has anyone on here terminated due to a positive T21 result?

[Anonymous]

Anonymous wrote:For Down's, Maternit21 is 100% specific and sensitive.

It is, but there are reports of positives and when CVS was done the baby was negative. I would never terminate based on T21 alone.

[Anonymous]

Your baby is most likely fine. Don't agonize over this unnecessarily - wait until you have diagnostic results. Please.

[Anonymous]

Anonymous wrote:Your baby is most likely fine. Don't agonize over this unnecessarily - wait until you have diagnostic results. Please.

You really not at all in a position to say this. You don't know. The second part, I agree with.

[Anonymous]

My odds were 1 in 67, amnio came back fine. DD is a perfectly healthy. Try not to worry too much until you know for certain. The stress is not good for the baby.

[Anonymous]

I've never been in your shoes so I can't possibly offer any advice. I just wanted to tell you best of luck and god bless.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Your baby is most likely fine. Don't agonize over this unnecessarily - wait until you have diagnostic results. Please.

You really not at all in a position to say this. You don't know. The second part, I agree with.

Yes, she is. The odds are 50 to 1.

[Anonymous]

I'm so sorry. As others have said, I don't think you're at the point yet where you have to make a final decision. 1 in 50 is distressing to hear, but those are still fairly small odds. If it were me I would probably do whatever I could to get a determinative diagnosis and then decide.

All best to you and your husband in wrestling with this. I hope that further testing will show perfect health.

And, fwiw, I know from firsthand experience that parenting DS kids (and being related to them) is indeed very very challenging. But they are also the most wonderful, loving, sweet, dear people I've ever met.

The only decision that matters is the one that's best for you and your family.

[Anonymous]

It is a screening test, not a diagnostic test. It only assesses risk. It has been accurate, but I'd wouldn't terminate without CVS or amnio. Those tests are diagnostic.

Are you high risk in any other way? The company who makes this test says it is for high risk pregnancies on their website.

OP, I'm very sorry you're going through this. It must be awful. I hope everything turns out fine.

[Anonymous]

Screening:

http://www.womenandinfants.org/MaterniT21.cfm

http://www.sequenomcmm.com/Home/Health-Care-Professionals/Trisomy-21/About-the-Test

[Anonymous]

Anonymous wrote:

Anonymous wrote:For Down's, Maternit21 is 100% specific and sensitive.

It's such a new test that if it says, "yes, Down Syndrome," I would probably have the CVS or amnio also. But, if it said "no Down Syndrome," I would believe it and wait for the anatomy scan at 18-20 weeks to see if anything else concerning popped up.

Agreed I would get Cvs confirmation before even considering...

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:For Down's, Maternit21 is 100% specific and sensitive.

It's such a new test that if it says, "yes, Down Syndrome," I would probably have the CVS or amnio also. But, if it said "no Down Syndrome," I would believe it and wait for the anatomy scan at 18-20 weeks to see if anything else concerning popped up.

Agreed I would get Cvs confirmation before even considering...

Lab error and mixed up blood vials is not unheard. From somebody that spent time in a lab

[Anonymous]

Anonymous wrote:OP, I have a sibling with special needs. It's not downs. But he will need to be taken care of for the rest of his life. The financial models expect him to live to be 75. He will outlive my parents and will even outlive ME. (I am significantly older).

This is a terrible burden on my parents, who have had to scrimp and save and plan to ensure that there are funds to care for him. It will be a burden on my siblings too. Until you have lived it, you cannot even imagine the ways in which this responsibility has taken over their lives and, to be honest, destroyed their happiness, although they would never admit that out loud.


I personally would not have a child with serious special needs. I had the tests with my last pregnancy because I was over 35. I knew when I went for the tests that if there was anything significantly wrong, I would terminate. I have seen first hand what life is like for the child, the parents, the marriage, and the family of a seriously SN child and I know it is not a life I would wish on anyone.

How "serious" downs is, and how serious it is in this case, I don't know. But the best of luck to you with whatever you choose to do.

Like this poster, my MIL has a sister with SN. she is 45 and has the mental capacity of a 6 YO, and a number of psychiatric and health issues that come with it. She is a sweet woman, a grown child, but her care and maintenance have caused such unbelievable strife and burden among my MIL and her other sisters since their parents passed away. When I first got pregnant at 35 my MIL found a discrete way of telling me that much as she loves her sister, she would not blame me at all for terminating if I had a SN result. Like others, I only offer this to help you think through your own situation, and perhaps to give you peace and comfort that you are not being selfish if you decide to terminate. I wish you the best in your choice and you have to do what's right for you.

[Anonymous]

I'm sorry but your DH's anxiety has nothing to do with this. He should medicate himself being this child special needs or not.

[Anonymous]

I've read that 90% of parents who discover their baby has Down Syndrome terminate. So obviously, many people who claim to be pro-life, do not walk the walk when faced with this difficult decision.

[Anonymous]

Well, since I think about 95% of Downs births are terminated, than yes....I'm sure at least someone has been through the same thing.