School thinks DS has ASD, dev ped does not agree. Now what?

Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:"Also I would think carefully about the teacher ratings and try to get more information about her concerns. The developmental ped. may be more of an expert on autism but the teacher is probably more of an expert on your child. While your child may not have autism the teacher had enough concerns that her ratings on the evaluation show he may have some characteristics which probably need to be addressed given the behavioral issues."

I have yet to meet someone who works for a school system who knows what the fuck they are talking about when it comes to kids and disabilities. The last opinion I would trust would be from someone at a school.


Then you've been in the wrong schools.


No, this is the norm. Maybe you got lucky. Schools put most of our kids and us through hell.


Agree. The only people I feel who really get my DS's issues are the school OT and a teacher's aide who sees him at recess. To everyone else, the fact that he can keep up in class more or less with no disruptive behaviors means "there's no problem at all!"
Anonymous
The ADOS is a checklist and the same information can be received in many different ways, not just with that one test.

Its great for those in perfect school situations. Last year the teacher did not get our child at all. This year the teacher gets our child but the administration doesn't listen to the teacher at all and it sucks as she is not allowed to give him the supports he needs and he is getting supports he doesn't need and its actually doing more harm than good. Few teachers are that well trained or take the time to get to know our kids and I'd be really concerned about one doing diagnosis. I would not push for an ASD diagnosis as it stays with the child forever and can cause issues later on.
Anonymous
Anonymous wrote:The ADOS is a checklist and the same information can be received in many different ways, not just with that one test.

Its great for those in perfect school situations. Last year the teacher did not get our child at all. This year the teacher gets our child but the administration doesn't listen to the teacher at all and it sucks as she is not allowed to give him the supports he needs and he is getting supports he doesn't need and its actually doing more harm than good. Few teachers are that well trained or take the time to get to know our kids and I'd be really concerned about one doing diagnosis. I would not push for an ASD diagnosis as it stays with the child forever and can cause issues later on.


No, the ADOS is not just a checklist. You're probably confusing it with the Vanderbilt.

In any case, most of the time public schools don't administer the ADOS. Most of their staff aren't qualified to do so. If parents are seeing developmental pediatricians and going to the trouble of getting a neuropsch evaluation--it behooves them to include the ADOS.

Op, stop using phrases like autism was ruled out when you didn't do the ADOS. Telling this to the school as well as the developmental pediatrician didn't think it was necessary--whether true or not--makes you seem like you're in denial or hiding something to the school.

So get the ADOS done independently. You still may face the same issue with the school but at least you'll actually have a leg to stand on.
Anonymous
Anonymous wrote:
Anonymous wrote:The ADOS is a checklist and the same information can be received in many different ways, not just with that one test.

Its great for those in perfect school situations. Last year the teacher did not get our child at all. This year the teacher gets our child but the administration doesn't listen to the teacher at all and it sucks as she is not allowed to give him the supports he needs and he is getting supports he doesn't need and its actually doing more harm than good. Few teachers are that well trained or take the time to get to know our kids and I'd be really concerned about one doing diagnosis. I would not push for an ASD diagnosis as it stays with the child forever and can cause issues later on.


No, the ADOS is not just a checklist. You're probably confusing it with the Vanderbilt.

In any case, most of the time public schools don't administer the ADOS. Most of their staff aren't qualified to do so. If parents are seeing developmental pediatricians and going to the trouble of getting a neuropsch evaluation--it behooves them to include the ADOS.

Op, stop using phrases like autism was ruled out when you didn't do the ADOS. Telling this to the school as well as the developmental pediatrician didn't think it was necessary--whether true or not--makes you seem like you're in denial or hiding something to the school.

So get the ADOS done independently. You still may face the same issue with the school but at least you'll actually have a leg to stand on.


If you've had other tests, like the GARS or CARS, you don't need the ADOS, too.

Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:The ADOS is a checklist and the same information can be received in many different ways, not just with that one test.

Its great for those in perfect school situations. Last year the teacher did not get our child at all. This year the teacher gets our child but the administration doesn't listen to the teacher at all and it sucks as she is not allowed to give him the supports he needs and he is getting supports he doesn't need and its actually doing more harm than good. Few teachers are that well trained or take the time to get to know our kids and I'd be really concerned about one doing diagnosis. I would not push for an ASD diagnosis as it stays with the child forever and can cause issues later on.


No, the ADOS is not just a checklist. You're probably confusing it with the Vanderbilt.

In any case, most of the time public schools don't administer the ADOS. Most of their staff aren't qualified to do so. If parents are seeing developmental pediatricians and going to the trouble of getting a neuropsch evaluation--it behooves them to include the ADOS.

Op, stop using phrases like autism was ruled out when you didn't do the ADOS. Telling this to the school as well as the developmental pediatrician didn't think it was necessary--whether true or not--makes you seem like you're in denial or hiding something to the school.

So get the ADOS done independently. You still may face the same issue with the school but at least you'll actually have a leg to stand on.


If you've had other tests, like the GARS or CARS, you don't need the ADOS, too.



Theses aren't good substitutes. Besides GARS is what the teacher is filling out.

The bottom line is the Op's kid is having behavioral difficulties. Ohi is going to be a hard sell.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:The ADOS is a checklist and the same information can be received in many different ways, not just with that one test.

Its great for those in perfect school situations. Last year the teacher did not get our child at all. This year the teacher gets our child but the administration doesn't listen to the teacher at all and it sucks as she is not allowed to give him the supports he needs and he is getting supports he doesn't need and its actually doing more harm than good. Few teachers are that well trained or take the time to get to know our kids and I'd be really concerned about one doing diagnosis. I would not push for an ASD diagnosis as it stays with the child forever and can cause issues later on.


No, the ADOS is not just a checklist. You're probably confusing it with the Vanderbilt.

In any case, most of the time public schools don't administer the ADOS. Most of their staff aren't qualified to do so. If parents are seeing developmental pediatricians and going to the trouble of getting a neuropsch evaluation--it behooves them to include the ADOS.

Op, stop using phrases like autism was ruled out when you didn't do the ADOS. Telling this to the school as well as the developmental pediatrician didn't think it was necessary--whether true or not--makes you seem like you're in denial or hiding something to the school.

So get the ADOS done independently. You still may face the same issue with the school but at least you'll actually have a leg to stand on.


If you've had other tests, like the GARS or CARS, you don't need the ADOS, too.



Theses aren't good substitutes. Besides GARS is what the teacher is filling out.

The bottom line is the Op's kid is having behavioral difficulties. Ohi is going to be a hard sell.


They need an assessment for the behavioral issues. Why the heavy focus on ASD if it is behavioral? If OP says it not, then the question is what is causing the behavioral issues?
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:The ADOS is a checklist and the same information can be received in many different ways, not just with that one test.

Its great for those in perfect school situations. Last year the teacher did not get our child at all. This year the teacher gets our child but the administration doesn't listen to the teacher at all and it sucks as she is not allowed to give him the supports he needs and he is getting supports he doesn't need and its actually doing more harm than good. Few teachers are that well trained or take the time to get to know our kids and I'd be really concerned about one doing diagnosis. I would not push for an ASD diagnosis as it stays with the child forever and can cause issues later on.


No, the ADOS is not just a checklist. You're probably confusing it with the Vanderbilt.

In any case, most of the time public schools don't administer the ADOS. Most of their staff aren't qualified to do so. If parents are seeing developmental pediatricians and going to the trouble of getting a neuropsch evaluation--it behooves them to include the ADOS.

Op, stop using phrases like autism was ruled out when you didn't do the ADOS. Telling this to the school as well as the developmental pediatrician didn't think it was necessary--whether true or not--makes you seem like you're in denial or hiding something to the school.

So get the ADOS done independently. You still may face the same issue with the school but at least you'll actually have a leg to stand on.


If you've had other tests, like the GARS or CARS, you don't need the ADOS, too.



Theses aren't good substitutes. Besides GARS is what the teacher is filling out.

The bottom line is the Op's kid is having behavioral difficulties. Ohi is going to be a hard sell.


They need an assessment for the behavioral issues. Why the heavy focus on ASD if it is behavioral? If OP says it not, then the question is what is causing the behavioral issues?


And he has a diagnosis, ADHD. Which can cause a lot of behavioral issues. Seriously, doesn't everyone know this?
Anonymous
No, I think the op is facing an uphill battle with the school to go from a 504 to an iep and not get an autism designation.

This kid has behavioral issues the school is following their usual playbook.

Anonymous
Anonymous wrote:No, I think the op is facing an uphill battle with the school to go from a 504 to an iep and not get an autism designation.

This kid has behavioral issues the school is following their usual playbook.



It just doesn't make any sense. I know plenty of kids who have IEPs because of ADHD. Typically, though, if the school is pushing ASD, they have an ulterior motive. It's not some sort of great holistic journey where they are trying to get the optimal setting for your child. Instead, checking that autism box does something for THEM. Maybe they have an opening in an autism classroom (that's what our story was).
Anonymous
Anonymous wrote:
Anonymous wrote:No, I think the op is facing an uphill battle with the school to go from a 504 to an iep and not get an autism designation.

This kid has behavioral issues the school is following their usual playbook.



It just doesn't make any sense. I know plenty of kids who have IEPs because of ADHD. Typically, though, if the school is pushing ASD, they have an ulterior motive. It's not some sort of great holistic journey where they are trying to get the optimal setting for your child. Instead, checking that autism box does something for THEM. Maybe they have an opening in an autism classroom (that's what our story was).


Or they need a certain number / type of support hours to get a type of related service provider assigned to the school.

Anonymous
Anonymous wrote:
Anonymous wrote:No, I think the op is facing an uphill battle with the school to go from a 504 to an iep and not get an autism designation.

This kid has behavioral issues the school is following their usual playbook.



It just doesn't make any sense. I know plenty of kids who have IEPs because of ADHD. Typically, though, if the school is pushing ASD, they have an ulterior motive. It's not some sort of great holistic journey where they are trying to get the optimal setting for your child. Instead, checking that autism box does something for THEM. Maybe they have an opening in an autism classroom (that's what our story was).


You guys don't get it. It doesn't matter what the diagnosis actually is to the SCHOOL. They're not diagnosing they're designating.

You can get an iep for ADHD as OHI, but it will be a had sell to get one for a 7 year old with behavioral issues. That's just the way it is.
Anonymous
The other option the schools pursue, which is suboptimal, too, is ED. Many parents prefer the ASD designation over ED but others prefer the opposite.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:No, I think the op is facing an uphill battle with the school to go from a 504 to an iep and not get an autism designation.

This kid has behavioral issues the school is following their usual playbook.



It just doesn't make any sense. I know plenty of kids who have IEPs because of ADHD. Typically, though, if the school is pushing ASD, they have an ulterior motive. It's not some sort of great holistic journey where they are trying to get the optimal setting for your child. Instead, checking that autism box does something for THEM. Maybe they have an opening in an autism classroom (that's what our story was).


You guys don't get it. It doesn't matter what the diagnosis actually is to the SCHOOL. They're not diagnosing they're designating.

You can get an iep for ADHD as OHI, but it will be a had sell to get one for a 7 year old with behavioral issues. That's just the way it is.


it's not the way it is. Plenty of students have IEPs for ADHD. OP, you can get an educational advocate if you are uncomfortable navigating this on your own.
Anonymous
Anonymous wrote:OP here. My earlier post didn't go though for some reason.

We are thinking about pursuing an IEP under OHI. Dev ped might be willing to make a case, thought noted that "schools do what they want to anyway." Blergh.

Thanks to all who posted. I so appreciate the help.


If you have issue with this, get an advocate. They deal with this sort of thing all the time.
Anonymous
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:
Anonymous wrote:The ADOS is a checklist and the same information can be received in many different ways, not just with that one test.

Its great for those in perfect school situations. Last year the teacher did not get our child at all. This year the teacher gets our child but the administration doesn't listen to the teacher at all and it sucks as she is not allowed to give him the supports he needs and he is getting supports he doesn't need and its actually doing more harm than good. Few teachers are that well trained or take the time to get to know our kids and I'd be really concerned about one doing diagnosis. I would not push for an ASD diagnosis as it stays with the child forever and can cause issues later on.


No, the ADOS is not just a checklist. You're probably confusing it with the Vanderbilt.

In any case, most of the time public schools don't administer the ADOS. Most of their staff aren't qualified to do so. If parents are seeing developmental pediatricians and going to the trouble of getting a neuropsch evaluation--it behooves them to include the ADOS.

Op, stop using phrases like autism was ruled out when you didn't do the ADOS. Telling this to the school as well as the developmental pediatrician didn't think it was necessary--whether true or not--makes you seem like you're in denial or hiding something to the school.

So get the ADOS done independently. You still may face the same issue with the school but at least you'll actually have a leg to stand on.


If you've had other tests, like the GARS or CARS, you don't need the ADOS, too.



Theses aren't good substitutes. Besides GARS is what the teacher is filling out.

The bottom line is the Op's kid is having behavioral difficulties. Ohi is going to be a hard sell.


We had no problem getting an IEP under OHI for behavioral issues alone. Later we changed to ASD to get into an Asperger's classroom.
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