When Child Is Too Dyslexic for Dyslexia School?!? Help!

[Anonymous]

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

Op, you have to figure out this kids IQ. If he can, he would, you know? Get tested yesterday

[Anonymous]

Anonymous wrote:How recently has he had a full neuropsych done?

Op here. DC was tested in public but it was during Covid before enrolling in private. So over 2 years ago. The testing was not adequate for sure especially because of how it was conducted during virtual so there was some done virtually, and some done through a plexiglass screen. And some not done at all. We have requested it again through the public schools and will also request an IEE. In that process now.

dC was tested by a pediatric ophthalmologist to rule out vision issues and also a pediatric audiologist at children’s to rule out any hearing impairments. Both fine.

[Anonymous]

Anonymous wrote:

Anonymous wrote:How recently has he had a full neuropsych done?

Op here. DC was tested in public but it was during Covid before enrolling in private. So over 2 years ago. The testing was not adequate for sure especially because of how it was conducted during virtual so there was some done virtually, and some done through a plexiglass screen. And some not done at all. We have requested it again through the public schools and will also request an IEE. In that process now.

dC was tested by a pediatric ophthalmologist to rule out vision issues and also a pediatric audiologist at children’s to rule out any hearing impairments. Both fine.

Get a private neuropsych. You have no idea what you’re dealing with right now, at all. What if he has an ID? You need to approach this in a whole new way.

[Anonymous]

Anonymous wrote:

Anonymous wrote:How recently has he had a full neuropsych done?

Op here. DC was tested in public but it was during Covid before enrolling in private. So over 2 years ago. The testing was not adequate for sure especially because of how it was conducted during virtual so there was some done virtually, and some done through a plexiglass screen. And some not done at all. We have requested it again through the public schools and will also request an IEE. In that process now.

dC was tested by a pediatric ophthalmologist to rule out vision issues and also a pediatric audiologist at children’s to rule out any hearing impairments. Both fine.

You don’t need to request a IEE, you do one. If you disagree with the schools results you then present your own. I think you need an advocate and again, a private complete neuropsychologist examination. You gave a far more vested interest in getting your kid completely evaluated than the school, right?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:How recently has he had a full neuropsych done?

Op here. DC was tested in public but it was during Covid before enrolling in private. So over 2 years ago. The testing was not adequate for sure especially because of how it was conducted during virtual so there was some done virtually, and some done through a plexiglass screen. And some not done at all. We have requested it again through the public schools and will also request an IEE. In that process now.

dC was tested by a pediatric ophthalmologist to rule out vision issues and also a pediatric audiologist at children’s to rule out any hearing impairments. Both fine.

You don’t need to request a IEE, you do one. If you disagree with the schools results you then present your own. I think you need an advocate and again, a private complete neuropsychologist examination. You gave a far more vested interest in getting your kid completely evaluated than the school, right?

You have to request one if you want the district to pay for it.

[Anonymous]

Anonymous wrote:

Anonymous wrote:How recently has he had a full neuropsych done?

Op here. DC was tested in public but it was during Covid before enrolling in private. So over 2 years ago. The testing was not adequate for sure especially because of how it was conducted during virtual so there was some done virtually, and some done through a plexiglass screen. And some not done at all. We have requested it again through the public schools and will also request an IEE. In that process now.

dC was tested by a pediatric ophthalmologist to rule out vision issues and also a pediatric audiologist at children’s to rule out any hearing impairments. Both fine.

I understand the testing had limitations, but what were the cognitive results?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

No one said you are an idiot. At the same time, adjusting expectations when you have a child with a disability is important, as you know. If your child's dyslexia is so severe that it may not be remediated, then it might be helpful to shift to accommodating for it (e.g., audiobooks at school and home). You state that you have college expectations for a "functionally illiterate" 10 year old - depending on your child's interests, you may need to adjust this expectation. If your child wants to go to college, this is definitely possible with assistive technology.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

No one said you are an idiot. At the same time, adjusting expectations when you have a child with a disability is important, as you know. If your child's dyslexia is so severe that it may not be remediated, then it might be helpful to shift to accommodating for it (e.g., audiobooks at school and home). You state that you have college expectations for a "functionally illiterate" 10 year old - depending on your child's interests, you may need to adjust this expectation. If your child wants to go to college, this is definitely possible with assistive technology.

Why are you being so hostile and nasty? its reasonable to want to do everything to help your child learn to read. Everything in school is based off reading. It's not the time to give up on this child and yes, there are options to help them but as a parent most of us would try anything to help our kids (except you). OP sounds like a great parent trying everything and good for them.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

No one said you are an idiot. At the same time, adjusting expectations when you have a child with a disability is important, as you know. If your child's dyslexia is so severe that it may not be remediated, then it might be helpful to shift to accommodating for it (e.g., audiobooks at school and home). You state that you have college expectations for a "functionally illiterate" 10 year old - depending on your child's interests, you may need to adjust this expectation. If your child wants to go to college, this is definitely possible with assistive technology.

Why are you being so hostile and nasty? its reasonable to want to do everything to help your child learn to read. Everything in school is based off reading. It's not the time to give up on this child and yes, there are options to help them but as a parent most of us would try anything to help our kids (except you). OP sounds like a great parent trying everything and good for them.

I’m sorry but there is a huge disconnect here. How was your kid admitted to a private SN school with no neuropsych test? How did you get the dyslexia diagnosis? How are you doing anything and everything possible if he doesn’t even have a diagnosis you have not tested properly, so you don’t know what you are helping, and you won’t do of/asdec? I don’t get what’s happening here.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Unfortunately for your wallet, Lindamood Bell is the top-tier intervention. They have published some material (e.g. Seeing Stars), but I can't speak to anything other than its existence. Might be worth a try if you are strapped for cash, though.

Asdec is far better.

+1

+1

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

No one said you are an idiot. At the same time, adjusting expectations when you have a child with a disability is important, as you know. If your child's dyslexia is so severe that it may not be remediated, then it might be helpful to shift to accommodating for it (e.g., audiobooks at school and home). You state that you have college expectations for a "functionally illiterate" 10 year old - depending on your child's interests, you may need to adjust this expectation. If your child wants to go to college, this is definitely possible with assistive technology.

Why are you being so hostile and nasty? its reasonable to want to do everything to help your child learn to read. Everything in school is based off reading. It's not the time to give up on this child and yes, there are options to help them but as a parent most of us would try anything to help our kids (except you). OP sounds like a great parent trying everything and good for them.

OP here. Thank you. Thank you for being kind.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:How recently has he had a full neuropsych done?

Op here. DC was tested in public but it was during Covid before enrolling in private. So over 2 years ago. The testing was not adequate for sure especially because of how it was conducted during virtual so there was some done virtually, and some done through a plexiglass screen. And some not done at all. We have requested it again through the public schools and will also request an IEE. In that process now.

dC was tested by a pediatric ophthalmologist to rule out vision issues and also a pediatric audiologist at children’s to rule out any hearing impairments. Both fine.

I understand the testing had limitations, but what were the cognitive results?

DC’s IQ was in the low average to average range. Some areas were low average others were average. Comprehension was average. Phonological processing, working memory scores, were all very low (Some scores in less than 1st, 3rd and 5th percentiles). To my knowledge there was no indication of ID based on the psychoeducational testing the school did. But again it was in the middle of Covid and not ideal. DC has been in private since the testing. The private school relied on the IEP and testing for admissions. They also brought DC in more than once for additional testing and evaluation by their own staff prior to admission.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

No one said you are an idiot. At the same time, adjusting expectations when you have a child with a disability is important, as you know. If your child's dyslexia is so severe that it may not be remediated, then it might be helpful to shift to accommodating for it (e.g., audiobooks at school and home). You state that you have college expectations for a "functionally illiterate" 10 year old - depending on your child's interests, you may need to adjust this expectation. If your child wants to go to college, this is definitely possible with assistive technology.

Why are you being so hostile and nasty? its reasonable to want to do everything to help your child learn to read. Everything in school is based off reading. It's not the time to give up on this child and yes, there are options to help them but as a parent most of us would try anything to help our kids (except you). OP sounds like a great parent trying everything and good for them.

I’m sorry but there is a huge disconnect here. How was your kid admitted to a private SN school with no neuropsych test? How did you get the dyslexia diagnosis? How are you doing anything and everything possible if he doesn’t even have a diagnosis you have not tested properly, so you don’t know what you are helping, and you won’t do of/asdec? I don’t get what’s happening here.

It sounds like there were evaluations and it runs in the family. This parent is doing everything possible if you read the thread so to bash them and be hostile is inappropriate, to put it nicely. Either way this child has significant reading issues and needs support not criticism.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:^^ Be nice. She's tried smething, it didn't wrk and nw she's frustrated. (I"m giving up 0s fr lent)

Didn't mean to be rude, tho I could have softened it possibly. It seems to me that some parents try to cure their kid, so that was why i commented that. Not sure if that's OP's expectation or not. I know several people who are highly dyslexic and highly successful - to this day they prefer to listen to everything: news, books, training for work, you name it. They still don't read well, but they are rock stars in their fields

OP here and I’m not “trying to cure my kid.” What you’ve implied is insulting. I’m not an idiot. I have three kids with varying learning disabilities and all three have IEPs. I also have a dyslexic husband who went to a special Ed private school and now is a well-educated and gainfully employed individual. However our DC is not just confounding us but also a school that specializes in language based learning disabilities. Because their dyslexia is that severe. I know I cannot “cure” them, but it is deeply concerning to have a functionally illiterate child who is 10 and has has this many interventions at this point in public and private school. Cure? No. But I do have expectations for them to graduate high school and college because they are very bright and engaged with learning. They just can’t learn to read.

And no we are not in the position for one of us to just quit our jobs to tutor DC. That would be bad for them socially and emotionally. They like school. They make friends easily. And someone has to pay for the $50k private school!

Appreciate those who responded with productive and helpful suggestions.

No one said you are an idiot. At the same time, adjusting expectations when you have a child with a disability is important, as you know. If your child's dyslexia is so severe that it may not be remediated, then it might be helpful to shift to accommodating for it (e.g., audiobooks at school and home). You state that you have college expectations for a "functionally illiterate" 10 year old - depending on your child's interests, you may need to adjust this expectation. If your child wants to go to college, this is definitely possible with assistive technology.

Why are you being so hostile and nasty? its reasonable to want to do everything to help your child learn to read. Everything in school is based off reading. It's not the time to give up on this child and yes, there are options to help them but as a parent most of us would try anything to help our kids (except you). OP sounds like a great parent trying everything and good for them.

I’m sorry but there is a huge disconnect here. How was your kid admitted to a private SN school with no neuropsych test? How did you get the dyslexia diagnosis? How are you doing anything and everything possible if he doesn’t even have a diagnosis you have not tested properly, so you don’t know what you are helping, and you won’t do of/asdec? I don’t get what’s happening here.

Not sure what your problem is. I don’t see a disconnect at all. The OP said the public school district tested her kid during Covid when kid was probably 7-8. Like many LD kids like mine, I presume virtual was a disaster for OP’s kid and it prompted the testing. The kid got an IEP and then moved to private after testing showed Specific Learning Disability and testing showed low scores in phonological processing scores. Private school based admissions on the testing and IEP. What isn’t clear about that? And OP said there’s also a family history of dyslexia or LD (she said husband and other kids). So it seems pretty clear why they would treat like dyslexia. Nothing seems confusing about this.

I agree that OP needs to do more comprehensive psychoeducational testing done by a private group for her kid. Especially since the testing was done in school during Covid and sounds incomplete.

I can also see how OP would feel blindsided by how the private school is responding. They reviewed the testing and IEP. They also presumably met the child before admission if it’s Lab/Sienna/Oakwood/McLean (OP said she’s in NOVA) which all require visits with their reading specialists and teachers before admission. The kid has been there for at least a year and now school is saying sorry not sorry we can’t help your kid. That’s kind of a cop out.

Truth be told. For kids with severe dyslexia private school alone isn’t enough. You need OG tutoring at least 4x a week in addition. Which is why we decided to keep our DC in public and push the money into tutoring. We knew that private would be a $45k+ cost and we would need one on one tutoring anyway.