Please pray - 8 year old DD rushed to ER with sepsis.

[Anonymous]

Anonymous wrote:OP, we’re all thinking of you. If it’s too much to write a big update, you can just tell us:

Red light (Not going as well as hoped, lots more prayers needed)
Yellow light (OK but not great, focused on more healing)
Green light (Much better, focused on spending time together)

And we’ll pray accordingly!

+1 from another PP - I'm thinking of you and your daughter, OP, and hoping hard that you're (understandably) focused now on spending quality time with her and catching up on your own rest. But, we're all here to support you if you need it further.

[Anonymous]

We continue to pray

[Anonymous]

Thinking of your daughter and your family OP.
Praying for her quick recovery

[Anonymous]

OP, wishing you strength and your daughter continued recovery. I hope that before you know it, you are tucking her into her own bed at home and bringing her favorite treats while she hugs her favorite stuffed animal. We are pulling for her! (I’m a DC transplant writing from the west coast, so she’s got nationwide support.)

[Anonymous]

Hoping for good new OP as we head into the weekend.

[Anonymous]

Also still holding you close!

[Anonymous]

OP here thank you for the support again, coming back on to read all these messages is so emotional and heart warming.

I think we're getting there. We've had the chest drain removed. There's a little concern about the fact the weaning of oxygen hasn't been successful. She still needs a face mask to get enough air in so can't start eating yet. It's been a good night though where she's rested and has been quite awake this morning. I'm realistic to expect a few issues still as her body has been hit hard. But the sepsis has been stopped and we're dealing with the damage it has done, hopefully it is all temporary her organs seen to be okay, beyond it hitting her heart and lungs from the effort. The doctors are more cautious, reminding me she's still fragile and will need constant monitoring in the icu likely through the weekend.

I've been reflecting on what I could do differently. I left her suffering and gave her medicine the night before we went in. Please if your little one is sick listen to your mom instinct. I knew it was more than a fever but I didn't act. If I'd have taken her earlier she likely wouldn't have gone through this. I've nearly lost my daughter because of my lack of action. It's terrifying and I've so much to make up to her for all the fighting she's done

[Anonymous]

OP please don't blame yourself. This stuff happens so quickly. You got her there very quickly and kids are regular sick so frequently. Please be kind to yourself.

[Anonymous]

Anonymous wrote:OP here thank you for the support again, coming back on to read all these messages is so emotional and heart warming.

I think we're getting there. We've had the chest drain removed. There's a little concern about the fact the weaning of oxygen hasn't been successful. She still needs a face mask to get enough air in so can't start eating yet. It's been a good night though where she's rested and has been quite awake this morning. I'm realistic to expect a few issues still as her body has been hit hard. But the sepsis has been stopped and we're dealing with the damage it has done, hopefully it is all temporary her organs seen to be okay, beyond it hitting her heart and lungs from the effort. The doctors are more cautious, reminding me she's still fragile and will need constant monitoring in the icu likely through the weekend.

I've been reflecting on what I could do differently. I left her suffering and gave her medicine the night before we went in. Please if your little one is sick listen to your mom instinct. I knew it was more than a fever but I didn't act. If I'd have taken her earlier she likely wouldn't have gone through this. I've nearly lost my daughter because of my lack of action. It's terrifying and I've so much to make up to her for all the fighting she's done

OP please don’t blame yourself. Sepsis is so fast. Frankly if you’d acted even immediately, I’m not sure the outcome would have been different.

Please go to visit the Sepsis Alliance, there is a lot of information there.

[Anonymous]

When my daughter was first admitted to the hospital with the initial crisis associated with her serious chronic illness (prior to diagnosis), she was in a life-threatening situation.

I am a nurse and did not recognize what was going on—and I am a seasoned medical professional.

I share this because I struggled with similar thoughts of guilt and what-ifs. The truth of the matter is you love your daughter deeply and are there at her side. You are in it for the long haul and will see her through this. You got her to the right place and she is in the expert hands of the he folks at CNMC.

Be patient and forgiving with yourself! I’m pulling for your family and praying.

[Anonymous]

OP here sepsis alliance has been helpful. It's the first time I've had pause to stay on my phone and read as they're not allowed in PICU. Finally eating something hot aswell!!

When I read that website it shows how every hour is crucial, I could have taken her hours earlier. I've got incredibly lucky she's such a fighter. I think my only fear for her is she does have asthma, and I'm hoping she doesn't have an episode. It's almost always exercise induced and rare so I'm hoping it's fine

[Anonymous]

Anonymous wrote:OP here thank you for the support again, coming back on to read all these messages is so emotional and heart warming.

I think we're getting there. We've had the chest drain removed. There's a little concern about the fact the weaning of oxygen hasn't been successful. She still needs a face mask to get enough air in so can't start eating yet. It's been a good night though where she's rested and has been quite awake this morning. I'm realistic to expect a few issues still as her body has been hit hard. But the sepsis has been stopped and we're dealing with the damage it has done, hopefully it is all temporary her organs seen to be okay, beyond it hitting her heart and lungs from the effort. The doctors are more cautious, reminding me she's still fragile and will need constant monitoring in the icu likely through the weekend.

I've been reflecting on what I could do differently. I left her suffering and gave her medicine the night before we went in. Please if your little one is sick listen to your mom instinct. I knew it was more than a fever but I didn't act. If I'd have taken her earlier she likely wouldn't have gone through this. I've nearly lost my daughter because of my lack of action. It's terrifying and I've so much to make up to her for all the fighting she's done

NP who has been following this thread - absolutely not, ma'am. No, no, no. You called 911 when you noticed a rash and got her to the hospital immediately - I wouldn't have even recognized that as a sepsis tell and probably would have tried to call a nurse line or go to urgent care or even give her Benadryl or something. You've done everything right, and the only thing you need to make up is lost time with your family unit over the holidays. Please do not blame yourself and get some rest. You're an amazing mother who *saved her daughter's life* with her quick reaction, and don't let even the mean voice in your head (we've all got it) tell you otherwise.

[Anonymous]

Sorry you are feeling guilt. Please know that sepsis can be hard to detect.

I've had two relatives who were in medical facilities and sepsis was initially missed until it got bad.

So glad to hear that you DD is feeling better.

[Anonymous]

Anonymous wrote:When my daughter was first admitted to the hospital with the initial crisis associated with her serious chronic illness (prior to diagnosis), she was in a life-threatening situation.

I am a nurse and did not recognize what was going on—and I am a seasoned medical professional.

I share this because I struggled with similar thoughts of guilt and what-ifs. The truth of the matter is you love your daughter deeply and are there at her side. You are in it for the long haul and will see her through this. You got her to the right place and she is in the expert hands of the he folks at CNMC.

Be patient and forgiving with yourself! I’m pulling for your family and praying.

Thank you so much for this message. It must be horrible as a nurse. I think I've not known how bad some of her numbers are, if I'd have known how sick she was a couple of days ago I'd have been worse than I am.

I think the guilt feelings will go, DH wanted her in earlier but hasn't blamed me. The feeling of being a bit useless is the other emotion I'm battling. She's having to fight all this and all I can do is hold her hand etc through it

[Anonymous]

Oh honey, don't let the guilt in. We all are doing our best. You had no idea it was sepsis! Kids get so sick and then bounce back 12 hours later. We've all seen it a hundred times. I am so sorry that didn't happen for your girl.

I hope she continues healing. You are strong and she is strong. Sending love!