouldn’t the current ketamine doctor write it?

I agree that there are questions about the doctor who told the mother that Maya would die a painful death.

As far as Maya's treatment, it was outlined in the Cut article cited earlier in the threat:

When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack watched, astonished, Maya stood up out of her wheelchair, picked up her crutches, and slowly made her way across the room. After 12 more months of swimming, yoga, and exercise, Maya took her first unassisted steps in four years. “I bawled,” Jack said.

Maya is now 16. Mature and well spoken, with wide brown eyes and blonde hair that falls just below her shoulders, she is as academically ambitious as ever, taking part in Duke University’s Talent Identification Program for gifted children. She manages her pain with a daily regimen of intensive exercise. “I still have pain, but it’s not as severe as it once was,” she says, “and I’m forever grateful for that.” In March, competing in her first figure-skating tournament in five years, she took first place.

Things like this make it seem like it’s very slanted: “When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack …”

This was not what a single video showed from inside the hospital. She pain free and with normal energy. She’s a very thin person, even now.

Crps abates over time for most patients? The first ketamine doctor should lose his license.

How do you know she was pain-free in the hospital? Are you assuming that if she isn't screaming, she isn't in pain?

Also, CRPS may "abate" over time, but not necessarily without treatment. That doesn't mean that the pain goes away, just that it gets better. Living with constant 4/10 pain is an improvement from a 10/10, but it still interferes with daily life.

Her demeanor was completely different from when she was in pain on the video. She certainly wasn’t in the kind of pain on admission when mom said she needed ketamine. No one would ever think, from seeing those videos at the hospital, that the child needed ketomine.

The point is that mom claimed she needed ketomine or would die. She didn’t need it. She didn’t have it in the hospital and wasn’t writhing in pain. The first and second ketomine doctors are culpable. The child looks like she was videoed 24/7 at the hospital. It appears she was much better pain wise after admission, and without that drug.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:The documentary did not say how long it took her to walk on her own. It also didn’t say that she walked after many therapies. That’s speculation.

Why isn’t there any footage in the hospital or after she was discharged showing pain? Clearly for feet to turn in, something was wrong. Especially since they were turned in while she was in the medically induced coma. But I do not think she needed the ketamine or trip to Mexico, which seemed like a very risky course of action.

I think the original ketamine prescribing doctor made the mom feel it was ketamine or a painful death, no other options.

Also, there was a lot that was left out - so we know there is more to the story. Why didn’t the current ketamine prescribing doctor testify at the hearings? Why didn’t he go to the hospital to see his patient or talk to the doctors at the hospital? The letter the prior doctor wrote to the court wouldn’t have been evidence, so why didn’t he go testify? And if a letter was written, even if not evidence, why wouldn’t the current ketamine doctor write it?

I agree that there are questions about the doctor who told the mother that Maya would die a painful death.

As far as Maya's treatment, it was outlined in the Cut article cited earlier in the threat:

When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack watched, astonished, Maya stood up out of her wheelchair, picked up her crutches, and slowly made her way across the room. After 12 more months of swimming, yoga, and exercise, Maya took her first unassisted steps in four years. “I bawled,” Jack said.

Maya is now 16. Mature and well spoken, with wide brown eyes and blonde hair that falls just below her shoulders, she is as academically ambitious as ever, taking part in Duke University’s Talent Identification Program for gifted children. She manages her pain with a daily regimen of intensive exercise. “I still have pain, but it’s not as severe as it once was,” she says, “and I’m forever grateful for that.” In March, competing in her first figure-skating tournament in five years, she took first place.

Things like this make it seem like it’s very slanted: “When Maya left All Children’s Hospital in January 2017, she weighed less than she did when she was admitted — a dark verdict on the separation test meant to detect Munchausen by proxy. She was so weak that it was difficult for her to sit up on her own, and Jack remembers having to put stuffed animals in the back seat of the car to support her body. At home, he says, Maya cried nonstop. Jack took her to physical therapy, installed solar panels to heat their pool for aquatherapy, and bought her a teacup Yorkie puppy. CRPS abates over time in most patients. A year and a half later, as Jack …”

This was not what a single video showed from inside the hospital. She pain free and with normal energy. She’s a very thin person, even now.

Crps abates over time for most patients? The first ketamine doctor should lose his license.

How do you know she was pain-free in the hospital? Are you assuming that if she isn't screaming, she isn't in pain?

Also, CRPS may "abate" over time, but not necessarily without treatment. That doesn't mean that the pain goes away, just that it gets better. Living with constant 4/10 pain is an improvement from a 10/10, but it still interferes with daily life.

Her demeanor was completely different from when she was in pain on the video. She certainly wasn’t in the kind of pain on admission when mom said she needed ketamine. No one would ever think, from seeing those videos at the hospital, that the child needed ketomine.

The point is that mom claimed she needed ketomine or would die. She didn’t need it. She didn’t have it in the hospital and wasn’t writhing in pain. The first and second ketomine doctors are culpable. The child looks like she was videoed 24/7 at the hospital. It appears she was much better pain wise after admission, and without that drug.

So you have determined that Maya was faking her pain?

PS - I'm not defending the ketamine or die claim. If doctors told the mom that, that statement should be examined.