I have a 12th and a 9th grader, both have had 4 neuropsych evaluations so far and I can even count how many interventions, specialists etc. I think of the neuropsych as more of a checkup on the results measures now. The diagnoses have shifted over time, but they now match what our experienced developmental pediatrician suggested when they were both in preschool. She explained that sometimes you can only be certain of a diagnosis once you see how a child responds to an intervention. I’ve come to realize that the people whose perspective was the most helpful were the practitioners who have seen lots of kids develop over a longer period of time. They were able to provide helpful context and interpretation about the data I had and the likely trajectory for them developmentally along with the best interventions at that point in time. For us those were an experienced developmental pediatrician, a first grade teacher, a special education teacher, a former special education teacher turned ABA therapist, an Orton Gillingham Fellow, and a parent who had adult neurodiverse children similar to ours who had successfully launched. In each case I would, somewhat desperately, ask what should I be doing more of and less of now and in the near future. How do I know when to change how we’re supporting? Once we had enough trust they could share their perspective and I understood that their predictions and suggestions might not be perfect. I think the breakdown in trust between parents/ schools (for many legitimate reasons) is a huge barrier to developing this sort of relationship with teachers now. But I will forever be grateful to the people Who took risks to coach me through parenting my kids and continue to do so. To answer OPs question- Laurie Smith in Vienna celebrates with us when my daughter repeats evaluations with her. She excitedly shows her how far she’s come from the kindergartner who first walked into her office. She is amazing for dyslexia, dyscalculia, and ADHD. Anna at Paving Pathways ABA is an amazing professional and partner for complicated kids. She helped me understand that although I wanted to differentiate between ADHD/ Anxiety/ Autism, that the most critical thing to do was to support my child behaviorally. And then she taught us how. Our developmental pediatrician has retired. Dr Dan Shapiro has a similar energy and perspective so I attend his classes when possible. |
Thank you so much for taking the time to share this reflection. I think this is exactly what I needed to hear, and it's very valuable coming from someone with 2 older kids. Wishing you all the best on this journey and meaningful successes to your children as they go forward. |
+100. Some evaluators may be more likely to use the mandatory language - I’m guessing its the ones who are private pay. But a good professional would likely not say “require” except in very clear-cut cases. My other concern is neuropsychologists giving clinically poor recommendations because they are not in fact specialists in your child or the underlying condition. For example, recommending approaches to anxiety that make it worse (over accomodating). And a lot of their recommendations are canned based on what they assume are limitations especially wrt autism. |
Our private eval used a mix of "should receive", "should include", "would benefit from", "requires" and "needs". |
If you can, please share the name of the practice, please? |
CAAT |
We did not use CAAT, due to scheduling, but have seen their evals and think they are written so well! They give a good road map about how to think about and approach. Ours was more of a template and checklist that could have been an internet download. To the previous comment on breakdown on trust with schools & parents, absolutely an issue, now we try to approach new teachers with building rapport first. We have seen many go on the defense and thus unable to help or even effectively communicate to us to be able to bring in the help. |
PP here. I agree, we were very happy with it. I definitely did not get the impression anything was copy-pasted or based on a template. The recommendations are really tailored to our child. |
| IMO, copy and pasted recommendations are fine as long as they’re appropriate. My kid with ADHD has similar needs to other kids with ADHD - no need to reinvent the wheel. Each recommendation should be thoughtfully included, but I see no reason why each recommendation needs to be originally written for my kid’s specific report. |
Well if there are evidence-based recommendations then sure. The problem is a lot are not evidence based and assume challenges your kid may not have. Maybe this is more true for autism than ADHD. |
Well yeah I don't think anybody is looking for an evaluator to use completely original wording for every line of the report. That would start to get weird pretty quickly. I think most of us just want a report that is specific to our child meaning the recommendations selected have been thought through in terms of the child's specific strengths and challenges. Not just here's a bunch of things that might help a child with diagnosis X. |
how is Resnick? |
| Jody Bleiberg=report was cut & pasted from another report. Horrible testing experience for DC. Too curt and only seemed interested in $$ and moving you on and out. No bueno. |
I got better recommendations from our educational consultant who is a former special ed teacher than anyone else. |
Would you like to share who it was? Or is this just some bizarre brag? |