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[quote=Anonymous][quote=Anonymous]So did they eventually give her high dose ketamine? Or did she improve on her own like they said she would?

Seems crazy the mom gave up after less than 3 months. That’s not that long. [/quote]

I don't think that Maya "improved on her own." It took her several years of treatment before she started walking again. Treatment for CRPS usually involves a multi-disciplinary approach that includes counseling, intensive physical therapy, and sometimes pain management. It also involves educating the family.

It's not accurate that the mother gave up after three months. She had been trying to help her daughter for years when the cruel treatment at the hands of Dr. Smith and the hospital put her over the edge. It's hard to imagine what it feels like to have a chronically ill child. My guess is that Beata thought that after the ketamine coma, they were on the right path, so having what seems like a major setback hit her hard.

The difficult thing about CRPS is that not all doctors agree on what to do. An older generation of doctors, which it seems like Dr. Kirkpatrick was a part of, believe that you need to address a patient's pain (calm it down) before you start PT to regain function. The newer approach is to immediately start intensive PT, regardless of the pain level. If, as a parent, you are hearing two different voices, one that appears to be addressing your child's pain and another that is going to cause pain, which one would you choose? It's a huge leap of faith to accept that your child, who is in terrible pain, will get better if you force them to endure even more pain.

It can't be stated enough how unfamiliar with CRPS many healthcare providers are. One of the things mentioned in the documentary (or maybe it was an article) was that Beata was concerned about the nurses causing pain by taking Maya's blood pressure. If your child has a condition where even a light touch causes pain, dealing with providers who don't understand or don't seem willing to understand undermines your confidence in their professional judgment.

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