So freakin sick of appointments

[Anonymous]

Both the regularly scheduled and the one and done type. Every new provider means an intake process, even if we come with diagnosing documents. More paperwork, more rounds of phone tag to find said new provider and that's if I even get lucky enough to get a return call. So tired of telling my kid's story to people we pay a lot of money to only to have them a) misspell his name multiple times over multiple appointments b) forget all of the details that they initially wanted to know. God, it never ends.

[Anonymous]

Totally there!! Past few weeks all I've done is paperwork and more paperwork and calling did you get the paperwork etc etc etc. I too have appointment burnout!!

[Anonymous]

I'm sorry, OP, but this sounds like a classic scam operation.

[Anonymous]

As a parent who has gone through this - if I could do it over I probably would have typed up a profile with their questions and our responses and given it to each provider.

[Anonymous]

Anonymous wrote:I'm sorry, OP, but this sounds like a classic scam operation.

Nope, the last provider is actually someone who gets a good number of favorable mentions on this board.

[Anonymous]

It'll get better once your child gets older. I have a DS8 with ASD/ADHD and the only provider we see on a regular basis is his psychiatrist to manage his ADHD meds once every three months. We get all services through the IEP at school which leaves plenty of time for me to schlep him to his various sports, hobbies, religious instruction, etc. during the week and weekends.

[Anonymous]

I don't mind them because I feel like each appt gets us one step closer to her getting better and where she needs to be in life.

But I'm a bit Pollyanna about things, plus this does not have to be permanent, while some of the things others are dealing with are.

[Anonymous]

Anonymous wrote:

Anonymous wrote:I'm sorry, OP, but this sounds like a classic scam operation.

Nope, the last provider is actually someone who gets a good number of favorable mentions on this board.

They *love* parents like you.

[Anonymous]

Anonymous wrote:It'll get better once your child gets older. I have a DS8 with ASD/ADHD and the only provider we see on a regular basis is his psychiatrist to manage his ADHD meds once every three months. We get all services through the IEP at school which leaves plenty of time for me to schlep him to his various sports, hobbies, religious instruction, etc. during the week and weekends.

This is very rare you know! Many of us get almost nothing from the schools which means we are schelping our kids to ST, OT and social skills therapy 3-5 times a week. It's exhausting.

[Anonymous]

Anonymous wrote:I'm sorry, OP, but this sounds like a classic scam operation.

This is ridiculous. Have you ever been to a doctor's office?

[Anonymous]

Been there, too. I've had to day a break periodically and just let my kiddo and me "be".

[Anonymous]

I once took a two weeks off from going to appointments, making appointments, and researching anything on the web. I just really, really needed a break. It allowed me to come back to it recharged.

[Anonymous]

Agreed, it does get easier as they are older. Thank goodness we have been with our speech pathologist for several years but we went through all that and therapies every day, some twice a day. I thought I lived in my car running to apt. after apt.

[Anonymous]

Anonymous wrote:

Anonymous wrote:It'll get better once your child gets older. I have a DS8 with ASD/ADHD and the only provider we see on a regular basis is his psychiatrist to manage his ADHD meds once every three months. We get all services through the IEP at school which leaves plenty of time for me to schlep him to his various sports, hobbies, religious instruction, etc. during the week and weekends.

This is very rare you know! Many of us get almost nothing from the schools which means we are schelping our kids to ST, OT and social skills therapy 3-5 times a week. It's exhausting.

We tried private OT and social skills therapy when DS was younger and it was exhausting (for me) and expensive and not effective so we stopped. The private OT focused on sensory issues which did not cause DS any issues and the social skills therapy did not transfer to his peers at school. I am sorry to this day that we wasted the time and money - no one took insurance either.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I'm sorry, OP, but this sounds like a classic scam operation.

Nope, the last provider is actually someone who gets a good number of favorable mentions on this board.

They *love* parents like you.

Stop scaring special needs parents.

In the words of Game of Thrones: You know nothing.

OP, this is often the way it is with special needs kids. I don't know how old your child your child is or how new the diagnosis, but hopefully after the first year (or two) you will hone down your team of trusted providers mainly to one institution. They will talk to each other, and have a team approach. There will be a clear team leader, perhaps someone you can email.

You won't have to keep reintroducing yourself, spelling, and explaining. If you don't get that, leave.

BTW, we left Children's Hospital because we felt like we were strangers at every single appointment there. I don't think it was a "scam operation" but it was hopelessly disorganized and an administrative cesspool.