Anyone Out There With Chronic Fatigue Syndrome?
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Anonymous
No joke, this is what I do. I think think Chronic Fatigue is a real syndrome. Its the doctor blow off as they don't want to take the time to figure out what's wrong with you. |
Anonymous
It's definitely "real." Just because we don't have the research to show what causes it doesn't mean it isn't real. My guess at this point is that it is metabolic (likely the next huge frontier in medicine). Fortunately my doctor doesn't blow it off; she knows I have CFS. There just isn't great treatment. I even tried Modafinil but it made me manic. |
Anonymous
NP. Can you please provide your doctor's information? Or can anyone else recommend a specialist that will diagnosis CPS? TIA for any leads. |
Anonymous
| I thought it was a British thing. |
Anonymous
| Is this something one can actually get diagnosed for? If so is there any point? I don’t believe it qualifies as a disability and I don’t think any treatment is available, but perhaps I’m wrong. |
Anonymous
| Have you tried acupuncture? I don’t have cfs but my mom is an acupuncturist and many of her long term patients have cfs and fibromyalgia. Seems like there’s evidence it helps: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4515016/ |
Anonymous
It could help support a reasonable accommodation request (eg, full time telework). |
Anonymous
|
Going on thyroid meds turned me around,
My TSH needs to be closer to 1.5. When it’s 3.0+ I feel like crap and am exhausted. I finally found a dr will would give me meds with subclinical hashimitos—all the others wanted to wait until my Tsh got high. |
Anonymous
How? If you're full time it's not like you get to nap on the job. And your commute isn't subject to accomodations. |
Anonymous
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[quote=Anonymous][quote=Anonymous]Move to the couch. :lol:
Yeah, sorry OP. I have it, and don't have any magic pills for you. I hope someone else can offer something better to help us both![/quote] No joke, this is what I do. I think think Chronic Fatigue is a real syndrome. Its the doctor blow off as they don't want to take the time to figure out what's wrong with you.[/quote] No, it's that they don't want to come right out and call you lazy. |
Anonymous
| Not sure if I legit have CFS, but I was chronically fatigued despite doing everything ‘right’. Eating really well, daily exercise, good sleep schedule, etc. etc. I am on Effexor now and it is helping with the debilitating fatigue. |
Anonymous
| Acupuncture helped me with my CFS symptoms. |
Anonymous
A ringing endorsement for the legitimacy of CFS... |
Anonymous
It's a diagnosis of exclusion. Doctors will test or try treatment for everything else that could be causing the fatigue first, and only when all those tests come back negative and other treatment doesn't work will they diagnose CFS. This is why it's definitionally hard to treat. It's really not very different from "we don't know what's wrong with you." It's a frustrating diagnosis for all involved (doctor, patient, family). |
Anonymous
| It is almost always Lyme in this region. |