Toni Braxton says her child "cured" of autism through early intervention

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Don't school systems use "developmental delay" for young kids already? My kid who already had an autism diagnosis in preschool got services through his IEP under "developmental delay" until he was in K at a DC charter and so did all the other kids in his class with IEPs in preschool. (Yes, the parents know each other through a networking get together soon arranged by the school)

Not all of us use school system services. We got such a run around that we gave up and went private (the delays were severe enough). But, insurance forced us (the doctor associated with it) to do it under an autism code and would not/will not pay under a language disorder nor take the time to look at what really could be the cause.

Your choice.

Again, your choice; seek a second opinion if you're dissatisfied with a diagnosis. No one "forced you."

Also, most health insurers do not cover services for language disorders. So you are incredibly lucky.

We are very lucky ours is paying now for a language disorder, but we also private paid for a year before it started, and had to jump through many hoops. We did get a 2nd and 3rd opinion and none agree with the first, nor does the SLP however this doctor does not care what others say in their evaluations and we are stuck due to the insurance. There is no choice in providers. You are lucky you have choice, we don't. The issue is it is coded in his medical records and it cannot be removed once its on except by this doctor who sees us 30 minutes every few years.

[Anonymous]

Anonymous wrote:I'm an adult with autism. Please don't mistake "outgrowing" for "learning how to adapt and blend in." A kid who at age 3 does not normally make eye contact can be taught that he needs to. Through intervention, he may finally learn that to get people to stop bugging him, he should look at their eyes. Eye contact will never be his natural inclination, and because of this, he is still autistic despite the fact that he was, for lack of a better word, trained to appear normal.

There are several other reasons why kids do not have eye contact early on, such as severe receptive issues. I never taught my child eye contact or any of the autism "fixes", but it came when he developed social communication and his receptive and expressive came it. He comfortably looks at people and it is very natural. Kids can be misdiagnosed. They can be misdiagnosed as not having autism when they do, which means they go without those services geared toward autism and kids can be misdiagnosed as autism and it can be a language or other issue and the things that look like autism disappear. Autism is a checklist that is done at one point in time. There is no medical test so it is not an exact science. We have done several evaluations. One said autism at 2, and all the rest have said its all a language disorder and ruled out autism. But, once you get the autism label it often sticks. due to the lack of understanding about what autism really is.

[Anonymous]

Anonymous wrote:I'm an adult with autism. Please don't mistake "outgrowing" for "learning how to adapt and blend in." A kid who at age 3 does not normally make eye contact can be taught that he needs to. Through intervention, he may finally learn that to get people to stop bugging him, he should look at their eyes. Eye contact will never be his natural inclination, and because of this, he is still autistic despite the fact that he was, for lack of a better word, trained to appear normal.

thanks for your input! sometimes I wonder if "outgrowing" in some
cases means the NTs just accepting that someone can be different, yet function successfully and have a rewarding life.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Don't school systems use "developmental delay" for young kids already? My kid who already had an autism diagnosis in preschool got services through his IEP under "developmental delay" until he was in K at a DC charter and so did all the other kids in his class with IEPs in preschool. (Yes, the parents know each other through a networking get together soon arranged by the school)

Not all of us use school system services. We got such a run around that we gave up and went private (the delays were severe enough). But, insurance forced us (the doctor associated with it) to do it under an autism code and would not/will not pay under a language disorder nor take the time to look at what really could be the cause.

Your choice.

Again, your choice; seek a second opinion if you're dissatisfied with a diagnosis. No one "forced you."

Also, most health insurers do not cover services for language disorders. So you are incredibly lucky.

We are very lucky ours is paying now for a language disorder, but we also private paid for a year before it started, and had to jump through many hoops. We did get a 2nd and 3rd opinion and none agree with the first, nor does the SLP however this doctor does not care what others say in their evaluations and we are stuck due to the insurance. There is no choice in providers. You are lucky you have choice, we don't. The issue is it is coded in his medical records and it cannot be removed once its on except by this doctor who sees us 30 minutes every few years.

If you private pay for ST and school, you have the $ for a second opinion. You aren't "stuck." There has to be more than one doctor in your health insurance network.

[Anonymous]

This is the equivalent of Halle berry saying she cured herself of type 1 diabetes.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:Don't school systems use "developmental delay" for young kids already? My kid who already had an autism diagnosis in preschool got services through his IEP under "developmental delay" until he was in K at a DC charter and so did all the other kids in his class with IEPs in preschool. (Yes, the parents know each other through a networking get together soon arranged by the school)

Not all of us use school system services. We got such a run around that we gave up and went private (the delays were severe enough). But, insurance forced us (the doctor associated with it) to do it under an autism code and would not/will not pay under a language disorder nor take the time to look at what really could be the cause.

Your choice.

Again, your choice; seek a second opinion if you're dissatisfied with a diagnosis. No one "forced you."

Also, most health insurers do not cover services for language disorders. So you are incredibly lucky.

We are very lucky ours is paying now for a language disorder, but we also private paid for a year before it started, and had to jump through many hoops. We did get a 2nd and 3rd opinion and none agree with the first, nor does the SLP however this doctor does not care what others say in their evaluations and we are stuck due to the insurance. There is no choice in providers. You are lucky you have choice, we don't. The issue is it is coded in his medical records and it cannot be removed once its on except by this doctor who sees us 30 minutes every few years.

If you private pay for ST and school, you have the $ for a second opinion. You aren't "stuck." There has to be more than one doctor in your health insurance network.

We have paid for second opinion. We have to go through this doctor. There are only two developmental ped's and they will not let us switch. He will not take outside opinions Our private school is $1000 a month and we only did that as the public refused to accept our child due to age and refused pep because of age - they said he aged out of pep but was not old enough for K. Speech at this point has a nominal copay.

[Anonymous]

Anonymous wrote:This is the equivalent of Halle berry saying she cured herself of type 1 diabetes.

With enough money she probably could find a way.

[Anonymous]

Anonymous wrote:

Anonymous wrote:I'm an adult with autism. Please don't mistake "outgrowing" for "learning how to adapt and blend in." A kid who at age 3 does not normally make eye contact can be taught that he needs to. Through intervention, he may finally learn that to get people to stop bugging him, he should look at their eyes. Eye contact will never be his natural inclination, and because of this, he is still autistic despite the fact that he was, for lack of a better word, trained to appear normal.

There are several other reasons why kids do not have eye contact early on, such as severe receptive issues. I never taught my child eye contact or any of the autism "fixes", but it came when he developed social communication and his receptive and expressive came it. He comfortably looks at people and it is very natural. Kids can be misdiagnosed. They can be misdiagnosed as not having autism when they do, which means they go without those services geared toward autism and kids can be misdiagnosed as autism and it can be a language or other issue and the things that look like autism disappear. Autism is a checklist that is done at one point in time. There is no medical test so it is not an exact science. We have done several evaluations. One said autism at 2, and all the rest have said its all a language disorder and ruled out autism. But, once you get the autism label it often sticks. due to the lack of understanding about what autism really is.

Yes, this comes when kids on the spectrum gets speech therapy too.

Many kids on the spectrum look "natural."

Some kids get misdiagnosed, but seriously, if your kid is making such strides and your "misdiagnosis" got you the help he needed, so what? You are way too hung up on a label.

Medical records are private, so a diagnosis isn't shared unless you share it. Get your kid a full neuropsych evaluation since you're so confident that he's not autistic and has a language disorder.

[Anonymous]

If the kids on the spectrum look "natural" how are they on the spectrum?

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I'm an adult with autism. Please don't mistake "outgrowing" for "learning how to adapt and blend in." A kid who at age 3 does not normally make eye contact can be taught that he needs to. Through intervention, he may finally learn that to get people to stop bugging him, he should look at their eyes. Eye contact will never be his natural inclination, and because of this, he is still autistic despite the fact that he was, for lack of a better word, trained to appear normal.

There are several other reasons why kids do not have eye contact early on, such as severe receptive issues. I never taught my child eye contact or any of the autism "fixes", but it came when he developed social communication and his receptive and expressive came it. He comfortably looks at people and it is very natural. Kids can be misdiagnosed. They can be misdiagnosed as not having autism when they do, which means they go without those services geared toward autism and kids can be misdiagnosed as autism and it can be a language or other issue and the things that look like autism disappear. Autism is a checklist that is done at one point in time. There is no medical test so it is not an exact science. We have done several evaluations. One said autism at 2, and all the rest have said its all a language disorder and ruled out autism. But, once you get the autism label it often sticks. due to the lack of understanding about what autism really is.

Yes, this comes when kids on the spectrum gets speech therapy too.

Many kids on the spectrum look "natural."

Some kids get misdiagnosed, but seriously, if your kid is making such strides and your "misdiagnosis" got you the help he needed, so what? You are way too hung up on a label.

Medical records are private, so a diagnosis isn't shared unless you share it. Get your kid a full neuropsych evaluation since you're so confident that he's not autistic and has a language disorder.

We've done a full evaluation (privately) by someone else who was clear it was a language disorder and not autism. There were features early on but they are all gone now. Medical records are not private. They are all electronic and for everyone to view. It can only be removed by the doctor who placed it there. So, if we got to the ER, they see my child has "autism" and its usually the first thing they mention.

Autism cannot be cured. It also should not be given to everyone, especially high functioning as it minimizes those who truly are. If it can be cured or outgrown, it was a misdiagnosis. (just like one mom on this board was told it was a language disorder and it turned out to be autism - it goes both ways).

[Anonymous]

Anonymous wrote:If the kids on the spectrum look "natural" how are they on the spectrum?

Physically they look fine. But when they talk, socialize, etc. they appear "different." Just like kids with many other disorders.

[Anonymous]

Anonymous wrote:

Anonymous wrote:If the kids on the spectrum look "natural" how are they on the spectrum?

Physically they look fine. But when they talk, socialize, etc. they appear "different." Just like kids with many other disorders.

Not always you twits. It's a "spectrum."

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:I'm an adult with autism. Please don't mistake "outgrowing" for "learning how to adapt and blend in." A kid who at age 3 does not normally make eye contact can be taught that he needs to. Through intervention, he may finally learn that to get people to stop bugging him, he should look at their eyes. Eye contact will never be his natural inclination, and because of this, he is still autistic despite the fact that he was, for lack of a better word, trained to appear normal.

There are several other reasons why kids do not have eye contact early on, such as severe receptive issues. I never taught my child eye contact or any of the autism "fixes", but it came when he developed social communication and his receptive and expressive came it. He comfortably looks at people and it is very natural. Kids can be misdiagnosed. They can be misdiagnosed as not having autism when they do, which means they go without those services geared toward autism and kids can be misdiagnosed as autism and it can be a language or other issue and the things that look like autism disappear. Autism is a checklist that is done at one point in time. There is no medical test so it is not an exact science. We have done several evaluations. One said autism at 2, and all the rest have said its all a language disorder and ruled out autism. But, once you get the autism label it often sticks. due to the lack of understanding about what autism really is.

Yes, this comes when kids on the spectrum gets speech therapy too.

Many kids on the spectrum look "natural."

Some kids get misdiagnosed, but seriously, if your kid is making such strides and your "misdiagnosis" got you the help he needed, so what? You are way too hung up on a label.

Medical records are private, so a diagnosis isn't shared unless you share it. Get your kid a full neuropsych evaluation since you're so confident that he's not autistic and has a language disorder.

We've done a full evaluation (privately) by someone else who was clear it was a language disorder and not autism. There were features early on but they are all gone now. Medical records are not private. They are all electronic and for everyone to view. It can only be removed by the doctor who placed it there. So, if we got to the ER, they see my child has "autism" and its usually the first thing they mention.

Autism cannot be cured. It also should not be given to everyone, especially high functioning as it minimizes those who truly are. If it can be cured or outgrown, it was a misdiagnosis. (just like one mom on this board was told it was a language disorder and it turned out to be autism - it goes both ways).

Wow, it's neurological--not VD. Your argument that it shouldn't be given to "high functioning" people is completely specious. You realize where the term Aspergers comes from right? Dr. Aspergers in a desperate plea to keep people with autism out of concentrations camps tried to make a case for the ones with higher functioning. Shame on you.

[Anonymous]

Yes, this happens to many kids on the spectrum as they grow up. Instead of saying her son is cured; she should be going around saying Early Intervention is wonderful and can greatly benefit children on the spectrum!

My niece who was diagnosed with Asperger's before the re-write has also moved off the spectrum due to all the interventions and therapy.

[Anonymous]

Anonymous wrote:

Anonymous wrote:

Anonymous wrote:If the kids on the spectrum look "natural" how are they on the spectrum?

Physically they look fine. But when they talk, socialize, etc. they appear "different." Just like kids with many other disorders.

Not always you twits. It's a "spectrum."

We don't call people twits on this forum.