ADHD study at NIH

[Anonymous]

We participated and were not compensated either.

[Anonymous]

PP here. Sorry I hit submit to soon. Just wanted to say we thought the study was amazing. It helped us incredibly and all the feedback we got was invaluable.

[Anonymous]

We were compensated but I don't remember the amount.

[Anonymous]

We enjoyed participating in the study and found it very helpful but were not compensated.

[Anonymous]

We participated in the study and feel the feedback we received was worth its weight in gold. Honestly, since testing like this can cost anywhere from $3500 - $4500 dollars and insurance doesn't always cover that cost, I'd don't give a hoot about the compensation. I cannot say enough positive things about the team involved in this study and highly recommend it to anyone out there who suspects that their child may have ADHD. I look forward to our next annual visit so that we can learn more information as our child grows.

[Anonymous]

Anonymous wrote:We participated in the study and feel the feedback we received was worth its weight in gold. Honestly, since testing like this can cost anywhere from $3500 - $4500 dollars and insurance doesn't always cover that cost, I'd don't give a hoot about the compensation. I cannot say enough positive things about the team involved in this study and highly recommend it to anyone out there who suspects that their child may have ADHD. I look forward to our next annual visit so that we can learn more information as our child grows.

I think we all understand the immense benefit of this study and the testing that is provided. Please understand that the money earmarked for compensation comes from the Government, our Federal Government that is currently having horrible budget issues.

Do you really think the money goes back into the study? The study is already funded. You're basically allowing our government bureaucracy to let funds slip through the cracks that have been put aside to compensate people who are participating in the study, people who actually make the study happen, without these people the study would not exist.

Parents have to travel to NIH, miss work, hire babysitters... the money is paid to the participants for a reason so while you may not "give a hoot" about the money that does not mean the money should slip through the cracks and be unaccounted for. Unless you know where what looks to be thousands of dollars (more people WERE NOT compensated than were per the replies here) went then please don't make people feel like it's petty cash and we shouldn't care because of the fantasticalness of the study.

It's still missing government funds. How many people really weren't compensated and how many other studies are having the same issue? This could be quite a bit of money that isn't going were it is intended to go.

[Anonymous]

Anonymous wrote:We participated in the study and feel the feedback we received was worth its weight in gold. Honestly, since testing like this can cost anywhere from $3500 - $4500 dollars and insurance doesn't always cover that cost, I'd don't give a hoot about the compensation. I cannot say enough positive things about the team involved in this study and highly recommend it to anyone out there who suspects that their child may have ADHD. I look forward to our next annual visit so that we can learn more information as our child grows.

I totally agree!

[Anonymous]

Anonymous wrote:

Anonymous wrote:We participated in the study and feel the feedback we received was worth its weight in gold. Honestly, since testing like this can cost anywhere from $3500 - $4500 dollars and insurance doesn't always cover that cost, I'd don't give a hoot about the compensation. I cannot say enough positive things about the team involved in this study and highly recommend it to anyone out there who suspects that their child may have ADHD. I look forward to our next annual visit so that we can learn more information as our child grows.

I totally agree!

Ugh.

[Anonymous]

I don't care about the $ but my kid who sat so patiently in the MRI for hours and was looking forward to it did!

[Anonymous]

My child participated in this study and we told them we didn't want the compensation because we didn't need it. I don't think the money is therefore lost. It just remains in that group's funds to be used for another family who may need compensation more than we do.
Please call these people if you are interested in this study for your child. You will be very happy with evaluation and time and dedication of the staff at NIH. And ignore these fools who clearly don't have better things to do other than complain. If you didn't get compensated then call the staff involved in the study and stop complaining here and turning parents off to a wonderful opportunity!!

[Anonymous]

I agree. Look at it this way - if you are concerned that your child may have ADHD, your choices are to wait for the school to do an eval which may take a long time if they are willing to do it; pay for a private evaluation which can be quite costly; or join the ADHD study at NIH. The team at NIH is comprised of the leading experts in this field (at least according to what I've read). You'd have to take the time out of your schedules, hire babysitters, and drive to an appointment anyway. The team at NIH is amazing! Don't let the compensation aspect be the driving force behind your decision to call them. (And if you do need to be compensated - understandable - contact them privately to discuss it).

[Anonymous]

They don't accept for the study every kid who applies, you know.

[Anonymous]

Yes

[Anonymous]

Compensation for studies like this do come straight from the budget of the group conducting the study. If they say they will compensate you and you wish to obtain that money, then it is certainly in your right. However, it is not like any money that is not used for compensation just becomes government waste. Instead, it would likely be used for other purposes for the group conducting the study. While some government organizations are pretty terrible about wasting money, NIH largely is not one of them.

[Anonymous]

Anonymous wrote:Compensation for studies like this do come straight from the budget of the group conducting the study. If they say they will compensate you and you wish to obtain that money, then it is certainly in your right. However, it is not like any money that is not used for compensation just becomes government waste. Instead, it would likely be used for other purposes for the group conducting the study. While some government organizations are pretty terrible about wasting money, NIH largely is not one of them.

If you're told you're going to be compensated then you should be. It shouldn't be up to participants to contact them to ask where the compensation is.