I need a pep talk

[Anonymous]

Anonymous wrote:

Anonymous wrote:^Social Pragmatic Communication Disorder is not Autism Spectrum Disorder but it's own diagnosis so whoever diagnosed did not give an "easy" diagnosis.

We have both diagnosis. It was a very easy diagnosis for us to be given with an hour evaluation.

Maybe you should get a second opinion from someone who does not give a diagnosis after only an hour evaluation.

In the new DSM-V, you cannot get both a diagnosis of both ASD and Social Pragmatic communication disorder b/c deficits in pragmatic speech is already included in ASD and SPCD is a deficit ONLY in pragmatic speech w/o the repetitive behaviors and obsessive interests that characterizes Asperger's (which is now included in ASD) as OP already said.

[Anonymous]

How old is your dc?

Where do you live?

Lots of experienced SN parents here. Most of us have our moments of panic, even those of us whose children are older.

[Anonymous]

OP here. He's four and we live in DC. I think his diagnosis is solid. Several professionals have consulted.

[Anonymous]

I think that with a child who has SNs, it's very easy to blame all infuriating/worrying/unusual behavior on the disability, and that can freak you the hell out. Remember that he will change and develop and grow, like all humans do, and that even a NT child would delight you at times and drive you completely bonkers at other times. I promise you, he will surprise you, and you'll be amazed in a month or six months or a year when you look back and see what he has achieved. The diagnosis is rough, but once he starts getting therapy and making progress, you'll look back on where he started and feel so proud.

Get some therapy for yourself--if you're anxious, it will make your kids anxious, too. It will make a difference.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^Social Pragmatic Communication Disorder is not Autism Spectrum Disorder but it's own diagnosis so whoever diagnosed did not give an "easy" diagnosis.

We have both diagnosis. It was a very easy diagnosis for us to be given with an hour evaluation.

Maybe you should get a second opinion from someone who does not give a diagnosis after only an hour evaluation.

In the new DSM-V, you cannot get both a diagnosis of both ASD and Social Pragmatic communication disorder b/c deficits in pragmatic speech is already included in ASD and SPCD is a deficit ONLY in pragmatic speech w/o the repetitive behaviors and obsessive interests that characterizes Asperger's (which is now included in ASD) as OP already said.

This is correct. ASD has to be ruled out first to be diagnosed with social communication disorder.

http://www.psychiatry.org/File%20Library/Practice/DSM/DSM-5/DSM-5-Social-Communication-Fact-Sheet.pdf

OP, from what you describe the ASD diagnosis is what you need to address. Talking about having SCD only makes it confusing.

[Anonymous]

OP here- he doesn't have an ASD diagnosis, He has a Social Pragmatic Clmmunication diagnosis. It's so new. Trying to understand what it means.

[Anonymous]

Anonymous wrote:OP here- he doesn't have an ASD diagnosis, He has a Social Pragmatic Clmmunication diagnosis. It's so new. Trying to understand what it means.

I have a kid with Asperger's so have the social communication deficits + 2. The most helpful therapies were those done at school - social skills class and group Speech language classes focusing on pragmatics. Hang in there, it really does get better. My kid was diagnosed at 4 and now at 6 appears NT to most people. DS has friends and is fully engaged at school where he is mainstreamed. Pragmatic skills can be taught and learned.

You can get a lot of help from the teachers. They can assign "buddies"/classmates to your child and make suggestions for which kids will be a good match for play dates. GL!

[Anonymous]

An HOUR evaluation? Ours takes three days to run all the proper tests. And we've done it five times with different testing groups. Always several days. OP, I don't trust what you've been told. No one can diagnosis after only an hour.