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ADHD study at NIH
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Anonymous
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Does Your Child Have ADHD?
Why do some children with attention-deficit/hyperactivity disorder (ADHD) improve while other children do not? How does brain development differ between children who get better from ADHD and those who have persistent symptoms? These are some of the questions that we are examining in a research study at the Child Psychiatry Branch at NIMH. Thanks to the participation of over 200 children and teens with ADHD over the past 20 years we already know a great deal about the brain in ADHD. Now we want to work with very young children (between 4 and 8 years old) who have ADHD to see if we can uncover the different patterns of brain development. What’s involved with the Study? The research study involves a clinical assessment over one day by our team of child psychiatrists, psychologists, clinical social workers and teachers. The study includes an interview with the parents and children, some short psychological tests, and a non-invasive brain scan with no radiation. This study is being conducted at the Clinical Center in Bethesda, MD. How do I participate? Your child must have symptoms of ADHD, and be between 4 to 8 years old in order to participate. Your child should also be medically healthy. If your child is overly active, always on the go, and easily distracted he or she may have ADHD and may qualify for this one-day research study. Children and their families will be reimbursed for their participation. If you would like to find out more about this study please contact: Wendy Sharp, LCSW-C, at 301-496-0851. Why participate? We are trying to find out why some children with ADHD get better and other children continue to experience ADHD symptoms. By participating you will help us answer questions that may lead to future ADHD treatment. Your child will get a thorough and valuable mental health assessment by a multidisciplinary team and they will give you treatment recommendations for your child. Call: 301-435-5557 TTY: 1-866-411-1010 Email: sharpw@mail.nih.gov Refer to research study # 89-M-0006 Parent or guardian must give permission for minors to participate. Se habla español www.clinicaltrials.gov The National Institute of Mental Health National Institutes of Health Department of Health & Human Services |
Anonymous
| There is compensation to this study? We participated over 6 months ago and were never compensated. How do I follow up to receive compensation? |
Anonymous
| We participated in this study and it was a fabulous experience. I highly recommend it. |
Anonymous
What did you get out of doing it? |
Anonymous
The materials we received said we'd be compensated too, but we never got anything. My child was disappointed because he is the one who noticed this and we agreed he could keep whatever the money was that came in. 
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Anonymous
| We didn't get compensated, either. I wonder what the deal is? |
Anonymous
Not the PP but we also participated and found it very helpful. The researchers gave DS a number of standardized tests that looked at such things as DS's intelligence, processing speed, etc. They provided me with an excellent verbal de-brief, explaining the tests and the scores. For example, on the intelligence test, DS is probably not much smarter than our dog. However, the low score is primarily related to his ADHD - he forgot the question, he knew the answer but kept pushing the wrong button, he didn't read to the end of the sentence, etc. We talked about interventions, what things we could do to be pro-active, I got feedback on things we were already doing. They also sent an excellent written report with their finding that has been extremely useful in our IEP meetings. We're entering our third year of the study and the staff have been just as supportive each time. I can't remember if we got any compensation but that wasn't our motivation for participating. I feel this type of research is important and am happy to contribute. I also feel I have been rewarded by what the research team has been able to tell me about my DS, the report which has been so helpful during IEP meetings and what the team has been able to help me understand about ADHD. |
Anonymous
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If you didn't receive compensation and were a participant in this study please contact us:
sharpw@mail.nih.gov or mmeaghan@mail.nih.gov If someone isn't compensated we aren't always aware of this so please let us know if there's a problem. |
Anonymous
| Does a child have to have an ADHD diagnosis to participate? I suspect inattentive ADHD, but he's not old enough to see real problems in school yet. |
Anonymous
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We met with the doctor, a psychologist, and psychiatrist, we got a thorough analysis of our son, and when questions have come up during the school year they have always answered them. We were able to use the report during the IEP process and the school has been very differential to NIH.
We did not receive any compensation. |
Anonymous
| Can the child of an NIH staff member participate? |
Anonymous
We did not participate to receive compensation but knowing that there is compensation I'd like to know what it is and how do we go about receiving it. Since it seems everyone posting here who has participated is stating they were not compensated perhaps it would be wiser to investigate this on your end, the NIH end. I assume the compensation is government money so it's possible the systems that be haven't gotten around to "paying" us. I'd prefer the money earmarked for participants go to the participants than sit in the governments hands. |
Anonymous
No. Even if a child has an ADHD diagnosis already, the staff will re-test. |
Anonymous
| Has anyone been compensated for this study? |
Anonymous
I called about this as DS has an ADHD-PI dx, but they said they weren't interested in him unless he had the hyperactive component. |