Combination of symptoms - could they be connected?

Anonymous
I hate that I’m putting this all on DCUM, but here we go. Apologies for how long this is.

DH is 38. Has been an avid runner and cyclist up until a couple years ago.

2 years ago, he had a seizure when we were sitting at home. It was the scariest thing I’ve witnessed. Called 911, spent 5 days in the ER. They tested everything - MRI, CT scan- in terms of his brain and couldn’t find anything wrong and chalked it up to a fluke seizure. The reason he stayed in the hospital so long was because his BP was 220/120 on arrival and they couldn’t get it down until about day 3 with all sorts of meds. While there, they did all sorts of testing on why his BP was so high - echo, eeg, some sort of test on his liver and kidneys, tons of bloodwork, etc - and they couldn’t find anything for his BP either. He was released when they found the right cocktail of BP meds.

He spent 7-9 months physically and mentally drained from getting used to the BP meds and eventually was able to tweak them (under his Dr’s care) down to 3.

About a year ago (so a year after the seizure) he also developed anxiety and mild depression and was put on 10mg of citalopram. It helped, and he then tapered down to 5mg.

About 6 months ago, he started feeling very tired and weak and his Dr sent him to an endocrinologist, where he discovered he had low T and high FSH. He subsequently did a fertility/ sperm test and found out his body doesn’t produce viable sperm. He has a follow up next week to discuss what that all means and to possibly get a referral for a reproductive endocrinologist (having a baby isn’t on our mind right now, despite me being 35 - I just want him healthy).

1.5 months ago, he had another seizure. We never expected it to happen a second time given no evidence of anything in the brain, though I know it’s possible even without that. Again, it was scary, traumatizing, and I think we’re both having some PTSD from it. He ended up in the ER again but they let us go home after about 18 hours. They did do another MRI/ CT scan and again showed nothing. I asked him to talk to his PCP about his possible sleep apnea, and they’ve scheduled a sleep study - I’m going crazy over here on google and looking at anything that may be causing this.

2 weeks ago, he started showing signs that we thought were indicative of having another seizure - he was dizzy, incredibly nauseous (couldn’t stop vomiting), felt “off”, and was just incredibly ill. It’s how he felt 2 months ago before having a seizure. The seizure never came, but these symptoms lasted for about 24 hours and only got worse. I ended up bringing him to the ER because he kept almost passing out, starting to have mini hallucinations, couldn’t keep anything down for over 24 hours at that point, but what was most scary was his anxiety was through the roof and he was having full blown panic attacks - couldn’t stop shaking, had incredibly low mood swings (couldn’t stop crying) etc. They admit him to the ER and within a few hours his Covid test came back positive. They sent him home, but in the meantime had given him 2 IV bags of fluid, an anti-nausea, and a heavy anti- anxiety, all of which helped.
Covid would explain some/ most of that, but I also feel that he could’ve just happen to have Covid (like how many people are testing positive with no symptoms), but something else was going on.

Yesterday, he had a full blown panic attack again. It’s on and off all day - his heart rate was sky high, he was shaking, couldn’t sit still, was having these really low mood swing again (crying on and off), and couldn’t calm down. It lasted on and off all day until he finally went to bed. He was ok when he woke up this morning and has gotten better throughout the day.
He called his PCP this morning first thing and has an appointment on Thurs AM to come in regarding the anxiety attacks. I am hoping he prescribes him something for when it’s that bad, but obviously we want to know what’s causing it.

A little about DH/ his lifestyle:
-His diet is not bad, but not great. Fluctuates between healthy phases and and unhealthy phases. He was drinking a lot - 3 drinks on weeknights and probably 8-10 on weekend nights. It’s been a bone of contention, but since the second seizure he’s cut back and we don’t drink during the week anymore and cut back the weekend amounts. Both sets of anxiety/ panic attacks were after a weekend of drinking, though. I do think it could be related, but wondering why now?
-I am not sure if the hormonal issues/ sperm thing is related
-I do think he has pent up emotions from his childhood (no major trauma but just typical mom/dad issues and how they raised him), and he has a pretty stressful job


What I am asking is - Is there anything else we should be doing? Is there something I am not thinking of? I love him so much and hate to see him in physical and mental pain. I just have to wonder if this could ALL be related - the seizures, the high BP, hormonal issues, anxiety etc — or has he truly just been dealt a bad hand?









Anonymous
OP here. Forgot to add - he got connected with a neurologist after his second seizure, took a while to get us in, but we see her in 2 days (same day as PCP appt).
Anonymous
Did they do an EEG? I didn't see you mention that, it's pretty common post seizure and shows if the brain wave activity is spiking regularly.
Anonymous
OP here. They did do an EEG the first time and it showed nothing.
Anonymous
I’m sorry you guys are dealing with this. I have a friend who had a huge seizure when under significant stress many years ago. Your story resonates with me because of that experience.

I recall reading about some specialty clinics where they do multi-disciplinary work on complicated cases. I did some searching and found this one. I don’t think it’s the one I was originally thinking of, but maybe they could be a starting point? I’m sorry you are going through this. https://www.ucsfhealth.org/clinics/neurology-complex-diagnosis-clinic
Anonymous
OP, definitely follow up with the PCP, neurologist, endocrinologist. And ask for a referral to a geneticist.
Anonymous
My cousin who is 52 had a seizure after doing a long run on a hot day and becoming dehydrated. He is also a big fan of whiskey.

His hospital found nothing, zero - but said this happens with men who over-exert themselves / dehydrate and are drinkers.

I guess the only thing you can control is the liquids. Drink water, cut out the booze.
Anonymous
Anonymous wrote:My cousin who is 52 had a seizure after doing a long run on a hot day and becoming dehydrated. He is also a big fan of whiskey.

His hospital found nothing, zero - but said this happens with men who over-exert themselves / dehydrate and are drinkers.

I guess the only thing you can control is the liquids. Drink water, cut out the booze.


Same thing happened to my 45 y/o BIL due to drinking. It is scary but they found nothing wrong besides the alcohol intoxication.
Anonymous
Anonymous wrote:
Anonymous wrote:My cousin who is 52 had a seizure after doing a long run on a hot day and becoming dehydrated. He is also a big fan of whiskey.

His hospital found nothing, zero - but said this happens with men who over-exert themselves / dehydrate and are drinkers.

I guess the only thing you can control is the liquids. Drink water, cut out the booze.


Same thing happened to my 45 y/o BIL due to drinking. It is scary but they found nothing wrong besides the alcohol intoxication.


OP here. Hmmm… you could be on to something. Though, he hasn’t really been exercising in the last couple years (after his first seizure, his BP meds kept him completely out of whack). For you and the other PP, had he been actively drinking during or before these seizures? DH probably had a couple the night before his first one (but can’t remember) and before his last one, he had about 4-5 beers the night before. But has not been super physically active. He does have a history of dehydration though.
Anonymous
It sounds like it’s the drinking. My husband would truly not be able to function if he drank that much. Good luck.
Anonymous
My friend found out her husband was a closet alcoholic when he went away on a Reserves weekend (no alcohol). He had a seizure and was hospitalized. He was going through withdrawal. I would have a talk with him.
Anonymous
Anonymous wrote:My friend found out her husband was a closet alcoholic when he went away on a Reserves weekend (no alcohol). He had a seizure and was hospitalized. He was going through withdrawal. I would have a talk with him.


OP here. I spend all day with him or in his vicinity (both WFH) and he doesn’t do much without me. We don’t keep a lot of alcohol in the house (due to us cutting way back) and I would know if he was hiding/ sneaking it. The two times he had a seizure were on a weekday and we were together the evening before.
I fully recognize he (and to some extent, we) had been drinking too much, however, and I’m not saying it wasn’t a factor or the main factor - but I guess it didn’t occur to me that the amount I describe could do it, especially where with the second one, he had cut way back.

Anonymous
I know someone who has "unexplained" seizures and we are 99% sure they come about when she tries to stop drinking. She's an alcoholic. They're withdrawal seizures. Also has some mental health issues - I think diagnosed as bipolar.

Good luck figuring this out. Your husband is lucky he has you. Stay on it and make sure you're really watching what he's doing/eating/drinking to try to help him figure this out.
Anonymous
OP here. Thanks everyone. The seizures are scary enough, but seeing him in the midst of a panic attack is awful and I just can’t help but thing everything is related. Might not be though.
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