Since language delays and autism looks similar, it makes sense to have a SLP who can evaluate language and a neuropsychologist who can distinguish autism working together in evaluating and administering ADOS. |
OP, take a look at these youtube videos. The site is by British psychologist Dorothy Bishop who is also an Oxford researcher. She specializes in language disorders and has been critical on autism drowning out language disorders in the public and among professionals. https://www.youtube.com/user/RALLIcampaign Here's an interesting blog, too: http://deevybee.blogspot.com/2016/10/the-allure-of-autism-for-researchers.html The allure of autism for researchers "...But I do wonder why there is such a skew in interest towards autism, when many children have other developmental disorders that have long-term impacts. Where are all the enthusiastic young researchers who want to work on developmental language disorders? Why is it that children with general learning disabilities (intellectual retardation) are so often excluded from research, or relegated to be a control group against which ASD is assessed?" |
+1. Head in sand. |
Yeah, these kinds of broad-based cultural criticism pieces are not really useful on an individual level. Yes, it's good to understand that people are primed to "see" autism now. But adopting a fringe view and turning into a way to guide what kind of diagnostic tests to consider ... not really very useful. As parents, I believe we have the responsibility to carefully consider the opinions of mainstream professionals before we decide to stake out an alternate route. That researchers "skew" towards autism really says not much at all about what OP should do about the fact that educational professionals and at least one medical professional thinks that her child shows signs of an ASD. |
Why does every language disorder thread have to be derailed by autism posters? |
The actual question here was "why do teachers and a psychologist think that my child with a MERLD diagnosis has an ASD." So actually it seems like this is the place to have that conversation. |
And the answer is because a lot of kids have been given incorrect autism educational labels because it suits school programming. So then the teachers see those kids, and think OP's child is like them, and so they must have autism as well. If you study the numbers, this is clear. |
The answer is simple: Many teachers and psychologists are not trained in language disorders nor do they understand them. Autism is the catchall for we don't know what is wrong with your child and most "professionals" would rather give a quick diagnosis than figure it out (i.e. genetic testing, MRI/Cat Scan). |
This happens frequently, but not our experience at all. We have a language educational label only. The school choose it without consulting us. (we could approve the IEP but had no input in it). |
Again folks, the point of ABA is different from ST. (The point isn't to increase receptive language.) And please stop making vast generalizations "about most kids with MERLD...," especially since the term doesn't apply to children past preschool age and you're using MERLD as a descriptor for older children that is now 4 years out of date. The term "MERLD" didn't exist until the 2000 publishing of the DSM, so you're basing your assumptions about treatment on research that is REALLY old. OP, developmental pediatrician often don't definitively "rule out" autism in very young children. Sometimes they do, they may just not be ruling it in at this point. A lot of parents rather cling to the fact that their kid wasn't diagnosed with autism at age 2 or 3 or whatever. It seems like many parents on here had a preschooler with MERLD who are now on target and no longer have any delays. So they don't really have SN kids. So I'm not sure how much their advice or experience is relevant to you, and I don't understand why they frequent this board so often other to express umbrage that at one point in time someone thought their kid had autism. Maybe your preschooler will outgrow the current expressive and receptive speech delays and won't have any other communication disorder, LD, or ADHD. However, most kids who have continued speech delays are more likely to have one of the above. This is based on the research: https://www.understood.org/en/learning-attention-issues/child-learning-disabilities/communication-disorders/understanding-language-disorders https://www.understood.org/en/learning-attention-issues/treatments-approaches/early-intervention/whats-the-difference-between-learning-issues-and-delays https://www.understood.org/en/learning-attention-issues/getting-started/what-you-need-to-know/the-difference-between-speech-language-disorders-and-attention-issues From personal experience, I can tell you kids who are severely affected by ADHD, or Communication Pragmatics Disorder, or APD can struggle just as much as a child on the spectrum. It just make sense to do a full educational evaluation when they're old enough whether or not they need social or academic supports. We repeat educational evaluations with our kid since he didn't age out of his delays every 3 years (and any kid who has an IEP will have this). Regardless of what your child's diagnosis will be at age 6 or 7, it sounds like teachers are questioning his diagnosis, b/c yes, many teachers are unfamiliar with language disorders, but more than likely they're questioning it b/c of something he's doing or not doing behaviorally. So you need to make sure that he's in the right school and getting the right kind of supports. |
ADHD, Communication Pragmatics Disorder or APD can benefit from ABA. Those are different than language disorders. You keep intermixing them. Exactly what would ABA do for a child who strictly has language issues? What do you see that looking like? Receptive and expressive issues do exist in kids. If you want to call it something different, fine but that is best fitting for some kids. If you feel so strongly that kids should get neuropsych's when the professionals working with them do not, then, why don't you offer to pay for the unnecessary evaluation to show you are right? |
Honey, any young child who has ADHD, APD, or a language or communication delay or a disorder that affects his or her behavior will benefit from behavioral therapy and/or ABA. So not every child with delays or a disorder has behavioral issues. It's sad that you're so bitter and hurting, but read the research. It's not about me being right; it's about what the research says. Ask the public school or go to KKI or Childrens for testing under insurance if you don't have the money. You can make informed decisions based on clinical evidence or opt out like anti-vaxers do out of fear. |
You clearly don't know language disorders as ABA is not recommended. But, apparently you haven't spoken to any language disorder specialists who actually write the literature. You are giving out bad information. We can comfortably pay for testing and have. Our insurance would cover it too. Our child has been repeatedly tested and we are comfortable with the testing results. One has to assume you didn't get the proper services, evaluations and find a way to get your chid's needs met if you have to spew the only way to do things which is incorrect for language kids. You recommend speech therapy, not ABA. |
ABA principles are applicable to children who are having issues with behavior as well as
"...used around the world to help all kinds of people overcome all kinds of social and behavioral problems such as quitting smoking, addressing personality disorders, relationship counseling, obsessive compulsive disorders, and many other common issues. Behavioral principles only began being used for children with autism in the late 1960’s and 1970’s. Studies are available that support the use of ABA programming with children affected by any number of different disabilities including Downs Syndrome, CP, Emotional Disorders, General Developmental Delay, etc." http://www.prioritiesaba.com/resources-links/myths-and-misconceptions-about-aba Or read about how a SLP uses ABA. http://www.speakforyourself.org/uncategorized/accept-behavior-towards-non-autistic-child/ The same goes for things like the Kazdin Method (developed with kids with ODD) or Social Thinking Curriculum was developed with kids who fall under, "Diagnostic Label Attention Issues (ADD/ADHD), Anxiety, Asperger's Syndrome, Autism Spectrum Disorders, Language or Learning Disability, Nonverbal Learning Disability, Social Communication Disorder, Traumatic Brain Injury, No Diagnosis, Other..." I guess people who are using definitions that were made nearly 20 years ago, may not understand what type of therapies are used today. |
The things you are quoting are for behavioral issues. If a child has behavioral issues, then yes, ABA would be a recommendation but you are making a huge leap to assume kids with language disorders have behavioral issues. If a child with a language disorder also has adhd, it makes sense, but it does not make sense for a child without behavioral issues. We tried it. We understand exactly what it is. It was a huge waste of time as we had no behavioral issues so she did very simplistic speech trying to force my child to talk. It didn't work and the SLP's approach was much better and appropriate. You need to cater services to the particular child. Additionally, in less a child has an Autism diagnosis, its very hard to get ABA paid for. You do understand how much it costs and most families cannot afford it, correct? You are lumping all kids together and treating all disorders the same when they are not the same. Do you know how inappropriate it is to try to force a child to speak when they are unable? Its the wrong approach. Read Dr. Camarata's thoughts on it which are geared to late talkers (kids who don't start talking till after 3-4) and actually has professional and personal experience in this. I don't get why you are so insistent that all kids need ABA and a neuropsych? You may have failed your child early on with not getting enough or the right interventions but that is not the case in all families with all kids. Some of us recognized the concerns early on and got the most appropriate treatments. Now, back to the original topic that you derailed as usual. |