Desperately need BM donation for a failure to thrive baby. Can provide compensation

[Anonymous]

I pp about seeing Dr Au Yeung in this thread. My daughter is 3 1/2, had severe reflux, some MSPI, delayed gastric emptying and laryngeal cleft. There is something really off about these threads. It could be that OP is just misunderstanding some of the medical advice being given to her. However, the immediate issue is stabilizing the baby's weight loss and lack of gain and the best way to do that is to do an NG tube. After the baby is more stable you can figure out what's causing the issues in more detail. Donated breast milk is not going to fix this, there's a bunch of magical thinking going on in this thread.

[Anonymous]

If the situation is so dire that you are getting breastmilk from strangers on the Internet, why don't you take the baby to the hospital for an ng or nj tube? The situation as described by you seems dangerous and relying on the kindness of strangers for breastmilk is not appropriate. Clearly your baby has a medical issue and should be dealt with by doctors. You can make a decision about the g tube once your baby is stabilized. I have a lot of experience with ftt/preemie/g tube and this situation is very, very concerning.

[Anonymous]

OP. We ARE getting the tube - that was/is the plan. Have an appt with the specialist again tomorrow. We haven't misunderstood any advice and are working closely with the specialist and the therapist. This thread is too draining and I am going to say a final thank you to those who offered support. To the naysayers, please keep an open mind towards other parents who post here sharing their issues. There are other threads that can do with some suggestions and help.

[Anonymous]

13:54 here, sorry I misunderstood. Good luck with the tube placement!

[Anonymous]

If you are going the g tube route (which is more invasive and requires a surgery) why not get an ng tube now? It is super simple and not a big deal at all. It is a very easy solution. I don't at all.

[Anonymous]

Anonymous wrote:If you are going the g tube route (which is more invasive and requires a surgery) why not get an ng tube now? It is super simple and not a big deal at all. It is a very easy solution. I don't at all.

I don't see any mention of a G tube.

[Anonymous]

Anonymous wrote:

Anonymous wrote:If you are going the g tube route (which is more invasive and requires a surgery) why not get an ng tube now? It is super simple and not a big deal at all. It is a very easy solution. I don't at all.

I don't see any mention of a G tube.

See 14:16. She says they are getting one. I have a very hard time believing that if that is the route, a doctor hasn't recommended an ng or nj tube in the interim if things are so dire.

[Anonymous]

Hi OP, if you are still checking this tread, I sent you an email. <hugs>

[Anonymous]

Anonymous wrote:Can you do soy formula (I know it's not ideal, but can you try it?). Or maybe try CVS Gentle - it's made by PBM, so it's different than the other brands. It was like our 5th or 6th try and it worked for us.

I would focus equally, if not MORE, on food. At 8 months, food should be the primary source of nutrition. What solids have you tried? At 3 months, we started with rice cereal, then added wheat cereal or oatmeal. By 6 months, DD was full on eating food (plus 2 or 3 bottles a day in between meals), but she was picky about the brand. There is a big difference between brown-ish Gerber carrots and homemade or Earth's Best. I pureed a lot of food in the baby bullet - the options are endless, so please try it. DD liked carrots, peas, chicken and rice, and macaroni with a little parmesean and teeny but of tomato. The Giant brand baby food is great (Beechnut)- it's the only brand of baby food that has something other than veggies that tastes good IMO. Good Luck!

A failure to thrive baby would DIE if given formula.

[Anonymous]

Anonymous wrote:

Anonymous wrote:Can you do soy formula (I know it's not ideal, but can you try it?). Or maybe try CVS Gentle - it's made by PBM, so it's different than the other brands. It was like our 5th or 6th try and it worked for us.

I would focus equally, if not MORE, on food. At 8 months, food should be the primary source of nutrition. What solids have you tried? At 3 months, we started with rice cereal, then added wheat cereal or oatmeal. By 6 months, DD was full on eating food (plus 2 or 3 bottles a day in between meals), but she was picky about the brand. There is a big difference between brown-ish Gerber carrots and homemade or Earth's Best. I pureed a lot of food in the baby bullet - the options are endless, so please try it. DD liked carrots, peas, chicken and rice, and macaroni with a little parmesean and teeny but of tomato. The Giant brand baby food is great (Beechnut)- it's the only brand of baby food that has something other than veggies that tastes good IMO. Good Luck!

A failure to thrive baby would DIE if given formula.

Is this a joke? My FTT baby certainly didn't die from getting formula.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:If you are going the g tube route (which is more invasive and requires a surgery) why not get an ng tube now? It is super simple and not a big deal at all. It is a very easy solution. I don't at all.

I don't see any mention of a G tube.

See 14:16. She says they are getting one. I have a very hard time believing that if that is the route, a doctor hasn't recommended an ng or nj tube in the interim if things are so dire.

You should read it again. She does not say G tube.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:If you are going the g tube route (which is more invasive and requires a surgery) why not get an ng tube now? It is super simple and not a big deal at all. It is a very easy solution. I don't at all.

I don't see any mention of a G tube.

See 14:16. She says they are getting one. I have a very hard time believing that if that is the route, a doctor hasn't recommended an ng or nj tube in the interim if things are so dire.

You should read it again. She does not say G tube.

That is what she means. No one talks about an ng tube that way. It really is no big deal and a stop gap.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:"Breastmilk donated or sold online is often tainted, study says."

http://www.nytimes.com/2013/10/21/health/breast-milk-donated-or-sold-online-is-often-tainted-study-says.html

I would probably chose a g-tube or try harder with formula before I would feed my baby a stranger's milk. Anyway, ask your doctor.

That's pretty scary. Although I wonder what they would find in a study analyzing milk that pumping moms have in the fridge/ freezer for their own babies. Because when I donated, I donated from the same batches that I fed my own child. I was always careful about cleaning my hands, bottles, pumping supplies, etc. It's not like I had lax hygiene for donated milk.

I read the study and it was deeply flawed. THey only accepted milk from people who didn't care who it was going to. Anyone who asked about the baby was discounted. They also didn't insist on any particular method of transport (including accepting milk that had not been packed with ice or adequately kept frozen), and there were issues with when and how they tested it.

Your interpretation of the study, and the conclusions you draw based on your interpretation, are what are deeply flawed here. The point is that breastmilk - regardless of who donates it or where - is frequently tainted with illness-causing bacteria. Your criticisms of the study are irrelevant to the common presence of staph, salmonella, and so on. I hope the OP doesn't have the same blinders on, or share your circular reasoning and cherry picking of the data. Whatever. I just really hope the OP's baby does well. We all love our babies but we all have very different risk tolerances.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:"Breastmilk donated or sold online is often tainted, study says."

http://www.nytimes.com/2013/10/21/health/breast-milk-donated-or-sold-online-is-often-tainted-study-says.html

I would probably chose a g-tube or try harder with formula before I would feed my baby a stranger's milk. Anyway, ask your doctor.

That's pretty scary. Although I wonder what they would find in a study analyzing milk that pumping moms have in the fridge/ freezer for their own babies. Because when I donated, I donated from the same batches that I fed my own child. I was always careful about cleaning my hands, bottles, pumping supplies, etc. It's not like I had lax hygiene for donated milk.

I read the study and it was deeply flawed. THey only accepted milk from people who didn't care who it was going to. Anyone who asked about the baby was discounted. They also didn't insist on any particular method of transport (including accepting milk that had not been packed with ice or adequately kept frozen), and there were issues with when and how they tested it.

Your interpretation of the study, and the conclusions you draw based on your interpretation, are what are deeply flawed here. The point is that breastmilk - regardless of who donates it or where - is frequently tainted with illness-causing bacteria. Your criticisms of the study are irrelevant to the common presence of staph, salmonella, and so on. I hope the OP doesn't have the same blinders on, or share your circular reasoning and cherry picking of the data. Whatever. I just really hope the OP's baby does well. We all love our babies but we all have very different risk tolerances.

So you believe most women out there are feeding their children breast milk containing staph and salmonella?

[Anonymous]

If breastmilk is so frequently tainted then why don't more babies consuming frozen bm get sick. Both my kids drank plenty of my frozen breastmilk. I donated an excess 500 oz as we'll through milkshake.

To OP, my heart goes out to you. Wish I still had milk. I hope your baby's reflux issues are alleviated soon. I had an tiny, under 5 lb full termer so I can remember the anxiety about feeding and growth but we never faced what you are facing.