Anonymous wrote:Hi OP. I have suffered from a similar range of symptoms since last June. After some word-finding episodes, dizziness, tingling and brain fog I went to the ER a few times, they did MRIs and confirmed no stroke and diagnosed me with migraines. This was strange to me since I have no history of migraines and had no headaches, but apparently there is a thing called vestibular migraine which can cause those symptoms with no headache. When I questioned why these would suddenly arise it was attributed to stress and perimenopause (I'm 38).
That still did not seem right to me, and then I started developing frequent canker sores inside my mouth, which I hadn't had since I was a kid. I'll spare you all the additional details, but I eventually discovered mast cell activation syndrome (MCAS), which can cause all of these symptoms and many others. I went to an allergist with my suspicions and sure enough, my tryptase levels were elevated and he diagnosed me with MCAS.
So my recommendation is to go to any doctors you can find and ask if they can test you for that. I suffered for many months and saw many doctors, and no one could help me. It was very frustrating and I thought I was going crazy, but I wasn't. Besides finally having a diagnosis that makes sense, the other good thing is that the first level of treatment is an increase in the Zyrtec I had already been taking. I also made some dietary changes, which helped a lot.
I am someone who usually brushes off any sickness and only goes to a doctor when absolutely necessary, so feeling like a hypochondriac as I went from doctor to doctor was difficult. I hope you figure out what's wrong. Good luck.
I learned about this on DCUM. mast cell thing. I do get brain fog and fatigue right before migraine. I'm not OP. I think those are my aura symptoms. mine are usually week leading up to period. it's hormonal.
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