"Lost in the Storm": Slate article about local child with suicidal depression

Anonymous
"The practice head, who has never once met Ash and has not had a single helpful thing to say to us since Ash started group DBT therapy in September, tells us that based on the therapist’s assessment, Ash is not safe at home and we must take her to the emergency room immediately, or else they will sign an emergency petition to have her removed by the police from our care."

This section really stood out for me. It's so wretched for a provider to do this. When we were researching providers a mom told me this nightmare story about how this type of thing happened to her. The head of the practice apparently has done this to several patients accusing the parents of abuse. The provider is crazy as they parents cleared but caused huge trauma for kids who were already in a mental health crisis. We left the practice very quickly after hearing that.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I read the story. I've had some experience with my kid at an inpatient facility, and also lots of therapy and medication over the years.

I realize one of the challenges of an article like this is trying to condense a very long, complicated story into a single written piece. I also appreciate the need to leave out some details due to privacy issues.
That said... there was one part of the story that stuck out for me, and when I discussed the article with my DH, he related that he had the same reaction when he read it.

There is a point in the process where the care team is recommending an outpatient program. (This is after the second, more successful inpatient program.) The author says it sounds great, but then when the time of the program is changed to 4:30-7:30, the author makes a flat statement that is is "impossible with two other kids at home." The recommendation for this program even comes up again in the article, and author states they instead went with a virtual option. One they were doubtful would be helpful, and sure enough wasn't.

I fully appreciate that for a person with this severe level of mental health needs there will never be "one thing" can magically fixes everything. I also understand (as I said above) that I don't have all of the details.
However, while my reaction throughout reading this article had been nothing but sympathy, this part brought me up short. I just couldn't understand why this particular treatment was deemed impossible. At this point, the kid hasn't been in school, the author is taking family leave and ultimately quitting her job. There is already tremendous upheaval in their family life. I can only imagine the amount of upheaval that the siblings of this child are already experiencing. Needing to get a sitter, or arrange transport, or... something? That feels do-able based on all of the other things this family has done, and the crisis level of the suffering child. It left me scratching my head. Did anyone else have the same reaction? Am I missing something obvious?


I had exactly the same reaction. I also disagree with some of the responses you've received in this thread. 3:30-8:30 is actually a relatively easy time to find care for school-aged children. If one of my kids' friends' families had this happening in their life, I would take a sibling that was a similar/compatible age to one of my children in a heartbeat. But also, this program is only 2 months, right? Isn't the worst case scenario that she takes the two siblings with her? Picks them up afterschool and brings them back for bedtime? They can sit in a car for 5 hours for 2 months to save their sister's life, no? And that's absolute worst case, I'm sure there is something else you can do with them for some of that time... Some care you can get for them on some days. She also mentions a grandpa and a boyfriend, in addition to the dad. I totally get that not everyone has a village, and maybe they are cutting a lot of the explanation out, but the decision not to take that outpatient program seemed genuinely baffling to me.


Last year one of our kids had three hospitalizations. During each of those (lasted about a week) the whole family’s life is thrown upside down - if the facility allows visits, you try to visit (few people do), you are taking to doctors, you are super stressed about your child.

We have other children at home and we are trying to keep things stable/routine for them, and also not get fired from our jobs. Everyone is sympathetic at first, and then they just get tired of you being unreliable.

PHP or IOP programs can run for weeks - usually at least 2. You take any spot you can get so they can be far away. And then when they are home they aren’t fully stable so they needs lots of care.

I totally get why this family couldn’t make the program work. It’s so hard to balance the care for one child with the needs of your other kids. You do the best you can to care for all your kids.

It took nine months for my child to stabilize. You hit a point after a few months where you realize you can’t let every decision be dominated by what is going on with your one child - it’s not healthy for anyone and (at least for me) it was physically and emotionally unsustainable.


Yes, this is my feeling too. I also think that focusing on this one small piece of the story where the mom might be at fault is exactly part of the problem in sweeping the far worse systemic issues she was writing about under the table.

No parent is perfect, but this was so clearly *not* a bad parent, even if this one decision maybe wasn't right (not sure I think that, though). How about instead of blaming her, we work on getting more PHP options available so families don't have to make impossible choices over scheduling and transportation? And work on better emergency/crisis care so families don't have to feel like their only option is leaving their kids in literal prison?

My family is not in her shoes yet, but I'm terrified things like this could be in our future and doing my best to keep us out of them. I wish we had more options, and even just more understanding from the supposed professionals we have to interact with.


I agree with you 100%. The headline here is not "mom didn't choose IOP". The big issue (which we all know about) is the shameful lack of access to affordable, effective mental healthcare for our kids. The doors sometimes open wide if you can private pay, but even then, it can be tough to find someone willing to take on your child. It is a complete failure of our medical system and is just going to get worse as more and more kids are struggling now.

I am happy she shared her story because perhaps people who haven't experienced this will get how big a problem it is. Maybe eventually something will give.
Anonymous
It's really hard to make these choices. When you have a child with severe mental health needs and several without you are constantly finding yourself feeling like you are neglecting the others and you probably are. I would like to think I would have done the IOP but I could see how when faced with the exhaustion of years of trying to help one child and not seeing my other children I could do what she did. It would also mean the child in therapy would not see her siblings three times a week which might make her mental health worse.



Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:I read the story. I've had some experience with my kid at an inpatient facility, and also lots of therapy and medication over the years.

I realize one of the challenges of an article like this is trying to condense a very long, complicated story into a single written piece. I also appreciate the need to leave out some details due to privacy issues.
That said... there was one part of the story that stuck out for me, and when I discussed the article with my DH, he related that he had the same reaction when he read it.

There is a point in the process where the care team is recommending an outpatient program. (This is after the second, more successful inpatient program.) The author says it sounds great, but then when the time of the program is changed to 4:30-7:30, the author makes a flat statement that is is "impossible with two other kids at home." The recommendation for this program even comes up again in the article, and author states they instead went with a virtual option. One they were doubtful would be helpful, and sure enough wasn't.

I fully appreciate that for a person with this severe level of mental health needs there will never be "one thing" can magically fixes everything. I also understand (as I said above) that I don't have all of the details.
However, while my reaction throughout reading this article had been nothing but sympathy, this part brought me up short. I just couldn't understand why this particular treatment was deemed impossible. At this point, the kid hasn't been in school, the author is taking family leave and ultimately quitting her job. There is already tremendous upheaval in their family life. I can only imagine the amount of upheaval that the siblings of this child are already experiencing. Needing to get a sitter, or arrange transport, or... something? That feels do-able based on all of the other things this family has done, and the crisis level of the suffering child. It left me scratching my head. Did anyone else have the same reaction? Am I missing something obvious?


I had exactly the same reaction. I also disagree with some of the responses you've received in this thread. 3:30-8:30 is actually a relatively easy time to find care for school-aged children. If one of my kids' friends' families had this happening in their life, I would take a sibling that was a similar/compatible age to one of my children in a heartbeat. But also, this program is only 2 months, right? Isn't the worst case scenario that she takes the two siblings with her? Picks them up afterschool and brings them back for bedtime? They can sit in a car for 5 hours for 2 months to save their sister's life, no? And that's absolute worst case, I'm sure there is something else you can do with them for some of that time... Some care you can get for them on some days. She also mentions a grandpa and a boyfriend, in addition to the dad. I totally get that not everyone has a village, and maybe they are cutting a lot of the explanation out, but the decision not to take that outpatient program seemed genuinely baffling to me.


Last year one of our kids had three hospitalizations. During each of those (lasted about a week) the whole family’s life is thrown upside down - if the facility allows visits, you try to visit (few people do), you are taking to doctors, you are super stressed about your child.

We have other children at home and we are trying to keep things stable/routine for them, and also not get fired from our jobs. Everyone is sympathetic at first, and then they just get tired of you being unreliable.

PHP or IOP programs can run for weeks - usually at least 2. You take any spot you can get so they can be far away. And then when they are home they aren’t fully stable so they needs lots of care.

I totally get why this family couldn’t make the program work. It’s so hard to balance the care for one child with the needs of your other kids. You do the best you can to care for all your kids.

It took nine months for my child to stabilize. You hit a point after a few months where you realize you can’t let every decision be dominated by what is going on with your one child - it’s not healthy for anyone and (at least for me) it was physically and emotionally unsustainable.


Yes, this is my feeling too. I also think that focusing on this one small piece of the story where the mom might be at fault is exactly part of the problem in sweeping the far worse systemic issues she was writing about under the table.

No parent is perfect, but this was so clearly *not* a bad parent, even if this one decision maybe wasn't right (not sure I think that, though). How about instead of blaming her, we work on getting more PHP options available so families don't have to make impossible choices over scheduling and transportation? And work on better emergency/crisis care so families don't have to feel like their only option is leaving their kids in literal prison?

My family is not in her shoes yet, but I'm terrified things like this could be in our future and doing my best to keep us out of them. I wish we had more options, and even just more understanding from the supposed professionals we have to interact with.


I don’t think it’s just one thing that makes the author unsympathetic. I found her rejection of specialized school placement and complaining about the lack of financial resources a doctor-lawyer parenting team have to be offputting as well. Many of us have had RICA envy and the reasons for rejection are so shallow. I don’t think she is a bad parent, but I don’t think she recognizes her privilege and that is the problem. She has resources yet finds excuses.





Anonymous
Anonymous wrote:"The practice head, who has never once met Ash and has not had a single helpful thing to say to us since Ash started group DBT therapy in September, tells us that based on the therapist’s assessment, Ash is not safe at home and we must take her to the emergency room immediately, or else they will sign an emergency petition to have her removed by the police from our care."

This section really stood out for me. It's so wretched for a provider to do this. When we were researching providers a mom told me this nightmare story about how this type of thing happened to her. The head of the practice apparently has done this to several patients accusing the parents of abuse. The provider is crazy as they parents cleared but caused huge trauma for kids who were already in a mental health crisis. We left the practice very quickly after hearing that.


So if you don't take your child to the ER what is CPS really going to do? They aren't going to take custody of your child. If you say financially we can't afford it and it doesn't help since there aren't beds anyway, what options does CPS have if you prove you are trying and taking your child to appointments. It isn't like CPS are going to start arresting parents or charging parents whose kids are in a mental health crisis for neglect. I would assume if they call the police the police wouldn't just come take a child away and transport the child somewhere without discussing it with a crisis team. I would think the dad that is a neurologist would trump a psychologist.
Anonymous
Anonymous wrote:
Anonymous wrote:"The practice head, who has never once met Ash and has not had a single helpful thing to say to us since Ash started group DBT therapy in September, tells us that based on the therapist’s assessment, Ash is not safe at home and we must take her to the emergency room immediately, or else they will sign an emergency petition to have her removed by the police from our care."

This section really stood out for me. It's so wretched for a provider to do this. When we were researching providers a mom told me this nightmare story about how this type of thing happened to her. The head of the practice apparently has done this to several patients accusing the parents of abuse. The provider is crazy as they parents cleared but caused huge trauma for kids who were already in a mental health crisis. We left the practice very quickly after hearing that.


So if you don't take your child to the ER what is CPS really going to do? They aren't going to take custody of your child. If you say financially we can't afford it and it doesn't help since there aren't beds anyway, what options does CPS have if you prove you are trying and taking your child to appointments. It isn't like CPS are going to start arresting parents or charging parents whose kids are in a mental health crisis for neglect. I would assume if they call the police the police wouldn't just come take a child away and transport the child somewhere without discussing it with a crisis team. I would think the dad that is a neurologist would trump a psychologist.

CPS can move the kid to a foster home while sorting things out.
Anonymous
It's a story about lack of support.
From her perspective, there aren't enough therapists, schools who will work with higher needs.
But the lack of support begins at home. She could get more help if she hadn't divorced..if she would just give up more of her career..
No one has much sympathy, even here, because she- the mother- not the parent- the Mother, hasn't given up enough of herself.
Sickening.
Anonymous
Anonymous wrote:I found the writer not very likeable. DMV has lots of resources and specializations available. Very trained specialists and high quality professionals. I don’t think this is the best case of mental health shortages in the US.

Try flyover country where you may drive 5 hours to see a mental health specialist.

Her daughter sounds very difficult and may not be stable at all. Sounds very tough.


Tell us about your child's mental illness and the ease in which you found "lots of resources available".
Anonymous
Anonymous wrote:
Anonymous wrote:"The practice head, who has never once met Ash and has not had a single helpful thing to say to us since Ash started group DBT therapy in September, tells us that based on the therapist’s assessment, Ash is not safe at home and we must take her to the emergency room immediately, or else they will sign an emergency petition to have her removed by the police from our care."

This section really stood out for me. It's so wretched for a provider to do this. When we were researching providers a mom told me this nightmare story about how this type of thing happened to her. The head of the practice apparently has done this to several patients accusing the parents of abuse. The provider is crazy as they parents cleared but caused huge trauma for kids who were already in a mental health crisis. We left the practice very quickly after hearing that.


So if you don't take your child to the ER what is CPS really going to do? They aren't going to take custody of your child. If you say financially we can't afford it and it doesn't help since there aren't beds anyway, what options does CPS have if you prove you are trying and taking your child to appointments. It isn't like CPS are going to start arresting parents or charging parents whose kids are in a mental health crisis for neglect. I would assume if they call the police the police wouldn't just come take a child away and transport the child somewhere without discussing it with a crisis team. I would think the dad that is a neurologist would trump a psychologist.


Here’s what happened to us. The police showed up and took our child to the closest ER (not the best for this). At the ER, I was told that if we did not consent to having her placed, they were going to call CPS and have CPS sign off on it. I was able to get her treating doctor on the phone who was able to convince the social workers that it was better for me to take her home and he would see her first thing in the morning for a more thorough assessment. But he’s great and answers his pager.
Anonymous
Anonymous wrote:"The practice head, who has never once met Ash and has not had a single helpful thing to say to us since Ash started group DBT therapy in September, tells us that based on the therapist’s assessment, Ash is not safe at home and we must take her to the emergency room immediately, or else they will sign an emergency petition to have her removed by the police from our care."

This section really stood out for me. It's so wretched for a provider to do this. When we were researching providers a mom told me this nightmare story about how this type of thing happened to her. The head of the practice apparently has done this to several patients accusing the parents of abuse. The provider is crazy as they parents cleared but caused huge trauma for kids who were already in a mental health crisis. We left the practice very quickly after hearing that.


That’s not fair to the practice. The therapists are often in their 20s. They all have regular check ins with the practice head especially on difficult cases and when something this serious is going on, it would be weird not to have the more senior practitioner involved to deliver the bad news. If a DBT provider is telling you that you need to go to the ER, it’s bad. And unfortunately, the whole system is set up to create a fear of liability. They have a legal obligation to report siotuations of imminent harm. So if the kid is articulating a concrete plan for serious self harm and is not participating in therapy (which it sounds like she was not, as the author said she hated it), the practice has to report it.

There aren’t easy answers here. If the author was told something like — look, there is a 20% chance she kills herself in the next week. You can eliminate that by putting her in patient but it’s unclear whether that placement will make her somewhat better or somewhat worse. What is the right choice? I don’t know but that is essentially the choice facing these parents. In some ways, her story is less about the lack of resources (as she was offered a ton of resources) but more about how we don’t have great treatments for some types of mental illness. It’s like having a treatment resistant cancer but then getting mad at the doctors because the existing treatment methods are ineffective or have side effects.

I do think the author’s child case is complicated by the fact that she is so verbal and high IQ—she is running circles around these providers (to her own detriment) and is able to express/articulate things in a way that most kids that age can’t. My number one advice for the author would be that she has to find something else that this kid can spend her mental energy on rather than turning it all inwards. At this point she sounds like a caged tiger who is turning all her energy inward.
Anonymous
Left out of this is how many ERs don’t code an emergency psych visit correctly and insurance companies won’t cover it. So you get a bill for thousands of dollars later for an emergency ER visit.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:"The practice head, who has never once met Ash and has not had a single helpful thing to say to us since Ash started group DBT therapy in September, tells us that based on the therapist’s assessment, Ash is not safe at home and we must take her to the emergency room immediately, or else they will sign an emergency petition to have her removed by the police from our care."

This section really stood out for me. It's so wretched for a provider to do this. When we were researching providers a mom told me this nightmare story about how this type of thing happened to her. The head of the practice apparently has done this to several patients accusing the parents of abuse. The provider is crazy as they parents cleared but caused huge trauma for kids who were already in a mental health crisis. We left the practice very quickly after hearing that.


So if you don't take your child to the ER what is CPS really going to do? They aren't going to take custody of your child. If you say financially we can't afford it and it doesn't help since there aren't beds anyway, what options does CPS have if you prove you are trying and taking your child to appointments. It isn't like CPS are going to start arresting parents or charging parents whose kids are in a mental health crisis for neglect. I would assume if they call the police the police wouldn't just come take a child away and transport the child somewhere without discussing it with a crisis team. I would think the dad that is a neurologist would trump a psychologist.

CPS can move the kid to a foster home while sorting things out.


Mom is a layer, dad is a neurologist. They can afford to litigate. They can also go after a psychologist who never personally saw a patient for signing anything related to care that requires an actual evaluation. CPS is not going to go after a family with resources who choose to use those resources to fight back. It's not worth the trouble.
Anonymous
They have the resources to pay for private school and should have done so. Fusion, etc.
Anonymous
Anonymous wrote:They have the resources to pay for private school and should have done so. Fusion, etc.


Fusion is $50K per year! I find it odd that everyone thinks they understand this family's finances. She's not a highly-paid corporate lawyer. It also looks like she eventually had to quit her job. Her husband could very well have medical school loans that diminish his take-home pay. Maybe they have other family expenses and pressures we don't know about. I find it sad that many of the posters are nitpicking this family's decisions rather than focusing on the much bigger issue raised about the lack of options overall.

I'm also not sure that the private placement they were offered was actually RICA. Doesn't RICA offer accelerated classes? I'm wondering if it was actually Sheppard Pratt in Rockville. My nephew received a placement there. While we are eternally grateful for the mental health care he received through their program, it is woefully inadequate when it comes to academics. If I had a 2E kid, I would have concerns, too.
Anonymous
Anonymous wrote:They have the resources to pay for private school and should have done so. Fusion, etc.

Not all docs and attys make big bucks.
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