has anyone on here terminated due to a positive T21 result?

[Anonymous]

Anonymous wrote:

Anonymous wrote:Eugenics is systemic. OP is making a personal medical decision for herself and her family.

That's one definition but not the only one.
Medical researchers estimate that 80 percent or more of babies now prenatally diagnosed with Down syndrome are aborted. (They estimate that since 1989, 70 percent of Down syndrome fetuses have been aborted.) A high percentage of fetuses with cystic fibrosis are aborted, as evident in Kaiser Permanente's admission to The New York Times that 95 percent of its patients in Northern California choose abortion after they find out through prenatal screening that their fetus will have the disease.

Read more: http://www.seattlepi.com/local/opinion/article/The-abortion-debate-that-wasn-t-1178454.php#ixzz2Kk9iTZEs

Interesting that Kaiser submitted data to the study AND that you view a mother's personal decision as "not the only" definition of eugenics. Because if there is any one thing that is scaring the crap out of parents who have to make this decision, it is the cost of lifetime care for a special needs child when the family is in a crappy managed-care system like Kaiser. So who exactly is the systemic cause of eugenics again?

[Anonymous]

My cousin works with SN adults who have significant problems. The parents are the most depressed and downtrodden people you will ever meet. Their lives are shattered, and still the bills keep rolling in, and the maintenace is unbelievable. It is a daily struggle to find workers who don't abuse their charges. The pain of the decison is less than the pain of a lifetime of mananging a severely SN child through adulthood and beyond.

[Anonymous]

I had a friend who had a SN baby. She had a complete nervous breakdown, and the family had to care for all of them. She somehow did not "believe" the test results? SN children are not for everyone.

[Anonymous]

I had an acquaintance many years ago that told me, "...that mean doctor XX has no compassion. He told me that there are abnormalities in my DD cells. See, here she is!" Fast forward 25 years. In full time care, cannot live without 24 hour supervision. Nevertheless manages to have sex with the the other patients. 2 kids. Her parents, now in their 60s are taking care of them. The genetic mix was not a good one, and the grand kids now have problems as well, and are in institutions. Transformed the family as you can imagine.

[Anonymous]

A high percentage of fetuses with cystic fibrosis are aborted

Watching my cousin with cystic fibrosis choke to take a break every day, and then finally choke to death was a horrible, horrible experience.

[Anonymous]

OP, thinking about you and hoping you're doing okay.

[Anonymous]

Have you heard anything yet, OP?

[Anonymous]

OP: Thinking of you and hoping that you are doing all right.

[Anonymous]

Anonymous wrote:

once I see a heartbeat and the baby is moving around, that baby is alive.

For me, once I see a heartbeat and the FETUS is moving around, that FETUS is a living parasite. I don't mean parasite in a gross way, but that's what a fetus is. It is living off of another living thing, and can't live independently. I terminated. Aborted. Whatever you want to call it. I don't feel badly about the decision at all. We also have a first child, and one of the things we had to think about was how it would impact him.

I reached out to a girl I grew up with whose sister has Downs, and asked her about her experience growing up, and now with her, as adults. Obviously, she loves her sister very much. But what she described to me is not what I want for the child we already have. Her parents separated for a few years from the stress. She was teased relentlessly (which I found interesting because I remember her sister and remember everyone standing up for her and being kind to her). She didn't get much attention from her parents, who had to give so much attention to the other daughter.

We thought about what kind of couple we are, what kind of family we're trying to create, how comfortable we are bending that, how well a baby/child/teen with Downs would fit in, how much patience we have, etc. We thought about the very real possibility of having to care for this child well into their adult years, about the burden of caring for him/her falling to our older child. We made the right decision for us. I don't think anyone who chooses to keep a fetus that may have DS is making the wrong decision. It just has to be the right decision for you.

Did you get a CVS to determine that the child was positively downs?

[Anonymous]

Friend of mine has two healthy boys, lost her daughter to cancer at 18 months, has a youngest kid with DS who has survived Leukemia, and lost her husband to brain cancer a few years ago.

I count my blessinfs

[Anonymous]

Blessings

[Anonymous]

Anonymous wrote:Friend of mine has two healthy boys, lost her daughter to cancer at 18 months, has a youngest kid with DS who has survived Leukemia, and lost her husband to brain cancer a few years ago.

I count my blessinfs

well, good for you. Waht does that have to do with OP?

[Anonymous]

Anonymous wrote:

Anonymous wrote:Friend of mine has two healthy boys, lost her daughter to cancer at 18 months, has a youngest kid with DS who has survived Leukemia, and lost her husband to brain cancer a few years ago.

I count my blessinfs

well, good for you. Waht does that have to do with OP?

Always gives mr perspective

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Friend of mine has two healthy boys, lost her daughter to cancer at 18 months, has a youngest kid with DS who has survived Leukemia, and lost her husband to brain cancer a few years ago.

I count my blessinfs

well, good for you. Waht does that have to do with OP?

Always gives mr perspective

So, not about OP, then.

[Anonymous]

Anonymous wrote:I am so sorry that you are going through this.

I thought I'd share a blog in case you haven't heard of this one before. The young mother's second child has DS and she had no idea until she gave birth. It's a very inspiring and loving blog. I don't have a child with DS but I find this blog wonderful to follow and makes me want to be a better mother.

Good luck to you.

http://www.kellehampton.com

Second that!! Her book Bloom is beautiful!